This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Sometimes this happens, odd as it might be, you have to be eating gluten for the test first off daily. We call it a gluten challenge. Second some people due test negative on the blood test but can have celiac which is why we consider the endoscope and biopsy the golden standard. Also the gluten test back when you had it done previously was much less accurate then it is now days or at least it seems. Do you have your numbers? We have had many cases where the doctor said it was negative...and the idiot could obviously not read the test cause when member posted their lab forms we can see it obviously positive. What ever the case we know what the issue is now and your on your way to getting better. Unlike most AI disease we know the cure and fix for celiac is a strict gluten free diet. So you can now begin you road to healing......and yeah I know that feeling of finding out the nerve issues....sadly nerve damage is VERY slow to heal unlike gut damage. But it has it's odd messed up benefits, I have most coordination back but it comes and goes in waves. Funny thing, I can grab stuff out of the oven or burn myself and the reaction to it delayed or non existent pain wise. So they do not bother me. I can cut my hand and go "oh look I should super glue that back together" without the pain, I just logically deal with it and do not have much panic or pain unless it is VERY deep.
This has been my life for the past three years! Oh man! I have had every muscle and nerve test known to man and...nothing. The doctors finally stopped trying and just referred me for cognitive behavior therapy.
I'm still confused about the negative blood test though?
Thank you @Megamaniac - I don't hear about chest tightness as a symptom of being glutened, so it's good to hear of someone else. My current symptoms aren't bad, just annoying. It's hard to tell if it's anxiety tightening my chest, or something else. But since it's only been happening since I ate that damn tortilla, my guess is it's gluten-related. My doctor made me have an echocardiogram and stress test to rule out cardiac issues before he would do the endoscopy (this was a couple of years ago). I learned that telling a doctor "my chest tightness gets worse when I walk up a hill" makes everything else grind to a hart until the heart gets checked out!
Yes, gluten ataxia is one form where it effects your brain and nervous system. I lose feelings in my hands and feet, have all kinds of muscle issues when even traces get introduced via CC or walking through the bakery section of the grocery store -_ - Last time I got glutened at a restaurant back in 2016 I got home and lost full motor control and collapsed on the floor and started vomiting unable to move my body.
Your veggie issues made me think of a few other things. I can not eat those veggies in the produce section, they put some kind of veggie wax on them that makes me vomit no matter what, makes a waxy film in my stomach and they float.....I have to buy farmers market fresh, or canned no salt (del monte canned no salt spinach is my number 1 vitamin a and k staple in omelettes) Other members have issues with glyphosate and have to have organic produce that is not treated on the farm with these chemicals. Some members develop histamine response issues so foods are limited by histamine number and how they are prepared. Just a few things to consider.
UPDATE I suggest supplementation to deal with those nerve issues. Celiac causes issues with b-vitamins, magnesium and a bunch of others. So supplementation works wonders. Here are my suggestions
Liquid Health Stress & Energy + Liquid Health Neurological Support 1 tbsp each 3 times a day in a beverage like tea.]
Either Doctors Best Magnesium or Natural Vitality Calm. If you have constipation issues calm is suggested. Note start off small dose like 1/4 tsp slowly raise the dose to the full amount. Some of use need more or less, depending on activity levels etc.
Liquid Health Vitamin D drops might be needed, some of use have issues with this also.
We suggest starting off eating whole foods only, dropping dairy and oats (some of us react to oats just like gluten). You can try introducing processed gluten free foods later.