• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Am I Playing With Fire?
0

4 posts in this topic

I have been off gluten since 07 and at first was super strict and it made me absolutely paranoid and I hated life, so I decided to toss caution in the wind and go back to eating out and my life has been great again. I am still SUPER careful when I dine at restaurants but I just dont obsess the way I used to. Thing is, can I still be harming myself? i never had a positive celiac diagnosis and my blood tests and biopsies came back negative, but my stool anti gliadin tests were positive and I carry 1 of the 2 celiac genes. My mother is negative for both celiac and the genes but her stool tests were positive and she seems to do fine on gluten, even though I think she would benefit from eliminating it from her diet but shes stubborn.

After all these years I still dont know what I really have but I do know that I do ok most of the time when eating out. I often dont even inform my waiter of my sensitivity and just order and eat carefully and am fine

So the other day at Thanksgiving I accidentally ate gravy that had flour in it. I shouldve asked the host but it looked so liquidy that i didnt think there could possibly be any flour in there..well i was wrong. Minutes after eating I developed major bloating and was uncomfortable the rest of the night, however the next day I felt completely fine. So obviously my body still doesnt like gluten but my question is could this be celiac or just gluten intolerance? also since my body has not had gluten in a long time could this reaction have been my GI going into "defense mode"? While I felt very bloated I wasnt really very gassy...just kinda felt like my GI seized up and was being squeezed.

So i guess my question is should i just keep being careful or do i really need to be super strict again?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


eh, just avoid it imo. I'm as strict as i can be, but for part of the year i live with gluten eaters... there are times when i wonder if i accidently cc'd myself. I don't have major symptomes like some of the others (the big one is "C" and axiety), so sometimes its hard to tell.

0

Share this post


Link to post
Share on other sites

I have been off gluten since 07 and at first was super strict and it made me absolutely paranoid and I hated life, so I decided to toss caution in the wind and go back to eating out and my life has been great again. I am still SUPER careful when I dine at restaurants but I just dont obsess the way I used to. Thing is, can I still be harming myself? i never had a positive celiac diagnosis and my blood tests and biopsies came back negative, but my stool anti gliadin tests were positive and I carry 1 of the 2 celiac genes. My mother is negative for both celiac and the genes but her stool tests were positive and she seems to do fine on gluten, even though I think she would benefit from eliminating it from her diet but shes stubborn.

After all these years I still dont know what I really have but I do know that I do ok most of the time when eating out. I often dont even inform my waiter of my sensitivity and just order and eat carefully and am fine

So the other day at Thanksgiving I accidentally ate gravy that had flour in it. I shouldve asked the host but it looked so liquidy that i didnt think there could possibly be any flour in there..well i was wrong. Minutes after eating I developed major bloating and was uncomfortable the rest of the night, however the next day I felt completely fine. So obviously my body still doesnt like gluten but my question is could this be celiac or just gluten intolerance? also since my body has not had gluten in a long time could this reaction have been my GI going into "defense mode"? While I felt very bloated I wasnt really very gassy...just kinda felt like my GI seized up and was being squeezed.

So i guess my question is should i just keep being careful or do i really need to be super strict again?

Whether you call it gluten intolerance or celiac disease (evidenced by flattened villi), obviously gluten still damages your body. I also was diagnosed only by stool antigliadin and celiac gene test. However I figured out that gluten causes me pain and bloating, I will still avoid it as best I can. Same with my 6 other delayed reaction food allergies. I occasionally make mistakes ... I trust a product which was previously safe (and then changed their ingredients to add my allergen) or I eat a buffet dish which was adjacent to a dish with my allergens (and I get contaminated from my 'safe' dish). I always get obvious reactions, even with small mistakes. So I continue to avoid gluten (and my other 6 allergens). I don't need to impress anyone by eating foods that cause painful symptoms. If anyone is offended by my carefulness, that's their problem. Everybody avoids some foods, whether for medical restrictions, caloric value or just plain personal taste preference. Make your health a priority no matter what. It's difficult to be sociable when you feel crappy.

