Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Get The 'shivers'


jmrogers31

Recommended Posts

jmrogers31 Contributor

2 questions for everyone. My 6 year old daughter is on a gluten free trial right now that we started 3 weeks ago. My first question is that she was having behavioral issues in school with talking, not paying attention, very anxious, and arguing. Each day they can have an outstanding day, great day, good day, think about it day, or parent contact. She has had 1 outstanding day in 3 months and many parent contact and think about it days. The teacher thought she may have ADHD and we were considering seeing someone about that. I am diagnosed gluten intolerant and told my wife we should try gluten free first. Well in the last 3 weeks she has had many outstanding days including 3 of the last 4, she is less anxious at home and listens much better. How many of you noticed a sharp contrast in behavior with your children? My other question is that she shared a snack with a friend at school the other day and I got a call from school saying she had a fever and the chills or 'shivers' as my daughter called them. I told the nurse about her food trial she was on and this was the first time in over 2 weeks she had ate gluten and she didn't think gluten could cause a fever and chills. Anyone have experience that it can? Thanks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

In my own opionion ADHD can be diet related. Feed her good food. My brother had some problems with it when I was young. Mom helped him by using Dr. Ben Feingold's diet. His book gives details of eliminating food colorings and artificial flavorings. I was amazing how these additives (or rather eliminating them) changed my brother's behaviour. Maybe homeschooling might be a thought for her.

I have the chils occassionally, but I have never associated them with gluten. I will have to note it later if I do.

Diana

Link to comment
Share on other sites
Jestation Newbie

2 questions for everyone. My 6 year old daughter is on a gluten free trial right now that we started 3 weeks ago. My first question is that she was having behavioral issues in school with talking, not paying attention, very anxious, and arguing. Each day they can have an outstanding day, great day, good day, think about it day, or parent contact. She has had 1 outstanding day in 3 months and many parent contact and think about it days. The teacher thought she may have ADHD and we were considering seeing someone about that. I am diagnosed gluten intolerant and told my wife we should try gluten free first. Well in the last 3 weeks she has had many outstanding days including 3 of the last 4, she is less anxious at home and listens much better. How many of you noticed a sharp contrast in behavior with your children? My other question is that she shared a snack with a friend at school the other day and I got a call from school saying she had a fever and the chills or 'shivers' as my daughter called them. I told the nurse about her food trial she was on and this was the first time in over 2 weeks she had ate gluten and she didn't think gluten could cause a fever and chills. Anyone have experience that it can? Thanks.

Hi, I sometimes get flu-like symptoms, swolen glands, achy, tired and a bit feverish if I accidentally ingest gluten. I think it's an immune response, the body trying to fight the initial invasion. Hope this helps!

Link to comment
Share on other sites
nvsmom Community Regular

I would guess the fever and snack were a coincidence. I have never had a feverish feeling from gluten (although I have during an autoimmune attack of another sort). My guess is that she has a virus. Either way, I hope she feels better soon.

We homeschool our three boys and find it is a great alternative to regular school for bright kids who have a hard time sitting still and shutting up.... that would be really tough for my kids! LOL

Link to comment
Share on other sites
shadowicewolf Proficient

When i was younger, I very rarely had good days (the system of green (good) yellow (could be better) and red (bad) is what my class used). I was always on yellow and on a rare occasion red. I have a dx of ADHD. The diet has helped some, i can sit still and pay attention a bit better than before, but there are still issues (like i can't concentrate on one thing at a time). For example, right now i've got the tv going, the computer, and i'm bouncing my leg. I cannot sit still for very long. Classes with swivle chairs are interesting as i tend to bounce about in them.

I say virus for the fever.

Link to comment
Share on other sites
jmrogers31 Contributor

Thanks everyone. nvsmom, it is interesting you said bright kids because she is a very bright kid (I know everyone thinks that about their kid). She actually gets in trouble during reading lessons because she just reads the words when the other kids are supposed to be sounding them out and we were told by her teacher that they don't have anyone to pair her with for reading because she is so far ahead of everyone. I don't think she is gifted because she is average in other subjects. We were considering seeing if she could move up a grade or two for reading because she reads at about a 3rd grade level in Kindergarten. I have heard about bright kids having trouble 'sitting still and shutting up' as you put it. shadowicewolf, that sounds like her. She can't sit still and focus. I can't either, but I was actually never in trouble because I was so incredibly and horribly shy as a kid that I never spoke to anyone unlike my daughter who talks to EVERYONE and wants all the attention. :) Jestation, thanks for sharing I will keep an open mind before I dismiss it. 1desperateladysaved, let's hope so because I am not going to medicate my child at 6 years old. I am hoping we can overcome this. My other daughter is a model student and we never have issues with her. You would never guess they were sisters, they look and act nothing alike.

