• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
TGK112

Asymptomatic Celiacs- Where Are You?

Rate this topic

Recommended Posts

I have been following this forum for 3 months - since my diagnosis. Most people write about their various symptoms. I found this diagram fascinating - the article that went with it said that about 2/3 of people with celiac have no symptoms - such as myself. Most of these people get diagnosed in a round about way - in my case ruling out celiac being a contributing factor to my osteoporosis - surprise - it was ruled in! However - reading this forum, I feel well in the minority - so needless to say, I was surprised to see that I am actually in the majority.

http://cdn.livingwithout.com/media/newspics/the_celiac_iceberg.jpg

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Interesting you posted this today. I have celiac (symptomatic)...and just found out today my mother is on the edge of being osteoporotic. Also, she has some Italian blood (not sure if that contributes to the risk factor, think it might). Of course, asymptomatic, too. Good informational post but makes me worried for those who could have it and not know. Have you started following a gluten free diet and what was your reaction when you found out? Does celiac run in your family?

Share this post


Link to post
Share on other sites

I find the chart interesting, but take it a slightly different way.

Many of us have symptoms that are not "classic" celiac symptoms until the damage is quite severe. For me the really severe abdominal bloat came only a couple years before my diagnosis although I had a multitude of other symptoms my entire life - most I thought were just a bit of this or a bit of that -- I tried to dismiss them because the tests my doctors chose to run were all "normal" -- these minor symptoms got worse each decade. So perhaps I was asymptomatic until my 30s.

Only one of my children/grands had "classic" gastro symptoms -- we have all had different symptoms....so what is Asymptomatic? for classic symptoms? gastro symptoms? You had symptoms that led you to have celiac ruled out as a cause.

Much of the talk on this board is from folks like me that became very ill before celiac was considered or they found their key was gluten without the aid of doctors, but I have seen many, many posts from members that have no reaction to gluten ingestion -- it is quite common to hear members that talk of their concerns of not knowing when they may have ingested small amounts of gluten.

Stick around -- we come in all shapes, sizes and disease presentations.

Share this post


Link to post
Share on other sites

I have been following this forum for 3 months - since my diagnosis. Most people write about their various symptoms. I found this diagram fascinating - the article that went with it said that about 2/3 of people with celiac have no symptoms - such as myself. Most of these people get diagnosed in a round about way - in my case ruling out celiac being a contributing factor to my osteoporosis - surprise - it was ruled in! However - reading this forum, I feel well in the minority - so needless to say, I was surprised to see that I am actually in the majority.

http://cdn.livingwit...iac_iceberg.jpg

Oh so true and nice to hear - I'm 58, and have lived with anemia, arthritis, migraines, and now osteoporosis. My Celiac was only found while looking for an unrelated problem. I couldn't believe it took all these years for someone to finally hit the nail on the head. But all my life I have been the one known for having an "iron stomach". Nothing really bothered me like what the other celiacs are describing, and I have no clue if I've been "glutened". It's like walking around with blinders on !

Share this post


Link to post
Share on other sites

I am thinking that symptoms are a good thing! Couldn't osteorporosis and other problems be symptoms of celiac? I guess these wouldn't give you the instant confirmations, but perhaps a long trail of results?

Share this post


Link to post
Share on other sites
Ads by Google:


I am classed as a Latent Coeliac, DD2 is classed as a Silemt [Asymptomatic] Coeliac, and DD1 is a [symptomatic] Coeliac. We all adhere to the gluten-free diet, but our 2x non-coeliacs eat any gluteny stuff they like, but household meals and baked products are all gluten-free.

Share this post


Link to post
Share on other sites

My diagnosis, too, came while looking for something else--it was quite a surprise. That said, my diagnosis is very recent so I am not sure how differently I will feel as my body adjusts to the gluten-free diet. My list of symptoms over the years are all very mild in nature and (outside of celiac) likely causes have been eliminated. Symptoms: migraines (stopped when I adopted a low-carb diet... long before my celiac diagnosis), mild swelling in legs, mild neurological/neuropathy type symptoms, palpitations, etc. OK, the migraines are/were not mild, they are/were debilitating but, at least in my case, low-carb seems to be trick for them. I think I might remember digestive-type symptoms before going low-carb (not gluten-free), but I was also heavy, out-of-shape, and ate very poorly. Since then, but before my diagnosis, my weight is better, my fitness is better, and I do not seem to have any such symptoms. Certainly, I did not seem to be experiencing any of the classic symptoms of abdominal pain, malabsorption/malnutrition, etc.

I, too, have read much about the (new?) trend of diagnosing more and more people with celiac disease who are not experiencing the classic symptoms of the disease.

