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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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TriticusToxicum

The Funny Pages - Tickle Me Elbow - The Sequel

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I hope all of you in the path of the latest storm (is this one Q and when the H!@# did they start naming snowstorms?). I'll keep you all in my prayers. Right now it looks like we're just getting rain and snow but I don't trust Accuweather as much as the Weather Channel. We could be in for it. I kept the number of the snowplow guy in case of another Nemo. Superman is great at shoveling but when it's the size of Nemo it's just too much.

 

DH went grocery shopping for me and bought all the ingredients to make paella (he even read all labels since what I originally put on shopping list had soy in it - my worst trigger). We're getting close with a couple up the street and we've been planning a trip to Newport with them that keeps getting put off because of snow and cold temps. We went to their house last Sunday and I invited them over for paella this Sunday. Haven't made it in years - fingers crossed. It is so nice to have a couple we really relate to. They were original Pfizer transfers from Michigan before they got laid off so there's a real connection.

 

STAY SAFE!!!!!

 

Love,

Loey

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Its nice to have a snow day. This is only the second time in all of my years here. It takes a lot for my school to cancel :) But right now the official snow count is 5-8 inches out there. When i watched the news earlier, they said it felt like 0. And then the wind :blink: I have no doubt there are snow dunes moving about.

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You go Vincent!!! We've been having trouble with our washer and DH has to literally pull it out and take it apart. The most recent time it was not letting us unlock the door and the clothes were still soaking in suds. The first time we had a repairman come and it cost $160 for him to show DH where to go to fix it. This time he was determined to fix it himself. After an hour he discovered a color catcher sheet was clogging the hoses. Hopefully your blow torch fixed the problem. I pheel for you.

 

Hugs,

Loey

So far so good! No leaks! Fire work good!

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So far so good! No leaks! Fire work good!

Whew!!  Am I off the hook now?  Can I get back down onto the floor?

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So far so good! No leaks! Fire work good!

Yippee!!  Fire did work good :D

 

Whew!!  Am I off the hook now?  Can I get back down onto the floor?

:lol:  :lol: :lol:   Come on down, Shroom :wub:  

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Yippee!!  Fire did work good :D

 

:lol:  :lol: :lol:   Come on down, Shroom :wub:  

Thanks!! (adjusts clothing). 

 

Just had to share this from Joan Rivers (read it while I was on the wall :D ) :

 

 

 

When you're an old lady, it's hard to wear a short skirt if your nipples are going to show underneath it.

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When you're an old lady, it's hard to wear a short skirt if your nipples are going to show underneath it.

Hee!! Gotta love ole Joan:)

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Guess I should think about selling my mini's at our tag sale this spring  :lol:  :lol:  :lol:

I hold onto everything since it's bound to become fashionable in another decade or two

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Serves me right.... Been feeling good, got most of my problem food groups back, don't seem to be as sensitive to cc...... you know what's coming... lol

Had to stop at CVS to get a card and saw the Snickers beckoning to me in the check out line. I figured, what the heck-- ..... 2 hours later the cramps started. Right on schedule. What an idiot.

lol!! It was good, though.

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Serves me right.... Been feeling good, got most of my problem food groups back, don't seem to be as sensitive to cc...... you know what's coming... lol

Had to stop at CVS to get a card and saw the Snickers beckoning to me in the check out line. I figured, what the heck-- ..... 2 hours later the cramps started. Right on schedule. What an idiot.

lol!! It was good, though.

Oh! Bummer! I guess it wasn't time to add the Snickers food group back. :(

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Guess I should think about selling my mini's at our tag sale this spring :lol::lol::lol:

I hold onto everything since it's bound to become fashionable in another decade or two

I hold on to clothes too. I am determined this spring to go through and donate what I realistically don't wear anymore -- I don't have as much closet space as I used to.

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Whew!!  Am I off the hook now?  Can I get back down onto the floor?

I dunno you are only 930 posts from another event....

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I dunno you are only 930 posts from another event....

Well, now, maybe y'all better be super nice to me betwixt now and then, ifyouknowhwatImean??  Since I already got off the hook before you posted :D

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There have been some performance issues of late

 

I'm sorry. Isn't there a pill for that?

 

I can understand why you'd be whispering

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Serves me right.... Been feeling good, got most of my problem food groups back, don't seem to be as sensitive to cc...... you know what's coming... lol

Had to stop at CVS to get a card and saw the Snickers beckoning to me in the check out line. I figured, what the heck-- ..... 2 hours later the cramps started. Right on schedule. What an idiot.

lol!! It was good, though.

 

You are not an idiot. I picked up some homeopathic pills to deal with the UTI pain (ladies {and gentlemen} you know the side effects of antibiotics on females). It said it contained trace elements of soy protein (my worst trigger is soy) and I took it anyway. Wound up sending DH to CVS to get me Benadryl after he was dressed for bed. My lip had started to swell. So, if anyone's an idiot it's me! At least Snickers taste good. BTW, I hope your cramps are gone and I'm glad that that you enjoyed the Snickers. We all sometimes have to feed a craving. 

 

Love & Healing hugz,

Loey

 

P.S. I also lifted the laundry basket when it was overflowing  :blink: (a big NO-NO for my back) and pulled it out a little. I wanted to at least start folding laundry before Superman got home from CVS. Now I'm headed back to the chiropractor. I was ready to go to every two weeks and now I'm seeing her two days in a row. I know she'll straighten me out (no pun intended).  :lol:

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Ouch! Low!! Hope the chiro fixes ya up:). Ugh, soy in the Homeopathics.. I use a few things by Boiron-- the only carriers I've seen with them are lactose and fructose.

The only symptom I got from the Snickers was cramps. A few hours worth, but that was about it. Amazing!

