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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Oddball?
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Anna_Chira    0

Hey everyone, I'm new. Quick background: 23 years old, female, newly diagnosed celiac (October of this year), been suffering off and on since puberty hit but symptoms have gotten considerably worse in the past year. I was originally diagnosed with IBS but after keeping a food journal I found that my worst symptoms (digestive issues) were connected to enriched wheat flour. So I went to the doctor and had a celiac panel done.

I kind of feel like an oddball because there are certain gluten foods that I can eat and the worst symptoms I get are fatigue and maybe a little bloating, but there are other foods that send me into 10-scale pain. I'm trying to be as gluten-free as possible, but it's really hard to let go of some foods, and even harder to eat out and not be cross-contaminated. I was prescribed Bentyl for intestinal spasms when my doctor thought I had IBS but it doesn't help because my episodes are relatively short (1.5-2 hours). Are there any medications for celiac-related pain or is the only option to go completely gluten-free?

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rosetapper23    236

i can say it once, but others will undoubtedly echo it several times: the ONLY option is to go completely gluten free. I know that it's difficult at first to adapt to a new diet, but it is absolutely essential that you understand that you are doing grave damage to your body when you eat even the smallest amount of gluten. You're still young, so you may have damaged your intestinal lining very little; however, if you continue to eat gluten, you could end up with some horrendous disabilities. For one thing, you could develop other auto-immune diseases such as Hashimoto's Thyroiditis, lupus, gluten ataxia, Sjogren's, etc, or develop neurological difficulties such as migraines, epilepsy, depression, etc. Having celiac means you do NOT have the option to eat or not eat gluten--you must avoid it completely. That said, you will probably not be much older when treatments become available that will allow you to eat gluten for short periods of time. There is also a vaccine that is expected to come on the market within the next five years. In the interim, please take good care of your health and adopt a strict, gluten-free diet. Sometimes when you damage a part of your small intestine, it does NOT repair itself....so you are left with a lifelong disability.

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GottaSki    459

but symptoms have gotten considerably worse in the past year

there are certain gluten foods that I can eat and the worst symptoms I get are fatigue and maybe a little bloating

Exactly what Rosetapper said. There is no safe amount of gluten for someone with Celiac Disease.

I've selected two key thoughts from your post. Your symptoms have gotten worse as time passes.

The symptoms you list as minor will get worse as well until the fatigue is debilitating and the bloating is severe -- it is possible you will develop even more symptoms if you do not remove gluten. The good news is repairing your body and living a healthful life is within your reach.

None of this is said to scare you - it is what it is. Celiac Disease gets worse with any amount of gluten. Even if you are lucky enough to not have symptoms worsen, your small intestine is being damaged each time you eat gluten.

Welcome to the forum - feel free to ask lots of questions and read as much as you can - it really does help a very difficult transition happen a bit more quickly. No one will tell you it is easy, but many will tell you it is worth it.

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    • This is exactly what I'm wondering also.
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