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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Wish Us Luck (Nothing Too Serious)
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This may seem silly but I'm feeling very anxious because we're going to a close friend's last minute birthday celebration. It will be the first time my almost 3 year old confronts eating different cake from her friends. I had time to run over to the store and get a ready made gluten-free cupcake. And luckily I have frosting left over from a cake I made for Thanksgiving. Hopefully she won't mind that her cupcake looks different. I tried mentioning beforehand but it backfired, she told me she wanted a cupcake just like the birthday boy's. I'm hoping once she's in the moment she'll be happy enough w hers.

I'm sort for rambling. Just felt like the only people who might be able to relate to my anxiety would be you all. I know this will be the first of many birthday parties. And I can't help but feel sad for my daughter. But I will try to stay positive for her sake!

Thanks for listening...

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Good luck. Hope the cupcake is well accepted. Tell her how special it is, everyone has to eat those other ones but she gets the special opportunity of eating this yummy one. :)

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Good luck, this is the part I worry about as well, hugs

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We do this for my son who is nut rather than gluten-free (so far, another story) and we just make sure it is something he thinks of as a treat (frosting, candy pieces etc). Been doing it a couple of years and always been fine, with an occasional sad look.

I also take a few chocolate and candy treats in my purse to swap if there are prizes etc.

My friend whose son is celiac packs him a whole little cardboard party box (sort you might get a children's meal) and that works for them.

It is normal to be concerned. I still feel a bit sad sometimes, but actually he is fine :)

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It will all be fine and it does get easier.

I did the same for my son (5 years old at diagnosis) . . . including making whatever they were serving (pizza, hot dogs, etc.) in advance and bringing it. We kept a pack of 4 frozen gluten-free cupcakes from Whole Foods in our freezer to use for parties. After a year, my son finally confessed that he really doesn't like cupcakes (or cake in general) and what he would really love at a party is a snickers bar! Well that made it a whole lot easier and he is happier . . .

Maybe take your daughter shopping for treats. If she picks them out, maybe they will be more special.

Cara

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and what he would really love at a party is a snickers bar! Well

Till you are at a party with a nut allergic kid :)

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Thanks for all the replies, everyone! Happy to report that yesterday went very well. But it probably really helped that all the other kids got mini cupcakes and she got a regular size one -- so if anything, she lucked out. :) My friend was very thoughtful and used that big cupcake along with two smaller ones as the cake that the birthday boy blew out so that my daughter felt like her cake was just like the others. Oh, and I had packed some pink sprinkles that my daughter loves and she really enjoyed adding that to her cupcake.

We have one more birthday party to go this weekend and two more in mid-Dec. And then all those holiday parties. Hopefully I'll feel better once we've conquered the Christmas season.

I really like the party box idea! I could put her sprinkles jar in it and a few other things to distract her when others are eating their cake. Thanks!

PS: I know that in the grand scheme of things, her not eating the same cake is a minor issue. But it still annoyed me when my friends told me to relax and pointed out that she was fine. It's easy to say when it's not your own kid who is affected!

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PS: I know that in the grand scheme of things, her not eating the same cake is a minor issue. But it still annoyed me when my friends told me to relax and pointed out that she was fine. It's easy to say when it's not your own kid who is affected!

Yeahhhhh!! That's great.

And people will continue to say stupid things for like....ever I believe ;) I had my sister tell me I was being a helicopter parent when we were at her house. You know, the house where the kids eat everywhere? Things with gluten in them PLUS things my kid has life threatening allergies to. Dumb. Really dumb things. And you will be shocked at people who you would expect to "get it" soooooo don't!

Also, it's fun when the "different" thing is bigger and better than the others ;) Makes it a "See, it's not so bad to be different!" kind of thing! lol

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Glad it went well :)

Now you can enjoy the next few parties too...

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:) thinking of you!

...and I so appreciate StephanieL's good sense of humor regarding the Snicker's bar!

Yes, and I was told I was "going off the deep end" by a girlfriend when I was trying to avoid cross contamination...I was so upset for a week! Sometimes I get blindsided by a comment like that, especially when it's so unexpected. Just know you are in good company with all of us here!

Keep up the great job!

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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