• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Fatigue And Muscle Weakness
0

6 posts in this topic

Recommended Posts

DucksnPucks    1

Morning y'all!

Battling fatigue and muscle weakness this morning. It's been coming and going over the past couple weeks. I've been gluten-free for over a month, and I know its still early, but it feels like I wax and wane a bit. Some days I can make it through to the end of the day before I get wore out, other days like today I'm exhausted right out of bed. The good news is that the headaches, brain fog and light headedness have all disappeared. I'm doing very well watching what I eat, just trying to learn how to cope with the fatigue which seams to be the worst symptom.

Anyone else feel like no matter how many hours of sleep you get enough, you never feel rested when you wake up? Or just feel off?

Also (tell me if I'm sharing too much) my bowel movements seem to be much more normal. No more pebbles, "C" or floaters. Is this a good sign?

Have a great day everyone!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


BMs welcome here!

Sounds great if they are more normal, seems to happen for quite a few of us.

Tiredness along with insomnia are the slowest to improve for me.

I am 3 months gluten-free now and definitely was up and down to start. A few weeks in I felt better than I had for maybe 7 years. Maybe 80%. I got glutened and dropped from that, but I would say I regularly am at 60% now with regular higher peaks. I used to be about 40 to 50%.

I don't get all over muscle problems, but I have had huge improvement to hand arm neck and back pain and plantar fasciitis (foot pain under heel).

I wasn't sure if it was real until I got glutened and the foot pain came back.

I don't know if it would be helpful for you, but I wrote out a list of symptoms I used to have, and then every few weeks I go back and revisit. I have found it useful to see the progress, especially if I am a bit down.

I have also added to my original list as I find symptoms I didn't even realize weren't normal and remembered things from the last 20 odd years and that people have mentioned here.

I gave these lists to my GI and he found it very helpful in giving me a diagnosis of NCGI cannot rule out celiac (I was unable to complete a gluten challenge).

Your enthusiasm comes through, it is great to see you have improvements

  • Upvote 2

Share this post


Link to post
Share on other sites
Chiana    15

You're getting there! It took me probably 4-5 months for the excessive sleeping to stop. I was sleeping excessively before (12-14 hours a night), so for me it felt like it would never end.

I can now set my watch to my BMs. I have found I am more regular than non-celiacs, and have fewer digestive issues than non-celiacs, as long as I avoid the gluten. Hopefully, you'll get there, too.

  • Upvote 1

Share this post


Link to post
Share on other sites
DucksnPucks    1

Great idea on the lists, I've often thought about doing that as well.

I find that as the day goes on the fatigue tends to go away a bit and I feel a little better, especially after I eat. But usually by the late afternoon I'm so tired that I can barely walk. Then i get a small second wind later at night.

Question for everyone, does getting more than 8 hours of sleep help any?

BMs welcome here!

Sounds great if they are more normal, seems to happen for quite a few of us.

Tiredness along with insomnia are the slowest to improve for me.

I am 3 months gluten-free now and definitely was up and down to start. A few weeks in I felt better than I had for maybe 7 years. Maybe 80%. I got glutened and dropped from that, but I would say I regularly am at 60% now with regular higher peaks. I used to be about 40 to 50%.

I don't get all over muscle problems, but I have had huge improvement to hand arm neck and back pain and plantar fasciitis (foot pain under heel).

I wasn't sure if it was real until I got glutened and the foot pain came back.

I don't know if it would be helpful for you, but I wrote out a list of symptoms I used to have, and then every few weeks I go back and revisit. I have found it useful to see the progress, especially if I am a bit down.

I have also added to my original list as I find symptoms I didn't even realize weren't normal and remembered things from the last 20 odd years and that people have mentioned here.

I gave these lists to my GI and he found it very helpful in giving me a diagnosis of NCGI cannot rule out celiac (I was unable to complete a gluten challenge).

Your enthusiasm comes through, it is great to see you have improvements

Share this post


Link to post
Share on other sites

Are you taking some B vitamins, or have you found you are deficient in anything? My fatigue improves by better nutrition. I haven't ever tried sleeping for as long as my body wanted ,, because I perceive I would still feel the fatigue if it was there. I also have responsibilities to perform as most of us do. The fatigue goes away and comes back spontaneously, so I don't think that more sleep would solve it.