Link to comment
Share on other sites
shadowicewolf Proficient

I'm glad to hear that she does well in school. I certainly didn't when i was younger (with the adhd stuff and not understanding the material). Does she like running about outside? Perhaps a sport or an after school club dedicated to such things might help (i was in one called the run/walk club where we would do fun games and stuff after school).

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Thanks everyone. nvsmom, it is interesting you said bright kids because she is a very bright kid (I know everyone thinks that about their kid). She actually gets in trouble during reading lessons because she just reads the words when the other kids are supposed to be sounding them out and we were told by her teacher that they don't have anyone to pair her with for reading because she is so far ahead of everyone. I don't think she is gifted because she is average in other subjects. We were considering seeing if she could move up a grade or two for reading because she reads at about a 3rd grade level in Kindergarten. I have heard about bright kids having trouble 'sitting still and shutting up' as you put it. shadowicewolf, that sounds like her. She can't sit still and focus. I can't either, but I was actually never in trouble because I was so incredibly and horribly shy as a kid that I never spoke to anyone unlike my daughter who talks to EVERYONE and wants all the attention. :) Jestation, thanks for sharing I will keep an open mind before I dismiss it. 1desperateladysaved, let's hope so because I am not going to medicate my child at 6 years old. I am hoping we can overcome this. My other daughter is a model student and we never have issues with her. You would never guess they were sisters, they look and act nothing alike.

Your daughter sounds gifted in reading if she is that far ahead. Not many kids are gifted in multiple areas but it sounds like reading is her thing. It would be nice if the teachers could give her grade three work, or use her skills to teach the other kids... it's tough on kids when teachers don't have the time or resources to advance kids in their gifted areas so they don't get bored and create a disruption.

We got into homeschooling because my oldest had a flare for language (vocabulary) and math and is a fair bit ahead of his peers in those areas. He also has several topics which he pursues passionately and in depth, but doesn't have patience for topics that don't interest him (he has mild Aspergers). For example, when he was in grade two we studied Greek and Roman ancient history and he fell in love with battle strategy and weapons; he could explain how many ancient battles went, why they happened... and what he would have done differently. If he had had to study "My Community" like the grade 2 public school curriculum, he would have been bored and become a classroom distraction. Conversely, he was weak in reading for a few years and he would have become frustrated trying to keep up to his peers when he wasn't ready for that material yet. For kids like my boys, homeschooling is best for them at this time. :)

BTW, my boys have been gluten-free for a couple of months now and I've noticed large behavourial changes for the better in my oldest and youngest boys. The have less stomach aches, and they are more pleasant and are better able to handle tasks that they don't enjoy. Yeah! None of my boys have actually tested positive for celiac disease though.

Link to comment
Share on other sites
shadowicewolf Proficient

We got into homeschooling because my oldest had a flare for language (vocabulary) and math and is a fair bit ahead of his peers in those areas. He also has several topics which he pursues passionately and in depth, but doesn't have patience for topics that don't interest him (he has mild Aspergers). For example, when he was in grade two we studied Greek and Roman ancient history and he fell in love with battle strategy and weapons; he could explain how many ancient battles went, why they happened... and what he would have done differently. If he had had to study "My Community" like the grade 2 public school curriculum, he would have been bored and become a classroom distraction. Conversely, he was weak in reading for a few years and he would have become frustrated trying to keep up to his peers when he wasn't ready for that material yet. For kids like my boys, homeschooling is best for them at this time. :)

I was like that (except for math...). I could tell ya how this that or the other happened, but give me something that was outside of it, forget it :lol:

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    2. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    4. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders
      9

      Joint swelling when ill even on gluten-free diet


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
×
×
  • Create New...