This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Thanks so much!
i really appreciate knowing that you would terrible if your number was similar to mine. I tell you, I really thought I was "okay" before I frequented this site. But the more I read about people's symptoms, and them improving, I keep comparing myself to them. And realizing I'm not quite ok. In fact, there's a lot that could be better.
thank you both for arming me with more knowledge to approach the doc with. I do wonder if I'll ever be back to my old self. My husband sometimes comments on how different I am than I was when we were first married- super motivated and energetic.
Gemini is right, you need a full thyroid panel in order to really see what is going on with your thyroid. The remaining tests are Free T3, Free T4, TpoAb and TgAb. The last 2 are antibody tests. Ideally, your TSH will be around 1 and the Free #'s will be in 50-75% of the range.
I feel terrible with a TSH where yours is. Mine is best very close to 1. Thankfully, my endocrinologist doses based on symptoms!
Start by asking your Dr for the full panel. Give her all of your symptoms as well as your mom's history. Hopefully, she is willing to order them for you. Many Drs will only order TSH or that and Free T4, but you really do need all of them.
This site is a great resource for all things thyroid:
Good luck and please let us know how it goes!
ive never just called a doctor and ask for a particular test... how do you do this? Do you have to convince them it's necessary first?
i would love for these symptoms to resolve, as I've had a lot of them my whole life. Until I read a lot here, I never thought they weren't just, well, normal.
my mom had problems with her thyroid. Had it removed in fact.
What would be helpful, Victoria, is to have a full thyroid panel done because you cannot diagnose anyone with Hashi's without a full panel. It is more important to see what the actual hormone levels are than the TSH. Those would be Free T3 and T4. You can have low hormone levels and normal TSH. Your TSH is not too bad but if it starts to climb any higher, that would be cause for concern for Hashi's. At least your lab seems to use the newer ranges for testing. Many labs use outdated ranges that go to 5.00 for a cutoff. When my TSH was a 7, I could barely drag myself out of bed in the morning.
I have Hashi's and your symptoms are a laundry list for it and Hashi's is very common with Celiac Disease. You can start having Hashi's symptoms long before the blood work goes off.......like Celiac.