I hope you will find a way to improve your energy level.

Diana

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


RiceGuy    55

I second the nutritional supplements. Besides the B vitamins, I'd suggest magnesium, and a separate methylcobalamin B12 sublingual tablet. These have made a world of difference for me. I've heard good things about CoQ10, and its importance in energy production, so I'm thinking of trying that too.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,921
    • Total Posts
      938,703
  • Member Statistics

    • Total Members
      65,850
    • Most Online
      3,093

    Newest Member
    rachellelnd@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ah yes... dry beans. I am fortunate to live near a plant that only processes beans, pulses and rice (Western Rice Mills if you're on the west coast). I doubt that they test, but I would suspect that the biggest part of the risk with that type of food is in the plant where they pack them, as things like barley pearls and wheat berries are often sold as dried goods and would probably be done on the same lines. I would agree that dry beans could be problematic depending on source. 
    • No, Armour has always been gluten free.  The formulation changed a few years back and during the switch, there was a shortage.  That has long since resolved.  Forest Pharmaceuticals (manufacturer of Armour) was bought out by Activas in 2015.  They increased the price!  Now it is comparable to synthetic.   Imtried to find a good and reputable source about the history of thyroid replacement.  Here is one link -- the story is pretty accurate, but the site is trying to sell you stuff.   https://thyroidpharmacist.com/articles/the-history-of-natural-desiccated-thyroid-medications/  
    • If she is now at a public school, accommodations can be made for disabilities.  Here is a link that explains a 504 plan and an IEP, but you will have to investigate based on your state.   https://www.foodallergy.org/education-awareness/advocacy-resources/section-504-and-written-management-plans https://www.understood.org/en/school-learning/special-services/504-plan/the-difference-between-ieps-and-504-plans http://kidshealth.org/en/parents/504-plans.html https://www2.ed.gov/about/offices/list/ocr/504faq.html i am not very knowledgeable about this subject, so I encourage you to contact your school district for help.  Your doctor might be a good resource too.   You might consider homeschooling until she has been diagnosed and has received treatment.  The Department of Education can direct you to homeschooling resources.  There are lots of wonderful programs out there and you can get financial support.   I wish you all well!  
    • You make a good point about being neurotic. I'm slowly getting better. I guess time will tell. But thank you for the insight.   As far as roommates go, that's a good idea. I've definitely been thinking about that. But these guys are my best friends and the process of getting a new roommate this late in my schooling might be hard. Although, I will keep my eye out for the opportunity. 
    • Hello I understand what you are going thru. My son almost died from going 27 years without figuring out it was gluten and then corn causing all the illness. I brought him to Drs, none of them figured out gluten intolerance. Oh they told us he had everything else. Then as time went on, he found out he has issues with corn. Corn has identical genetic make-up as gluten.  Corn is sneaky and everywhere. Contact the manufactures, ask them if there is a chance of contamination or corn ingredient in their products. My son gets neurological problems when gluten/cornized. Anxiety, obsessive thoughts, can not think. He had to be taken out of school and homeschooled. He just found out the digestive enzymes he was taking contain an enzyme that is grown on barley. Enzymedic basic.  My suggestions for you are, seriously go find another place to live. You need your mind and health to continue school. If you don't and continue living where you are, school will suffer. In your spare time, find out all you can about gluten and what other foods act like gluten in the body. Like I said, corn has the same genetic make up as gluten, some people can not eat rice either. This is something that is doable, it is just becoming very aware of what goes in the mouth. Please find another place to live. You don't need to deal with those jerks, you have enough going on with school and health. There might be other people in your school that are celiac or gluten sensitive. Find them, post notes up, start a newsletter about gluten free lifestyle. I bet there are many people that would welcome that newsletter.  You don't need to do this alone!   You are the most important person in your life, you deserve to feel good and be respected! Stay away from those that don't respect you. Search out those that will.  Eating out is something that can be done, find those places that will work with you. Ask to have burgers or meat cooked on aluminum foil. Fresh veggies, fruits all gluten free. Again, research restaurants in your area willing to work with you. Even call the manager and talk to them. All the best to you!  Hang in there.   
  • Upcoming Events