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      Frequently Asked Questions About Celiac Disease   09/30/2015

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Iron Infusions
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5 posts in this topic

i had an iron infusion 8 days ago - had the Venofor. My iron level was 5 and my ferritin was below 5 (was at 5 in May and the most recent test just said it was less than 10 but not a specific number) with my saturation levels my dr said I was on fumes!

Anyway - had the iron infusion - no symptoms - just some facial flusing. No problems at all. the first 3 days after the infusion - i felt great - felt like a fog had been lifted off my head. Then this past Wed - so about 5 days after th infusion noticed my hands were stiff and sore in the morning and then just kept being sore. They were also a bit puffy - rings felt tight. They are still sore - my thumbs in particular. Never noticed this before. I saw my family dr on thursday to get new thyroid dosage and mentioned this to him - he said yes its common after the iron to have swelling. Just wondering how long will this last? Anyone have this with their iron infusion? Its not dibilitating - but uncomfortable.

thanks

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No, I didn't have any swelling with my infusions of Venofor. I'm curious as to the infusion cycle your doctor has placed you on. Generally, infusions are given weekly for four weeks, and then when a person's ferritin level falls below normal again, the cycle of four weeks of infusions begin again. I don't think one infusion is going to be enough to raise your ferritin level sufficiently. It's possible that your doctor does not have a lot of experience with iron infusions....and he may need to speak to someone at the infusion center to get up to speed on what you need. How much venofor did you receive in your first infusion?

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No, I didn't have any swelling with my infusions of Venofor. I'm curious as to the infusion cycle your doctor has placed you on. Generally, infusions are given weekly for four weeks, and then when a person's ferritin level falls below normal again, the cycle of four weeks of infusions begin again. I don't think one infusion is going to be enough to raise your ferritin level sufficiently. It's possible that your doctor does not have a lot of experience with iron infusions....and he may need to speak to someone at the infusion center to get up to speed on what you need. How much venofor did you receive in your first infusion?

my dr is to call me this week to decide what next steps to take - i agree it will be more than one iron infusion - think she also wanted to see how i would react. i agree will probably need more than one infusion - she's a hema so would think she knows about infusions! Funny after I posted this late last night - today i am not as sore in my hands - so i think its going away. I believe the dose I got was 20 ml (not sure of the ml) but it was 20. This this is the standard starting dosage.

thanks!

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Odd.....since I believe I was infused with 200 mg (ml?) each time.

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Odd.....since I believe I was infused with 200 mg (ml?) each time.

Hmmm - maybe it was 200 then - i will pay more attention next time. I'll ask when she calls me back.

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