• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Little Joe

Psyllium Seed Husk

Rate this topic

Recommended Posts

I am newly diagnosed with celiac disease (Nov. 21) and, as quickly as possible, moving toward and adjusting to a gluten-free diet.

I certainly have many questions, but one that sticks out right now is if anyone knows a good source of gluten-free psyllium seed husks? I currently use Trader Joe's "Secrets Of The Psyllium" which is inexpensive, and devoid of flavorings, sugars, etc. While the container states "No wheat," it also states that it is processed on shared equipment (listing wheat and a few others). There is no gluten-free label on the container (and I am learning that mileage will vary with the "gluten-free" labels, and to do my research on all prepared foodstuffs that I buy).

Anyway, my guess is that this product is probably not advisable for use but... does anyone with celiac disease use this product successfully? Has anyone used it and experienced adverse effects? Does anyone know of a brand of 100% psyllium that is safe for those with celiac disease?

I am glad to have found this site, thanks,

Joe

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I've been using Yerba Prima psyllium husks powder, here are details on their site, but I got it in the natural foods section of a grocery store: http://www.yerba.com/storefront/item.asp?id=57

It doesn't specifically say it's gluten-free but I've been fine with it, afaik.

Share this post


Link to post
Share on other sites

Yerba Prima works fine for me. I haven't tried Trader Joe's brand.

Share this post


Link to post
Share on other sites

Thank you for the replies! There is a Vitamin Shoppe very near to one of our local Trader Joe's and, according to their Web site, they carry both the Yerba Prima and Organic India brands (along with some others). I will give them a visit on this weekend's grocery shopping trip.

Share this post


Link to post
Share on other sites
Ads by Google:


I recently took some psyllium husk in capsule form and I am thinking it caused a bad reaction for me. My head feels full and foggy for a couple day now. I am also having crawling feeling in my head and balance issues. I am having similar experiences to anytime that I would eat gluten. Certainly it is possible that I could be reacting to something different, but I had never tried this capsule before. I'm honestly very nervous about the idea of trying it again. Just wanted to give you my experience. Just for the record, I am not just sensitive to gluten, but also to other gluten grains like corn, rice, oatmeal, etc. So if you are sensitive to more than just the gluten in wheat, then I would express caution. Good luck. 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,929
    • Total Posts
      943,564
  • Member Statistics

    • Total Members
      67,193
    • Most Online
      3,093

    Newest Member
    ddinidaho@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • I’m 62 and have just now been tested for Celiac.  My Titer was negative, I have zero IGa and too much IGg (16) which is an indicator of intolerance at the very least and may indicate the need for another endoscopy. He also tested for EPI (exocrine pancreatic insufficiency) which was negative.  I just had a colonoscopy/endoscopy last year as a part of being diagnosed w/ Gastroparesis. I also have (among other things which I’m not sure are as relevant) - T2 Diabetes, Hashimotos Thyroiditis (late 30’s) Chronic Kidney Stones (since age 40), Osteoporosis (way before Menopause and not well controlled), and Gallbladder disease.(was removed) I’m discovering that all those I listed may be related in some way, and related to Celiac.  I haven’t seen the gastro doc for followup since the testing (obtained results from lab) so I’m not sure what he’s going to recommend.  Here’s where it gets scary... my daughter has many of the same things. She was just diagnosed with EDS (Ehlers-Danlos Syndrome) at 32.  She was diagnosed w/Glucose intolerance at 15, had her Gallbladder removed at 20, PCOS at 22, and Gluten intolerance at 30 (no testing, just her gastro’s recommendation). She’s been diagnosed w/Gastroparesis, POTS,  MAST Cell Activation Disorder, Peripheral Neuropathy, (lost use of her bladder and has a neuro stimulator) - all in the last year.  Too much coincidence for me.  This has to be all related. I keep reading more and more studies linking all these things (like EDS and Celiac) together. My daughters  geneticist is blown away by the multiple overlapping and co-morbid conditions we have and tells us it’s not uncommon. She also says research is expanding.  Sadly, the specialist docs seem baffled and can’t even begin to address our issues, and only help to manage the symptoms - sometimes. And every “Disease/Disorder” has a “diet” or protocol, and they are all at odds with each other - very frustrating.  I guess the moral of this story is to let others know that there’s a lot more to all this than meets the eye. Don’t let anyone tell you you’re fine if you have what seem to be strange unrelated symptoms. You’re not crazy. Keep fighting for understanding and knowledge. Be an advocate for yourself, you’re loved ones,  for us all.      
    • Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
    • Wow, I also had pyloric stenosis that was misdiagnosed for some weeks as an infant (and almost died from it).  I also have Raynauld’s and I started following celiac diet, finding an immediate improvement of my symptoms.  I thought I was the only one that had all 3 of these diagnoses.   Interesting.
    • If you are lucky enough to travel in the Spanish-speaking world, just about anywhere you go, you will very likely run into a some version of chicken and rice, or ‘Arroz con Pollo’ as it appears on countless menus. This Cuban-style version relies on annatto oil to give it a red color. You can make your own annatto oil by putting achiote chili seeds in vegetable oil and heating it up for a few minutes over the stove. Cool and store. This version of chicken and rice is tasty, gluten-free and keeps well in the freezer. View the full article
    • I was diagnosed with celiac at the end of October. My DGP IgA was tested September 12th and was 127. I just got it retested and it was 135. I have been eating gluten free since I was diagnosed. I thought the numbers should be going down. How long does it usually take for the numbers to start dropping? Right now I feel like I must be getting cross contamination somewhere.
  • Upcoming Events