• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Cderbogh

Fading Fast. And I'm Just Getting Started :(

Rate this topic

Recommended Posts

Please help! I was just diagnosed a few weeks ago and officially started my gluten free diet about 2 weeks ago. I noticed a difference immediately, which was very comforting. I've been extremely careful to avoid all sources of gluten and am trying my best to avoid cross contamination. Im just getting used to all of the ingredients i need to avoid to remain gluten free and its taken a lot of work and getting used to. I thought I was finally getting the hang of it, but I just discovered that I also have a reaction to corn! I started looking up ingredients that contain corn and the list is overwhelming! I am getting very discouraged as I didn't even know anything about celiac 2 months ago. I was really looking forward to my DH, bowel issues, anxiety, insomnia, irritability, brain fog, and dizziness going away for good but now I feel like I'm climbing Everest! Do I have to avoid all corn products in order for all of my symptoms to clear up? If so....what can I eat?!? It seems as though there is gluten or corn in everything! This is a lot to handle and my doctors aren't being much help. I feel like I'm alone in this!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


You are new here and I feel for you. After all, I was asking the same question about 6 months back when I was 2-3 weeks into my diet. . Many of us have had to go grain free to recover. I did a classic gluten free diet before I went grain free. I remember the dismay when I learned I needed to cut out more foods. I went through renewed withdrawl symptoms. Yet, I have plenty of good stuff to eat. I use nut flours, coconut flour, and bean flours as substitutes. My favorite is almond flour. It almost seems like the more foods I cannot have the larger variety I get in my diet. I just find more things I consider eating. You are going to learn alot more. It is very overwhelming and part of that is withdrawl symptoms. Your body is working very hard to recover. It will tell you more and more clearly what it cannot tolerate.

For me, meat and eggs have been my body's favorite food. These are gluten free and I hope you can eat them. I have really learned to enjoy beans.

I hope you will have some down time, and some time to learn some new tricks. This is a great place to learn how to put things into action into your own life.

Get well, and keep learning. Give yourself time to recover.

Share this post


Link to post
Share on other sites

From the middle of my Freshmen year of high school to almost the end of my Senior year of high school I was corn free (along with gluten free--have been since I was 2 yrs old), corn is MUCH harder to cut out than gluten, but it can be done. I would suggest doing the corn and gluten free thing for a while, then slowly start trying small amounts of corn (for me it was non-processed corn on the cob that I had for a while before being able to eat any sort of processed corn products). The big problem with corn is HFCS (high fructose corn syrup) and other corn syrups that are in most processed foods. I would suggest doing meats, veggies, rice, potatoes, beans, fruits etc. for the time being, it's going to be a lot of cooking but it'll give your intestines time to heal before you start introducing more of the processed foods that could be causing you problems.

Good Luck!

Share this post


Link to post
Share on other sites

flagbabyds is right--avoid processed foods for now. Then you don't even have to worry about reading the ingredients. Concentrate on eating only natural foods: meats, nuts, dairy, eggs, fruits, and veggies. Yes, lots of cooking.....but you'll feel better sooner. Someday you may be able to reintroduce corn into your diet. Until then, stick to natural foods--you won't be sorry!

Share this post


Link to post
Share on other sites

Yep, sometimes going only gluten-free doesn't work :/ I'm on a grain-free diet, besides a few other minor intolerances (coffee, citrus, honey, peanuts). Basically I eat fruit, meat, veggies, beans, meat, potatoes, meat and nuts. Two times a month I bake myself a cake using flaxseed flour or almond flour, but there are plenty other flours not made out of grains, as well. Two other times I make nut butter.

I have a very sensitive leaky gut, but I can see improvement. My symptoms when eating something my gut didn't like went down from D, light cramping and just general uncomfortableness to bloating, some gas and rough bowel movements.