0

Share this post


Link to post
Share on other sites

Hi Jason,

You may not have seen this new research that was done this year. It confirms the existence of a non-celiac wheat reaction in some people. They seem to have identified 2 separate conditions in fact. One with celiac like symptoms and another with allergy like symptoms. Right now there is no informaton on the long term effects of these conditions.

Non-celiac wheat sensitivity article

http://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,792
    • Total Posts
      932,467
  • Member Statistics

    • Total Members
      64,273
    • Most Online
      3,093

    Newest Member
    midwayliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • Reality check in the past few weeks, looks like I got glutened at what should be a "safe" restaurant for gluten-free and gone right back to the beginning again recovery-wise Now too scared to eat anywhere and turning down social opportunities because of the food issues, what a miserable way to live this is.
    • Your issues is probably with the carbs then. there is a alternative. best pricing is miracle noodle. For Konjac rice substitute. Konjac flour works with some people others it does not. https://miraclenoodle.com/collections/miracle-noodle-rice-products There is a trick to cooking it but they make no carb noodles, and rice. I use the rice to make all kinds of rice like dishes like my mothers mexican fried rice etc. It does have a tad off texture and flavor but comes close. If your looking for no carb breads Julians Bakery makes some pretty decent breads but you HAVE to toast them to use them. I just found them a month ago....First time eating a bread in 2 year, and first time in as long as I can recall eating one that did not make me feel bloated and fat. No carbs, no sugars, no yeast, no dairy, no soy, and very low sodium...... Been eating french toast, vegan cheesy bread, bread with almond butter and sugar free jam I have honestly been in food heaven since I found it. BTW some celiacs can not tolerate any grains very rare but it happens.    OH and on what I have is really bad Ulcerative Colitis, so I have a bunch of other trigger foods that cause inflammation, bleeding, distention, constipation, gas, bloating etc. Carbs/sugars is a huge one for me fructose, glucose, sucrose.
    • They rotate growing rice and oats in the same crop. I unfortunately am intolerant to oats.  I have Dysbiosis according to a stool test, which is why I am quite sensitive to gluten among other foods.  May I ask what AI you have that makes you sensitive to carbs? I have been in and out of the doctor since November 2016 with chronic pain.  Trying to figure out what is going on with my gut, it's terrifying. I tried Dynasty jasmine rice from Thailand the other day which was recommended in 2009 by someone on here and a few hours later had the worst low blood sugar attack I'd ever had in my life. I am severely underweight due to the pain and I think this happened because I ate a bit too much (I LOVE rice) upon my first introduction back into my diet.  Even so I reacted just as I do when I ingest gluten (intense anxiety/hard to breathe/fast heart beat/constipation/intense pain under my ribs) So I don't think Dynasty is a safe brand, not for me at least. I only react this way to gluten. My other food sensitivities, the symptoms pop up around 24 hours later and are completely different. 
    • Thanks so much for the information. I tried Dynasty jasmine rice which was a recommendation from a sensitive individual on here. The post I believe was from 2009 so there's plenty of time for practices to have changed. I only ask this here again for updated information as I tried the Dynasty brand and got sick. I do not have Celiac disease (according to an Endoscopy) however, I have been gluten-free for 2 years and only ate a cookie or a donut maybe a few times a month for a year and a half before I was tested. I actually like going without gluten as I get less low blood sugar attacks and rarely ever get migraines. Not to mention, before I had the Endoscopy I was fasting for 2 days with no food or drink while I received other tests while I was in the hospital. I also got a colonoscopy at the same time so I had to clear my system out completely. My doctor believes I have a non-Celiac gluten sensitivity due to my symptoms after ingesting gluten. I was diagnosed with Dysbiosis so it could be my body lacks the correct bacteria to break down gluten. I have several other food intolerances including dairy and oats which many facilities process along with rice. 
  • Upcoming Events