• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

What Age Did Everyone Begin To Have Symptoms?
0

Rate this topic

16 posts in this topic

Recommended Posts

Ads by Google:
Ads by Google:


Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Edited by GottaSki

Share this post


Link to post
Share on other sites

Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Any symptoms for Celiac.

Share this post


Link to post
Share on other sites

12 months.

Share this post


Link to post
Share on other sites
Ads by Google:


Alot of my depression and anxiety developed early when I still lived with my family. Around 20 the mental health issues ramped up. Did some heavy drinking during those years. First miscarriage in 1990, first child born in 1993 (also when hypo hit). Second child in 1995. I always had a problem with constipation since teens. After pregnancies all the digestion issues came on strong. Then year after year more stuff. Monster migraines, Arthritis, periformis syndrome, sacroilitis, degenerative disk, hemorrhoids out of control, Sicca symptoms, fibromyalgia (mine is skin surface pain), stiffness in all joints, carpel tunnel (I believe from all over inflammation) and now cancer. I was only diagnosed celiac 5 months before the cancer.

Resolved issues. Had hemorrhoids operated on, all digestive issues resolved, migraine only when cc'd, whole body inflammation is less. Fibro surface pain is less often. Have an appetite now. Carpel tunnel resolved, I believe, as a decrease in inflammation.

I still have a lot of fatigue and weakness issues but I believe that is related to a different condition.

Best of luck,

Colleen

Share this post


Link to post
Share on other sites

I had mononucleousis when I was 19 and in college. After that I noticed, unending fatigue, bloating on occassion, and sensitivities to perfume and cigarette smoke. My appetite had unusual swings from famished constantly, to a severe lack of appetite. The symptoms gradually got more and more noticeble, but I think I was numbed either by extreme fatigue or lack of vitamin B. Gradually, the bloating and fatigue overcame me and did not go away.

Share this post


Link to post
Share on other sites


Ads by Google:


From the time I was born I was pale, skinny and had dark circles under my eyes. I guess around age four or five I had to have all my teeth capped because of "milk rot". At six I was ill for about a year: mono, tonsillitis, chicken pox. Just seemed to catch everything. After that, migraines, stomach isssues here and there, in early twenties abdominal pain. I didn't get diagnosed until 35 years old, two months ago.

Share this post


Link to post
Share on other sites

No problems at all until I got pregnant with my second child (age 38). I went from going to the doctor once a year (just for annual physical) to going in every few months with really random symptoms. (cardiac, neuro, GI, etc.) It got to the point where my doctor just thought I was making stuff up because nothing ever showed up on the many, many expensive tests they ran. When my son was diagnosed (2nd child - coincidence?) at age 5 I got tested and was positive. I had a negative biopsy, but once I started the diet, my health returned. It was amazing. I wish someone had thought to suggest it much, much sooner. I realize 5 years is not bad compared to others, so I really can't complain.

Share this post


Link to post
Share on other sites

I was 49... no other celiacs in my immediate or extended family. I had symptoms for about 2 months and was diagnosed by blood tests. Middle daughter was diagnosed at about age 26. Then youngest daughter was diagnosed a few years later at about age 27. And finally, oldest daughter was diagnosed at age 32. Still none of my siblings or extended family has it.

Share this post


Link to post
Share on other sites


Ads by Google:


According to my baby records I was born on Sept 21. I was given oats and barely in formula on Oct 25th and Oct 26th I developed a severe allergic rash. That was 39 years ago so the connection was sketchy. That is the first reported reaction I had to Gluten. So it's safe to say I was drawn this way.

Share this post


Link to post
Share on other sites

Looking back I've had symptoms for 20 years but I could always attribute them to something else. In January 2012 my colon had enough and shut down. I lost muscle control of my colon and needed laxatives to get any movement at all. It took about a month to diagnose it properly as celiac. I had 2 bloodiest, both negative. My doctor wasn't getting it. I decided to go gluten free, did it for a week and got back control of my colon and I felt so much better. Then I ate a hamburger and onion rings and all my symptoms came back. I consumed gluten for almost 42 years till my body said enough.

