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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Funny Pages - Tickle Me Elbow - The Sequel
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Ugh, my stomach has decided that sweet potato is no longer good on my stomach tonight. I got halfway through it and yep.... To my defense it was a little grainy....

You are really stressing about finals and maybe even going home. So...it might have nothing to do with the food, Hon. You will be fine.

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grass...greener

I love Sonoma in the winter....too many allergens in the air for me in the Summer -- my daughter lives in Santa Rosa :)

Hubs grew up there (high school) so had already been treated for local allergens. We lived there for 20 years and he didn't have much of a problem. Move down here and it was just a sneezing chorus, and because of undiagnosed celiac - sinus infections. Densensitized again, especially for cocksfoot grass, which was originally (early settlement days) a seed crop in our area :blink::rolleyes: Durned ssttuphph is everywhere !

Ugh, my stomach has decided that sweet potato is no longer good on my stomach tonight. I got halfway through it and yep.... To my defense it was a little grainy....

I think you need some phun and company in your life so you can think about something else and phorget about papers and finals (and yer stomach). Life is for living :) It's been a tough semester for you, honeybun. Now go out and have some outrageous phun !!! over Christmas B)

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aaaaaaaachew and bless your hubby -- I'm only safe right after a clearing rain.

Shadow - all good advice from Karen and Shroomie -- hang in there -- this semester is almost done :D

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Shadowicewolf - I teach in college, and as a teacher I encourage you to remember that you will not think of finals on your death bed. So study and do well, but don't let it suck your life.

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Technically i'ma.... 4th year.... I think part of this is stress relating to that (which generally wouldn't bother me), loosing one of my favorite professors, being sick, not sleeping, etc.

I have not been getting enough sleep and its been throwing off my routine. So hopefully with this break, i'll be back to normal :)

Thanks guys.

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Shadowicewolf - I teach in college, and as a teacher I encourage you to remember that you will not think of finals on your death bed. So study and do well, but don't let it suck your life.

Great advice, Chaser! I teach, as well -- adults. They stress themselves out, I am sure, more than kids do.....I'm constantly telling them simply to do their best. You'l be just fine, Wolfie! ;)

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Are We about to have a count turn over here. ???

Rained all night and all day in Southern in Southern California

Huge water balloon leaks in the back of the house in the family room and kitchen

Know what our Christmas present will be this year

I know that this is the sillie thread so I'm counting on some of your wonderful humor :)

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Back from root canal. Keep in mind, I am a black belt in karate - undefeated in competitive fighting. I have had a freaking metal stake jammed in my side, and have hit an oak tree at 50+ miles per hour.

NONE OF THAT COMES CLOSE! Worst freaking pain ever! I literally jumped out of the chair a few times. :

BUT it is behind me now... I can recover now right? Just need to get a crown... dunno what that involves, but cant be worse... right?

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Please tell me you had them give ya extra numb shots. I've been known to wear out between them. Did it before on a cavity fix. No fun. Got praised as a tough one though.

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Please tell me you had them give ya extra numb shots. I've been known to wear out between them. Did it before on a cavity fix. No fun. Got praised as a tough one though.

Oh they tried their best, tried three or four different kinds of numbing agents/tricks - just I am highly resistant to the stuff.

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Back from root canal. Keep in mind, I am a black belt in karate - undefeated in competitive fighting. I have had a freaking metal stake jammed in my side, and have hit an oak tree at 50+ miles per hour.

NONE OF THAT COMES CLOSE! Worst freaking pain ever! I literally jumped out of the chair a few times. :

BUT it is behind me now... I can recover now right? Just need to get a crown... dunno what that involves, but cant be worse... right?

Easy-peasy, little round thing they slip on your noggin. You may have to kneel down tho. Did ptaumn abdicate or sumfin? :)

Ifn it was a dental crown, they just take a mold and make it in the lab with all the other cyborg parts. Glue it on and shine a bright light in your mouth to set the glue and fry your tonsils. The glue tastes really good too! Try not to swallow it all before they zap it with the light.

If the anti-know stuff don't wurk you can always apply your own anti-aesthetic at home before going to the butcher, I mean dentist. Best to have someone else drive tho.

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Aw V-- so sorry it hurt so much :(. Take it extra easy tonight.

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Crowns are easy (had similar things in my orthodontic years, full on cap/crown thing at one point).

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Vincent

So sorry for the root canal pain the crown isn't bad

Nobody has any humorous comments for that roof! flooding huh

Love to hear from somebody out there in sillie land

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Back from root canal.

BUT it is behind me now...

They put your tooth on your behind? Is that the part that hurts the worse - like you're sitting on a hard pea every time?

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Back from root canal. Keep in mind, I am a black belt in karate - undefeated in competitive fighting. I have had a freaking metal stake jammed in my side, and have hit an oak tree at 50+ miles per hour.

NONE OF THAT COMES CLOSE! Worst freaking pain ever! I literally jumped out of the chair a few times. :

BUT it is behind me now... I can recover now right? Just need to get a crown... dunno what that involves, but cant be worse... right?

The hard part is over. The crowning is painless. Been there more than once. A crown sculptured to match the drilled tooth is made and attached to the tooth using a strong adhesive. No drilling. No pain. :)

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I'm here, after being distracted for a while. It has been a busy and stressful couple of weeks. Some of you know from Facebook, and my moderator colleagues know as well.

My father-in-law was taken to hospital December 4 because he was suddenly vomiting blood. His health had been in a slow, steady decline for a while. On Saturday evening, he passed away peacefully in his sleep. We got a phone call just before midnight.

The funeral was this afternoon. The weather was cool, but the sun shone brightly. The service was held in a small church built in the nineteenth century. Bob planned the service himself a few years ago. In his instructions, he said: "Lots of music, nothing sad. I have done very well. I could have been buried in Holland, 1945 along with 3,000 other Canadians."

In attendance were Bob's widow, son and three daughters, two grandsons and four granddaughters, two great granddaughters, two sons-in-law and his daughter-in-law. Many other family and friends joined us.

May God continue to bless you, Bob.

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Sorry for your loss Peter. :(

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Peter...thanks for sharing your day...sounds like Jackie comes from a fine line indeed. My thoughts are with you both.....except for the little corner of my mind having a snow dance since Shadow mentioned she gets some fluffy white stuff tonight :)

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My condolences to you, Peter.

Shadowicewolf, how are you doing now with the end of the semester?

(I have a truckload of essays to grade, and I am thinking of giving a bunch of default A+ as a sign of protest. Except that maybe then I would be fired.)

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I'm doing better.... now there's the wait for the grades :blink:

Good luck with those essays. :)

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Thanks! The first two were good, one was actually awesome. I will miss this seminar - I had a wonderful group. Have been receiving grateful and heartfelt emails for the past couple of days, which is pretty moving. Yeah, I am a softie.

Personally, I think there should be no grades.

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Peter

Sorry to hear about your loss. I am glad Bob's funeral went well, it makes such a difference when you know they would have been happy with it.

Take it easy x

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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