It gets better, and soon you will be able to add more foods back in (:

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you so much guys. I'm slowly but surely accepting this new reality. It's just hard. But it's great to have people here who understand and who have already been going through it all :)

Share this post


Link to post
Share on other sites

Hi Cderbogh,

You may be able to eat corn starch, but not corn protein. But that is something you will have to test to find out. All you have to do is put some corn starch in a glass of water and drink it. Many people who have reactions to foods react to the proteins, not the starch part.

Like someone said, if you stick with whole foods, you don't need toworry about it. Except for vtiamin pills and such, as they use corn starch or some other starch as a carrier.

Share this post


Link to post
Share on other sites

Thank you so much guys. I'm slowly but surely accepting this new reality. It's just hard. But it's great to have people here who understand and who have already been going through it all :)

I am in the same boat with you. I just started after fighting to accept it for months. Now that I am on the right track I am seeing more and more foods that are harsh on my system. I wonder though if it is because of the extensive damage to the small intestine? I have stuff come out whole that I ate the day before :( I take supplements though and that seems to be managing my nutrients for the most part :) This whole thing is like one massive head game! I think that even though I have had a rough time physically it has been equally hard mentally and emotionally.

Share this post


Link to post
Share on other sites

I am in the same boat with you. I just started after fighting to accept it for months. Now that I am on the right track I am seeing more and more foods that are harsh on my system. I wonder though if it is because of the extensive damage to the small intestine? I have stuff come out whole that I ate the day before :( I take supplements though and that seems to be managing my nutrients for the most part :) This whole thing is like one massive head game! I think that even though I have had a rough time physically it has been equally hard mentally and emotionally.

Hi,

You may have low stomach acid. You could try some Betaine HCL and some pro-biotics to see if that helps. When the gut is irritated and food moves through too quickly it sometimes isn't digested completely. Digestive enzymes may help also. It seems like our guts are often irritated at first on the gluten-free diet. All the bacterial changes could be part of that.

Share this post


Link to post
Share on other sites

Hi,

You may have low stomach acid. You could try some Betaine HCL and some pro-biotics to see if that helps. When the gut is irritated and food moves through too quickly it sometimes isn't digested completely. Digestive enzymes may help also. It seems like our guts are often irritated at first on the gluten-free diet. All the bacterial changes could be part of that.

Thanks very much! Before I was experiencing such high acidity that my guts (not really my stomach) were on fire all the time until it would end in diarrhea Now that I am not eating gluten, and a whole host of other things, I don't have that problem! Although I have swung in the complete opposite direction. As I has constipation now. Which is not great but it is a welcome change after what it's been like!

Share this post


Link to post
Share on other sites


Ads by Google:


Thanks very much! Before I was experiencing such high acidity that my guts (not really my stomach) were on fire all the time until it would end in diarrhea Now that I am not eating gluten, and a whole host of other things, I don't have that problem! Although I have swung in the complete opposite direction. As I has constipation now. Which is not great but it is a welcome change after what it's been like!

Celiac disease can cause gut paint, I wonder it that was the cause instead of high acid levels? Celiac attacks the villi lining of the small intestine, so it can damage a large surface area of tissue. That can hurt. Since your pain resolved after going gluten-free, it seems ilkely gluten was the cause, IE celiac disease or gluten intolerance perhaps?

Share this post


Link to post
Share on other sites

Oh honey, I feel your pain! I had the same thing happen... after going "gluten free" I also noticed I reacted to other grains.

I'd bet money that you react to rice, sorghum, all grains. We all do, it's just that some of us notice and some of us don't.

And that includes the starch... it's best to stay away from all forms of the foods you react to. Continuing the inflammation in your gut will continue to damage your health.