Share this post


Link to post
Share on other sites

I had "C" as soon as pablum was introduced and was into the doctor in my early childhood because of my chronic stomach aches. I can't remember as many stomach pains when i was a teen (migraines started instead) but they came back as an adult. I developed other autoimmune diseases, and other symptoms until I figured it out and got myself diagnosed this past year at age 38.

... 38 years I guess.

Share this post


Link to post
Share on other sites

No clue as I have never felt ill from eating gluten. But I started suspecting something (not celiac at the time) when I had miscarriages. Then three years ago I got bronchitis then pneumonia. After that my celiac fog started - I believe my illness may have triggered it, as did an accident that left me in constant chronic pain. I have been diagnosed with fibromyalgia but believe that it is related to/caused from celiac. Not getting a bit better, even 1.5 years off gluten but there is always hope! :)

Share this post


Link to post
Share on other sites

I wish I knew! I keep trying to remember when things first started... Bread has bothered me for a long time... I always felt tired after eating it but that was it? Is that a celiac symptom?

Apart from that I would say my symptoms have come on really slowly. So slowly that I struggle to pinpoint it exactly. Apart from bread 'bothering' me, I guess I first started not feeling right about 5 or 6 years ago. So that would've made me 33/34 years of age.

I'm still struggling with the fact that I may have had this for a very long time... Or if not, something triggering it. It's a horrible idea to think that something I did (stress) might have started this horrible disease.

Share this post


Link to post
Share on other sites


Ads by Google:


I remember the very day it seemed to all begin. Around age 10 or 11, I was eating out with my family and, while we were all waiting for food, I was struck with these horrendous stomach pains that I had never experienced in my life. I was really scared ; it was like my insides were going to explode...I just wanted to poke a hole in my side and deflate/remove whatever little mythical horse was kicking the inside of my torso from multiple directions :P I later found out that this was what gas cramps felt like, and little did I know that these were going to become a regular part of my life (as in, 2-3 nights per week, without fail) for the next few years. They disappeared, as if magically, when I stopped eating gluten.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,146
    • Total Posts
      939,919
  • Member Statistics

