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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Funny Pages - Tickle Me Elbow - The Sequel
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2,226 posts in this topic

You have learned a great deal indeed, Loey. And I am the one who is honoured. Our health is so precious - may yours be fully restored.

{{{{{hugs}}}}

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Loweeee! great news about the party -- was wondering how it all went. So glad that you had something special to celebrate -- NOTHING is more celebratory than returning health! :):)

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Loves to you Loey!!!!!

You peeps wif kids is nutz! Didn't none a'yas read the instruction manual BEFORE assembly? Crazy hard work involved. :ph34r: :ph34r:

Ya... Wish I would have seen that manual... Although the first one was the PERFECT baby and PERFECT toddler and I fooled myself into thinking that it was because I was the PERFECT mother.... The the 2nd one was born and I was knocked off my pedestal REALLLLLY quickly :lol: :lol: :lol:

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Thanks guys :wub:

Some pretty drastic changes in my life over the last 2 months (marriage breakup...moving out......distinctly UNpsilly stressy stuph etc, etc)

SNAAAAPPP!!!!!!

I'm SO cold!!.....not cut out for this wevah!

Lots of extra hugs, kisses and prayers, dear Gnick.

Love,Loey :wub: :wub: :wub:

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I have to admit I am intrigued by the prayer shawl. I bought a clearance Prayer Shawl book, because the patterns looked soo easy. I did not expect the personal stories would be so interesting. The story on page 59 caught my interest. A wounded soldier at Walter Reed was asked what he had wrapped around him. He said he didn't know, someone just gave it to him. He likes it because it keeps him warm. He then added a confession to the monk, he hears praying voices when he wears it.

Even if I only make 1 a year, I think it will be worth it.

I was just given a prayer shawl made by my SIL's mom and her church ladies. I always feel warm (like a hug) and surrounded by love and prayers when I wear it. What's the name of the book you bought?

Love,

Loey

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... Although the first one was the PERFECT baby and PERFECT toddler and I fooled myself into thinking that it was because I was the PERFECT mother....

yep. heard that one described as a 'sucker baby'.....'cause you get suckered in to having another one. :P

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The Prayer Shawl Companion, Janet Bristow & Victoria A. Cole- Galo list price US$19.95 but I found it on clearance at JoAnn's for $5.97

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yep. heard that one described as a 'sucker baby'.....'cause you get suckered in to having another one. :P

It's totally true!!

Now I thought I was having a bad day until I got a voicemail from my girlfriend asking how to get raw eggs out of the carpet... I asked what happened. She went to change her clothes and brush her teeth to take her 3 and 4 year olds to gymnastics. In that 5 minutes, they got a dozen eggs out of the kitchen fridge AND a dozen out of the garage fridge and had an egg fight.. IN HER LIVING ROOM!!! I'm sooooo glad I'm not her right now! Poor thing!! :huh::lol: :lol: :lol:

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Hmmm. My nice new white chairs gained some interesting new blue scribbles this morning. Grrr.

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OMG. .. .... . .Warpie.....you have little kids, and WHITE pieces of furniture??... . . . .. :blink::unsure:

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:lol: :lol: :lol:

Butch jumped to the top of the door and played 'balance beam'....

Since I've learned to bury the plastic baggies at the bottom of the trash I've had no more awakenings to food juice spread all over my bed, along with bits of chewed plastic.

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OMG. .. .... . .Warpie.....you have little kids, and WHITE pieces of furniture??... . . . .. :blink::unsure:

Some folks defy death; others defy nature :P

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OMG. .. .... . .Warpie.....you have little kids, and WHITE pieces of furniture??... . . . .. :blink::unsure:

well....not any more...

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:lol:

OMG. .. .... . .Warpie.....you have little kids, and WHITE pieces of furniture??... . . . .. :blink::unsure:

well....not any more...

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Ah, but these are at least scrubable. Most of it came off with oven cleaner. Given how much I wipe off on a daily basis I dread to think what the real state of our old chairs was.

The sofas are shades of brown (plus yogurt). One day I walked in to find that in the 2 minutes I was in the kitchen my daughter had covered her arms, legs and the sofa in yogurt.

You gotta love em :)

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Let's face it.....white furniture just plain don't work for ANYone. A person with cats, with dogs......with toddlers, teenagers.....with visiting elderly parents whose hands that grip the coffe mugs or wine glasses are shaky....

Yup, everyone...... :rolleyes:

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Shows up the gluteny crumbs of said small children a treat though, no one gets away with saying they didn't know the table needed wiping...

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OMG. .. .... . .Warpie.....you have little kids, and WHITE pieces of furniture??... . . . .. :blink::unsure:

Sure I have white PIECES of furniture, and brown pieces,and well all kinds of pieces! ;)

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Why is it i can eat apples that are: green, just right, and cooked with no problems. But once it gets to the "meely" stage... its a gamble <_<

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The Prayer Shawl Companion, Janet Bristow & Victoria A. Cole- Galo list price US$19.95 but I found it on clearance at JoAnn's for $5.97

Thanks, I also found a book called Prayer Shawl Ponderings. It doesn't have patterns (I don't knit or crochet) but it has a place for you to write your own ponderings after each chapter. Will let you know how it is when it arrives.

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Let's face it.....white furniture just plain don't work for ANYone. A person with cats, with dogs......with toddlers, teenagers.....with visiting elderly parents whose hands that grip the coffe mugs or wine glasses are shaky....

Yup, everyone...... :rolleyes:

I was just going to call out Superman & I. We could NOT ever have white furniture. We're big at eating in the family room when Tony's not home or we don't have company (and sometimes we entertain in the family room) and I'm a pretty big slob for a small person :lol:

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Loey,

This book included personal stories about working for the mission, giving shawls in person, and the personal pattern contribution. I'm thinking a poncho pattern would be a nice idea too.

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Loey,

This book included personal stories about working for the mission, giving shawls in person, and the personal pattern contribution. I'm thinking a poncho pattern would be a nice idea too.

Here are some links to sites with prayer shawl patterns and the firs two have prayer ponchos. I find I'll wear a T-shirt some days just so I can wrap myself i it and feel all of the love put into it. I have known my SIL and her family since I was 16(I'm 61 now) and her mother is like a mother to me. The fact that she and her church ladies (not to be confused with SNL skit) made it for me and I know that my SIL's mom is very sick herself makes it even more special. Instead of making it in purple or turquoise (my favorite colors) she made it to match my family room. I thought that was very cool. Anyway, ere are the links. Hope they're helpful. Enjoy

Healing Hugs,

Loey

http://m.bevscountry...yer-shawls.html

http://www.yarn-methods.com/crochet-shawl-pattern.html

http://pinterest.com/colleenclue/shawls-prayer-shawls-ponchos-shrugs/

http://www.thefind.com/crafts/info-prayer-shawl-crochet-pattern

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Just a shout out to all our loved ones in the forum out in the Tornado areas. Sending lots of prayers and positive energy your way. STAY SAFE!!!!!!!

Much Love,

Loey

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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