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I'm sorry. Isn't there a pill for that?

 

I can understand why you'd be whispering

 

:lol:  :lol:

 

Hey, nowadays we're all encouraging men to not only keep from whispering these admissions of .....issues......but to be screaming them from the rooftops.... . . . ....nothing to be ashamed of! And there is help.. . ....!

 

 

:P

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Alright dear psillies - my first attempt at multi quoting!  :unsure:

 

Ouch! Low!! Hope the chiro fixes ya up:). Ugh, soy in the Homeopathics.. I use a few things by Boiron-- the only carriers I've seen with them are lactose and fructose.

The only symptom I got from the Snickers was cramps. A few hours worth, but that was about it. Amazing!

 

Glad it was just cramps although those ain't no picnic. Hope you've recovered already. The chiro did a great job and said I caught it in time. 

 

When in doubt, always have benadryl on hand.

 

:D  that's something I always had in the house when DS lived here.

 

:lol:  :lol:

 

Hey, nowadays we're all encouraging men to not only keep from whispering these admissions of .....issues......but to be screaming them from the rooftops.... . . . ....nothing to be ashamed of! And there is help.. . ....!

 

 

:P

 

We do have the best men on this forum. I'm pretty lucky on the home front as well. OK, let's see how my first multi-quote experience turned out.

I'll touch base later. Superman is ready to taste my lentil stew.

 

Love & Hugz,

Loey

 

P.S. I finally crossed into the thousands and I didn't even notice   :blink:

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Alright dear psillies - my first attempt at multi quoting!  :unsure:

 

 

Glad it was just cramps although those ain't no picnic. Hope you've recovered already. The chiro did a great job and said I caught it in time. 

 

 

:D  that's something I always had in the house when DS lived here.

 

 

We do have the best men on this forum. I'm pretty lucky on the home front as well. OK, let's see how my first multi-quote experience turned out.

I'll touch base later. Superman is ready to taste my lentil stew.

 

Love & Hugz,

Loey

 

P.S. I finally crossed into the thousands and I didn't even notice   :blink:

 

Any of the "best men" of this forum still single? :D

 

Speaking of which - one of my smartest freshmen proposed, was accepted, and is now getting married: darn them kids, they always make me feel warm and fuzzy! Feeling old in the age of Facebook.

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Timothy's basketball team is going to the championship!!!!

Yea!!!!!!!!! Team Tim all the way!!!!!!!!!

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Fantastic, Vyghncent!  Go, Team Tim, GO!!   smileys-cheerleading-151859.gif

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    • A mistake that many of, myself included, made! Don't feel bad about it, feel good that you've at least identified a possible cause. I was faced with a similar choice a few years ago and opted to go back onto gluten for a 'challenge' to see if I had celiac. I kept a food diary during this time and tracked the reappearance of symptoms, some gastro intestinal but primarily neurological. I tested negative for celiac much to my surprise, but the challenge confirmed gluten as an issue, so NCGS is best diagnosis I'm likely to get for now at least.  Your question re fructans is a good one and not easy to answer. The fact you've asked it suggests you've done some research and are aware of the unclear science once celiac is excluded. For what its worth I think that what may happen is that some people who get IBS relief from a gluten free diet are indeed correct to avoid the foods, but incorrect in identifying gluten as the cause.  They may actually be reacting to fructans, polyols, or other parts of the wheat,carbs rather than proteins.  However there are also well documented cases where gluten itself is the culprit, some more info on this here and I believe this is where I sit.   You need to decide what level of uncertainty you can live with. Medical assistance will depend on reintroducing gluten. If you do it with a food diary you may learn more about your reactions, maybe even be able to customise your diet to your own body. Most importantly, you would properly exclude celiac as a cause, which is important because its a serious condition and if you do have it, far better to know for both you and your family who may also want to be tested.  Finally, I collected some links and info here some time ago, it may be useful.  Best of luck Matt
    • I wish I had been diagnosed at 19. In retrospect, I was having symptoms as a 16 year old, and didn't get diagnosed until I was almost 30. That delay created a lot of havoc, and other problems that are now permanent (an aggressive case of rheumatoid arthritis and violent reactions to contamination). You want to be non-compliant? Your choice... but the symptoms will most likely get worse... and you could end up like several other non-compliant celiacs I knew... none of the ones who decided to be non-compliant (as opposed to those of us who occasionally get poisoned) lived more than 10 years past diagnosis, and their deaths were ugly (cancer was bad, pernicious anemia and complete malabsorption were even worse).
    • From the Chicago Celiac Disease Center which is one of the premier celiac disease research & treatment centers in the world: Are you scheduled for a biopsy? Are you eating gluten? Any changes in your diet can affect the accuracy of your biopsy results. It is necessary for you to be eating gluten every day for at least 4-8 weeks before the procedure. If you are scheduled for a biopsy and are not eating gluten, talk to your doctor about what is necessary to obtain accurate results. If you have
      a biopsy and have eaten gluten only a short time before the test, you and your physician will not know if a negative test result is accurate or due to your diet. Here's a link: http://www.cureceliacdisease.org/wp-content/uploads/341_CDCFactSheets5_Diagnosis.pdf Also, you might want to read this: http://www.cureceliacdisease.org/faq/can-an-allergist-help-with-celiac-disease-or-does-a-better-specialist-exist/  
    • My panel was the same as yours........all tests positive by large numbers so you can consider yourself a Celiac.  Are you very symptomatic? I will add that I did not eat Whole Foods exclusively when healing.  I needed to gain weight badly so ate gluten-free bread and a few other things that seemed to agree with me.  Never had a problem once I went gluten free, except to discover that I had a problem with dairy also. But I healed well and all is good.  You'll be fine now that you know what the problem is.  Good luck!  
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