• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Testing On Italian Children
0

11 posts in this topic

I keep finding references to how in Italy screening for celiac disease is done on all school-children, which certainly wasn't the case when I was a child. Can anyone give me an actual source for this information? I have been searching the internet to no avail. Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hard to find the source, isn't it. People keep stating it as fact, like here:

"In Italy, where celiac disease is common, all children are screened by age 6 so that even asymptomatic disease is caught early. In addition, Italians of any age are tested for the disease as soon as they show symptoms. As a result of this vigilance, the time between when symptoms begin and the disease is diagnosed is usually only 2 to 3 weeks. In the United States, the time between the first symptoms and diagnosis averages about 10 years."

http://www.keepkidshealthy.com/welcome/conditions/celiac_disease.html

but I guess if you speak Italian and search in .co.it you might be able to come up with something.

0

Share this post


Link to post
Share on other sites

Yeah, that's what I've been doing, but couldn't find a reference, just a study that may have been misinterpreted to mean that. It is true that it's like "uh, you have celiac," and not "OMG you have CELIAC!!!" because it is considered common AND a big deal at the same time.

They are having more children diagnosed, but that is spoken of with great concern, meaning that the creeping in of wheat abuse is causing people to develop the disease at an earlier age.

I think I will investigate when I am back, and report back to the boards? It is TRUE that celiacs get a stipend for gluten-free goods, though: I have read the government's decree.

0

Share this post


Link to post
Share on other sites

In the UK diagnosed celiacs get a certain amount of gluten-free food on prescription. Though some areas are cutting it down or out. Austerity and all that.

I am really interested in the position in Italy with regard to testing children, not least because I have just had a letter. From my GI to advise that my children should not be tested unless they show symptoms (er,ever heard of asymptomatic celiac??). Any evidence would be helpful.

0

Share this post


Link to post
Share on other sites

CMW, I know that there is a kind of check that Italian celiacs get, and if you shop online on a gluten-free food website items will be marked as "mutuanile" when they can be claimed as benefits.

It will probably be some time before I find out, but I will keep you posted. I know that if the parent has celiac disease then the children are screened (and yes, they do talk about asymptomatic celiac).

0

Share this post


Link to post
Share on other sites
Ads by Google:


I've been to Italy many times and have been told by Italians there every child is screened by the age of six. I wish I had evidence other than that - all I have is from what I have been told whilst in that country. Wait a minute - I do recall reading about it. Will see whether I saved a document of some sort.

0

Share this post


Link to post
Share on other sites

I think I saw a thing about a research study in Italy that was going to test all children for the study. I don't know if that is still going on or not.

0

Share this post


Link to post
Share on other sites

I've not seen actual documentation of it, but an Italian friend of mine told me that it was routine when her kids started school in Italy. This would have been 2006 or 2007, I think. I can't think they did regular screening before the newer blood tests were created, though, which is relatively recent. And perhaps it depends on the area of the country - my friend and her family lived near Rome.

0

Share this post


Link to post
Share on other sites

I believe I read somewhere it was just the tTG IgA.

0

Share this post


Link to post
Share on other sites

There WAS a study done by the University of Rome in 2007 or 2008 (I think), and that involved a mass-screening of school-children of many if not all schools in the Roman district.

If most people heard of the "all children are tested" in/around Rome, that might explain it. It was a saliva test. But I don't know much about saliva tests myself. Anyone?

There are some schools in the area around Rome that have created educational programs to make celiac children feel like they are not "excluded" because of their needs, which seems sweet.

I'll keep searching in case anything comes up that can be of interest for the celiac community. It would indeed be interesting if this experiment became more widespread to see whether that sets some kind of example.

Thanks for humoring my interest in health politics! :D I (selfishly) wish there were more initiatives specifically directed toward educating the public about autoimmunity.

0

Share this post


Link to post
Share on other sites

Update: as of my current knowledge, the intensive screening on Italian schoolchildren was only done in some occasions and in some places following an academic study.

Different regions of the country probably adopted different strategies to implement the early diagnoses prescribed by law in 2005. I am waiting for more information from the national association.

What I noticed, however, is that people are generally very aware of the condition, and I mean working-class, hairdresser type of people. If they see you passing the pasta and bread, they usually say, "Oh, you have celiac disease." And places let you see the ingredients/labels of products they use (a patisserie did so for me, with the chocolate they use to coat hazelnuts). I also found a lovely restaurant where the chef modified all the dishes so that I cold have the same as everyone else, but without the ingredients I cannot have, and apparently for the it's common business to have customers with allergies et cetera. So it was actually pretty easy being home!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,810
    • Total Posts
      932,605
  • Member Statistics

    • Total Members
      64,306
    • Most Online
      3,093

    Newest Member
    Williamino
    Joined
  • Popular Now

  • Topics

  • Posts

    • This is why many of us stick to our own "Trusted Brands" of things we know are safe, and only buy stuff with the offical certification for gluten free. NOTE also in the US they do not HAVE to tell you their facility also processes wheat on the label, just if the actual product contains it in the ingredients. But many will just to avoid legal mumbo jumbo if they somehow have CC issues. Saying the facility also contains/processes wheat is just them covering themselves if people get sick from it.
    • I make my own mini loafs of a simple almond,coconut,apple sauce blend for dense, bland bread gluten free, and have my pastor bless them. I then keep them in the freezer and bring a piece with me for communion.
    • I don't have milk in liquid form any more, so I switched to coconut flavoured milk (rice based) for cereal, really like it. Then I take coffee black which I've also adjusted to. For an occasional treat I'll have a soy latte, tastes a bit nutty but I'm used to it now and it's as much about the visual treat of sitting in a coffee shop with a big milky coffee anyway. The last time I had a real milk latte I got some huge spots a day or so later on my chest and that was the clearest signal that milk and my skin weren't a good mix. What I haven't done is stop eating products that have milk listed as an ingredient. If I do that I lose so many of the nice gluten-free replacements  biscuits ice cream etc. I know I could try and get dairy free, but it's expensive and difficult to find. So maybe I should try doing that and see how I go... It's funny, a few years ago I used to have a 'healthy'  breakfast of porridge, milk, with a big spoon full of wheat bran for fibre which I convinced myself I needed for digestion. I used to feel pleased with myself for having a good start to the day when I subsequently found it was the worst combination of foods I could possibly have devised. I think If I ate that right now I'd explode!
    • I and many others here have been there and sympathise! Keep on keepin' on, it won't be long now before you can start feeling better. In the meantime, if there's a cheesecake, pastry etc that you want to say goodbye to, now's the time...
    • I'm not Catholic but I remember reading an article about gluten-free host wafers. Looks like this church has developed some guidelines you could show to your priest? https://www.dioslc.org/ministries/disabilities/holy-communion-for-people-with-celiac-disease
  • Upcoming Events