    • Total Members
      66,132
    • Most Online
      3,093

    Newest Member
    Whhyyy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes I eliminated high glycemic foods. Eating only small amounts of carbs. No fruits, added sugars, starchy grains. Eating lots of fibrous veggies. Eating olive oil, as I don’t seem to tolerate the saturated fats or MCT oil. Allergic to nuts and seeds unfortunately.
    • Just wondering if you have an update at all? Going through the same thing at the the moment with my type 1 14 yr old. I would be interested to know what your gi said and how your daughters doing now? xx
    • Please check the date on post, you just responded and tried talking to a person from 7 years ago. On consideration to the subject Poatoes are a huge flare factor for my UC and cause my blood sugar to sky rocket...I am not even diabetic but for some reason potatoes (hash browns) that I tried a few months ago with some eggs shot it up over 400. not even a control test with table sugar managed that.
    • Have you tried eliminating high glycemic foods? Fruits, added sugars, starchy grains, potatoes. etc? Also adding in slow digesting fibers and fats can prevent insulin spikes, MCT oil is also known to help and protein. Many find consuming nuts and seeds higher in fiber early on in the meal or before a meal can slow down insulin responses and prevent spikes. I always tend to eat a hand full of whole shell pumpkin seeds, hemp seeds, cocoa nibs, etc. while fixing my food, this gets me starting to feel fuller sooner, and seems to help in over all down the road. I know I had some references somewhere to these. I know I read somewhere about the antioxidants in in whole shell seeds like pumpkin and hemp also helped the body regulate insulin levels.
    • Dear AWOL Cast Iron Stomach, Your husband is right bread is bad for you. Of course it's more than bread and gluten, until now it was amateur hour trying to self diagnose and tame this "lion". However they let you down. You slipped through the cracks over and over again it is not your fault your not the Dr. You made mistakes and errors acting like a celiac , not knowing for sure you were, and not feeling like you could fully claim to be or reach out for support . Now you know your husband was closer than any Dr. up until now to determine your illness. Now something is in your record, now hopefully you will be dismissed less,respected more, maybe they will realize its an actual condition going on- not all in your head. Will they? Who knows! Do you care? This is now official, now explained, you not only have to give up gluten, but milk, and corn. In fact give up 98% of processed anything. The cluster of lifetime symptoms were not  "just you", "in your head", "you are not a difficult patient", "when the Dr or nurse looks at you like a nut job you don't have to feel the dismissiveness and condescension. It's an illness and nothing to be shameful of  what is shameful is they and their colleagues missed you failed you. In fact being missed for 4 decades is unjust to you. You were missed time and time again from age 5 to 43, decade after decade after decade, symptom after symptom. It's not that you didn't try from the 5 year old begging to go to the Dr, to the 20 going to the hospital again for another bout of gastroenteritis hoping to get an IV, to the thirty year old saying something is wrong why is this happening, to the forty something a restaurant fed me gluten when I asked for gluten-free, I have been gluten free for 3 1/2 years ,  I have more symptoms and pain than before . I felt so good for those gluten-free years- please help me-make it stop. So many things explained it makes you experience a range of emotions. Grateful: Relief and gratefulness someone finally agreed to send you to someone to test you. She saw past the other diagnosis' and the albatross IBS diagnosis. All the ages and stages of symptoms are explained they all fit. Everyone of them! Someone else also has had them. You are not alone. Read the forum-you fit like a glove. Anger: Anger for the way you have been treated by the medical community, family, some ex boyfriends, friends and coworkers. Anger for the length of time you endured this. Hurt: Hurt for the times people said unkind things to you when you were symptomatic or flaring . you are experiencing symptoms that change your body people are rude to congratulate you on a "pregnancy" you didn't announce or ask why you are not slim when you hardly eat. you are not over emotional -  you are suffering from neuro symptoms, you are not making this up for attention Sad & Guilty: Can I work again? Do I want to work again? What kind of work can I do now? Can I find a job and work PT from home? You didn't envision this your husband having to be sole bread winner now what? I am overwhelmed thinking about this-stop? You now have closure and know how and why you lost your first pregnancy. You now know why you were high risk, complications,  with your children in Pregnancy & Delivery that they couldn't be explained back then It explains why in pregnancy you lost weight and why your morning sickness was extreme and seemed to last longer than anyone you knew,  that your Puppp rash was likely misdiagnosed DH It is not your fault none of it. Please forgive yourself for what you did not know. Your children forgive you. Believe them when they say its not your fault. You can cry, but you can no longer blame yourself. You are a good mother just one with an illness your children will learn to accept. Withdrawn: Why are you withdrawing from your husband? Should you ask him if he wants a divorce? Should you push him away? You didn't know before marriage what was happening you knew something autoimmune was brewing shortly after, but nothing showed on tests. Was this unfair to do to him? Doesn't he deserve someone better? Someone well? Now you can't retire and travel the world as society retirement cliché dictates. Can you afford this illness ? How will this financially impact your spouse, your family?. Why did you do this to this poor man? You are so selfish, you wanted marriage and kids, but was this fair to them? Don't your kids deserve a healthier mom? How will this impact them? Oh my gosh are they going to get this too? Will they grow to resent you? Your illness and diet has taken over their lives! Oh gosh no one say hi to me-please. I hate people and I am too sick to pretend and be fake friendly today. I don't want to tell you I am ill. I don't want to talk about this. I have to absorb this. I hate you people for being healthy. Don't tell me I don't look well. I will snap, I don't want to snap, I am irritable ,and don't feel well. Just keep giving off the unapproachable vibe keep them away.  Am I strong enough to do this? Acceptance: Calm down the inflammation, lack of nutrients, and GI damage is messing with your head. Your husband said for better for worse. Your kids have no choice you are their mother and you are a good mom -you have always been, always will be even on your worst day. If they get this they will be ok. You are strong enough to do this you are just ill and most importantly you must remain here in case they get this so you can guide them and be there for them. Got it? Go on the forum you are not alone it will be ok. You will get this lion back in the cage and manage it. It will be ok. If you can't travel in retirement one day you will find other hobbies or things to occupy your time. He's not going to leave you over this. If he does it will be ok. You'll manage-you always do. You have an answer, you knew it was coming, keep reading, learning, seeking support, and one day it will all work out. You will process all this and will be at peace-until then keep going and above all AVOID GLUTEN!    
  • Upcoming Events