I highly recommend going on a paleo-ish diet. (I say "ish" because you can make some modifications depending on what you're specifically sensitive to, like for instance I can eat goat cheese just fine, so I do.) My doc put me on this diet, and it seriously saved my health. There are many gut-irritating foods that you might not suspect as well, including beans, nuts, and seeds. You don't have to cut them all the way out of your diet forever, but if you do for awhile, it will excelerate your healing process. (you can read more about it here: http://articles.merc...ks.aspx?np=true )

This supplement is also great for soothing your gut and helping it heal:

http://www.ovitaminp...repairvite.html

Don't fret! You can still enjoy many, many yummy amazing foods, and there are ways to easily modify existing recipes to fit your diet. :)

These are some recipe sites that I love:

http://www.againstallgrain.com

http://www.health-bent.com

http://nomnompaleo.com

All the best to you, and I hope you're feeling lots better soon. :)

Share this post


Link to post
Share on other sites

Thank you thank you! I think I am going to try the paleo-ish diet bc another week in and I'm having trouble with dairy. It gives me terrible insomnia too �� Seems like I'm reacting to someone new every week! Hopefully just cutting it all out will help and then I won't really hafta second guess everything. I just wish I could fast forward to a time when I have this all figured out. Thanks for the help and encouragement! I'm gonna check out those recipe websites too! :)

Share this post


Link to post
Share on other sites

I feel your pain. I went gluten-free, thought, hey, this is no big deal! Then the realization of the corn, dairy, then soy.....

In my case, just avoiding the actual corn, corn meal, corn starch, etc is not enough. Even the itsy bitsiest bit of citric acid in something makes me gain 10 lbs overnight and takes three weeks to go away. :( So discouraging! I was healthy two months out of 10, and that was when I only ate from my garden. No garden now.... ugh.

To address constipation, for those who have it.... make sure you get enough magnesium. That helped me. Then I got a fiber called Heathers Tummy Powder. Nothing like psyllium (which my body began to reject), it actually feels soothing to the guts, instead of violent. Also, I began ground flax meal daily trying to get Omega 3s, and that is helping also.

I also had to cut out all dairy for 6 months. I got brave enough to try butter again, and have not reacted to it or whipping cream. (the fat of the dairy)

For insomnia.... this was a duh moment for me. I always slept 10-12 hours a night, before I stopped grains. I now realize I only need 5 hours of sleep at night. I set my alarm to wake me up at 5 am, so I don't oversleep and cause trouble the next night... and I go to bed at midnight. My tossing and turning has stopped, I now sleep when I am in bed. Ahhhh......

Hang in there, everyone! It has GOT to get better. At least I am hoping it all will.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,949
    • Total Posts
      943,641
  • Member Statistics