Share this post


Link to post
Share on other sites


Ads by Google:


Interesting you posted this today. I have celiac (symptomatic)...and just found out today my mother is on the edge of being osteoporotic. Also, she has some Italian blood (not sure if that contributes to the risk factor, think it might). Of course, asymptomatic, too. Good informational post but makes me worried for those who could have it and not know. Have you started following a gluten free diet and what was your reaction when you found out? Does celiac run in your family?

I have been gluten free since diagnosis - but for me it would be hard to really know how successful I am doing at it. I am looking forward to having another blood test and endoscopy in a few months ( 6 months from diagnosis) and am hoping that it will show some improvement.. My reaction when I found out - a bit of shock - it was just so unexpected. Celiac does not run in my family - however when hearing the news, my brother got himself tested - and found out that he has the gene, but not the elevated antibodies.

Share this post


Link to post
Share on other sites

I was asymptomatic in terms of gastro symptoms but I've had anemia and other issues for quite a while. What finally led to the diagnosis was when I went to the GI after having some red stool, but that just turned out to be red food coloring from a slushie that I had the day before. Now after starting the gluten free diet I've become much more sensitive to gluten and can usually tell when I've had something that I shouldn't. I found that chart really interesting - I'm in nursing school and I need to do a teaching plan about a GI condition and naturally I picked Celiac disease. I plan on using that chart to demonstrate to the rest of my classmates that you don't always need to have abdominal pain to suggest Celiac disease. Thanks!!!

Share this post


Link to post
Share on other sites

I was severly anemic for years, and my low calcium caused tetany in my hands and feet and I was in the hospital for a week while they tried to figure out why...saw specialists for 4 years. Then this year, who came up with the idea that it could be Celiac? My best friend, who is not a doctor.

Craziness...

So I was asymptomstic gasto-wise (except maybe bloating here and there), but the anemia and malabsorption were my issues. Doctors were quick to blame periods or not eating right. (I was).

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,418
    • Total Posts
      941,155
  • Member Statistics

    • Total Members
      66,346
    • Most Online
      3,093

    Newest Member
    SadBlueBee
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello and welcome I'm sorry you're having such a tough time. There are lot's of people here who have been through tough times of their own and come through the other side. There's no shortage of support and good advice available. However, it would probably help if you could put down some details about what medical checks your Doctors have conducted? Have you had a celiac blood test for instance?
    • This pain is constant and nauseating it's in my back and stomach burns all the time.  My GI doctor barely knows about cealic they did an ultra sound came back clear.  I can't sleep my stomach hurts it feels like someone ripped a scab off and like it's being eaten by acid 24/7 I'm starting to fail school, I can't work because of the pain I feel like crying, I kind of just want everything to end I've been in pain for a year and half now and doctors are just taking my money and not solving the problem it's driving me insane. Just a burning nasunating feeling that never goes away, makes it hard to walk hard to live hard to drive to do anything I feel like I'm being tortured everyday.   dont know what else to do, I kind of hope someone on this site had similar pain and maybe can suggest what this may be? Because I can't function anymore.
    • Jersey Mike's Subs sandwich chain is known for its in-house baked bread, and tasty submarine sandwiches. To offer gluten-free buns for its customers, Jersey Mike's has partnered with Udi's. Starting in December, Denver-based Udi's will provide fully cooked, individually wrapped gluten-free buns at all 1,320 Jersey Mike's locations nationwide. The Udi's gluten-free bun will cost customers about an extra $1.50 for regular gluten-free subs and $3 for "giant" subs, according Jersey Mike's chief operating officer Mike Manzo. View the full article
    • I only ever have black coffee, either espresso or americano (pretentious name annoys me but what can you do). It's listed as ok here: https://www.costa.co.uk/nutrition/Costa-ANI-data-November-2017.pdf so its only if there's cc that there would be a problem. I've been ok so far  
    • Just read the ingredients?  Its very unlikely to have gluten in pickled stuff or cheese (except the beer cheese).  Never seen a marshmallow with gluten (I like Kraft because I think they are better).  I use McCormick for most spices & vanilla..  they are just spices.  Never seen a vanilla with gluten.     IN the US, wheat will be clearly announced in the ingredients (its a law).  Rye is only in a few things like bread or crackers & its an ingredient so it will be listed as an ingredient.  Barley is listed as barley or malt (usually barley malt).  Brewers yeast sometimes contains gluten - so avoid.  Oats need to say gluten-free oats or the product needs to be listed as gluten-free.   Lots of pre-packed lunch meats actually say gluten free on them.  Go to the store and look!
  • Upcoming Events