    • Total Members
      67,314
    • Most Online
      3,093

    Newest Member
    sezp
    Joined
  • Popular Now

  • Topics

  • Posts

    • So PC is not celiac pc? I'm sure fictitious  "Tina" in the ad will discard her "immature anti celiac ad friends" like used napkins and find new friends that are less grossed out by her autoimmune disease.  Or perhaps fictitious "Tina " will patiently educate the baffon friends in the ad. Tina's choice. Another company made a bad choice to join the gluten dude list of celiac bashing in the public media  Hey PC want to attempt to get out of dog house ? contact me for where to send my check For your next marketing idea/ script for your commercial  Your next commercial show two tables one designated gluten-free and one non gluten-free show 2 different color coded themes one gluten-free and non gluten-free example red for gluten-free and black non gluten-free ( whatever game day team colors- catch my drift) showing gluten-free cake served on red plate and non gluten-free cake on other table on black plate. Yo support celiac awareness and safety. this marketing tip per AWOL  contact me for my royalty checks  👍  
    • .....damn I thought I had run into stupid doctors on my own, yours flip flop more then a ADHD kid and I should know that one. Yep celiac and gluten-free for life....get copies of all your POSITIVE test and compile them in a folder, write the others off as doctor stupid was tripping on acid. Get copies of all your medical records and personally take them to a new doctor....might want to look through them first and make sure the idiot did not put anything in there wrong. Well if you can anyway......
      Congrats on the diagnosis and sorry you found one of the idiots, you get those a lot in life just sucks when it is someone in charge of your well-being and health like that. I take it you have already been through the newbie 101 thread and gone to a whole foods diet to boost up the healing, cleaned out the kitchen and set for the haul.  
    • Also I should add that in the 12 weeks, my vitamin d plummeted and now am deficient. Would you guys accept a celiac diagnosis (I am pretty confident that I have it- I was sad before the challenge that I couldn’t eat gluten anymore. Now after the challenge i am EXCITED to never eat it again as I feel like such crap now) or can a positive diamodated Gliadin  IgG indicate anything else? Or is it specific to celiac? I am happy to get a diagnosis,  but want to make sure it’s the right one. I wish I trusted my doc more (example- 3 days ago they called and said congrats, no celiac, u can eat gluten!! The doc signed off on it. But I looked at my results and pointed out that the deamidated IgG levels were not reported yet. The doc said whoops my bad. The next day they came back positive and I got another call & they said, nevermind, no gluten, you’re positive! They are idiots). 
    • Looking for advice and also to help those undergoing testing. I went to my general practitioner back in August with nausea, bloating, diarrhea, migraines, sluggishness, and a feeling of general unwellness. I was eating a gluten diet at the time. My doc ordered the dual antigen screen- it came back positive for celiac. He set up an appointment for me with a specialist. I called the specialist and they could get me in 8 weeks later. I asked the specialist if I went gluten free is this would affect any testing. They said “no” that I was in a gluten diet for so long I would be fine. However, 8 weeks later, the blood test showed no celiac- my results were normal after 8 weeks on a gluten free diet. I felt great, for me the turnaround was almost immediate- in a week or 2 I felt amazing. But that didn’t help with getting accurate results (mostly wanted to rule out another autoimmune disorder). I then went on gluten for 7 weeks (I ate a lot of gluten- like at least a bagel a day and much more on some days- I wasn’t messing around, I wanted an accurate diagnosis)and repeated the blood test at 7 weeks. It came back a very weak positive for deamidated gliadin abs iGg. I then underwent a endoscopy because the doc said that number, although positive, was not high enough to go off of. The endoscopy came back normal- however, the doc noted that higher levels of antibodies were found but not in the “abnormal range.” So, they were present, just not in crazy levels. I then kept eating gluten- I should note my doctors SUCK (could do a whole other post just on this- I have been my own doctor pretty much). I just took another blood test at 3 months eating gluten. My levels are now SUPER high for deamidated Gliadin abs IgG. The doc is confident I have celiac. Question is- my doc is so bad, I wanted to check here to make sure that it indicates celiac. I also wanted to help others as I know there’s lots of conflicting information on how long to do a gluten Challenge. For me, it took 3 months. My gut tells me I am early stage celiac- I don’t have full blown damage yet, but if I keep eating it I am sure it will do some damage. Just wanted to highlight this as if your case isn’t super bad yet, you may have to eat gluten longer- everyone is different. Any advice on my results would be awesome!
    • Hi Matt,  Thanks for taking the time to reply!  I completely agree haha.  Thanks for the links - I'll give them a read over!  I think it was a mixture of the first time travelling with being gluten-free and the added bonus of the language barrier, it made me dread meal times when usually food is the first thing I think about when travelling to new places! Again, I think the planning element was also a factor, not being able to walk past a nice bakery without walking in - why do most Berlin train stations have bakeries in everyone?!?! THE SMELL!!!  Haha, good excuse! Could have used that in the hotel restaurant (arrived late the first night) and the only avail dish was a dry chicken Caesar salad (literally 3 thin slices of chicken, 5 cherry tomatoes and a plate of lettuce).  I am I'll give the website a look over too - thank you! My app's with my consultant are every 6 months, basically was just sent away with no info/advice given and feeling the struggle now that reality has set in that this is for good!  Hope you are well! 
  • Upcoming Events