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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Age Did Everyone Begin To Have Symptoms?
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Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Edited by GottaSki
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Which symptoms?

Classic? Never

Gastro? varied until sustained at 32+ must add I had no idea what "normal" bowel movements were

Autoimmune? varied until sustained at 28+

the other several dozen that I had? entire life - pictures as toddler with cracker in hand - crazy bloat

I don't mean to dismiss - just not sure what your question is.

Edited to add...when I had symptoms

Any symptoms for Celiac.

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12 months.

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Mostly all my childhood. More severe at 18. Sustained since 26. I am now 29.

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Alot of my depression and anxiety developed early when I still lived with my family. Around 20 the mental health issues ramped up. Did some heavy drinking during those years. First miscarriage in 1990, first child born in 1993 (also when hypo hit). Second child in 1995. I always had a problem with constipation since teens. After pregnancies all the digestion issues came on strong. Then year after year more stuff. Monster migraines, Arthritis, periformis syndrome, sacroilitis, degenerative disk, hemorrhoids out of control, Sicca symptoms, fibromyalgia (mine is skin surface pain), stiffness in all joints, carpel tunnel (I believe from all over inflammation) and now cancer. I was only diagnosed celiac 5 months before the cancer.

Resolved issues. Had hemorrhoids operated on, all digestive issues resolved, migraine only when cc'd, whole body inflammation is less. Fibro surface pain is less often. Have an appetite now. Carpel tunnel resolved, I believe, as a decrease in inflammation.

I still have a lot of fatigue and weakness issues but I believe that is related to a different condition.

Best of luck,

Colleen

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I had mononucleousis when I was 19 and in college. After that I noticed, unending fatigue, bloating on occassion, and sensitivities to perfume and cigarette smoke. My appetite had unusual swings from famished constantly, to a severe lack of appetite. The symptoms gradually got more and more noticeble, but I think I was numbed either by extreme fatigue or lack of vitamin B. Gradually, the bloating and fatigue overcame me and did not go away.

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From the time I was born I was pale, skinny and had dark circles under my eyes. I guess around age four or five I had to have all my teeth capped because of "milk rot". At six I was ill for about a year: mono, tonsillitis, chicken pox. Just seemed to catch everything. After that, migraines, stomach isssues here and there, in early twenties abdominal pain. I didn't get diagnosed until 35 years old, two months ago.

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No problems at all until I got pregnant with my second child (age 38). I went from going to the doctor once a year (just for annual physical) to going in every few months with really random symptoms. (cardiac, neuro, GI, etc.) It got to the point where my doctor just thought I was making stuff up because nothing ever showed up on the many, many expensive tests they ran. When my son was diagnosed (2nd child - coincidence?) at age 5 I got tested and was positive. I had a negative biopsy, but once I started the diet, my health returned. It was amazing. I wish someone had thought to suggest it much, much sooner. I realize 5 years is not bad compared to others, so I really can't complain.

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I was 49... no other celiacs in my immediate or extended family. I had symptoms for about 2 months and was diagnosed by blood tests. Middle daughter was diagnosed at about age 26. Then youngest daughter was diagnosed a few years later at about age 27. And finally, oldest daughter was diagnosed at age 32. Still none of my siblings or extended family has it.

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According to my baby records I was born on Sept 21. I was given oats and barely in formula on Oct 25th and Oct 26th I developed a severe allergic rash. That was 39 years ago so the connection was sketchy. That is the first reported reaction I had to Gluten. So it's safe to say I was drawn this way.

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Looking back I've had symptoms for 20 years but I could always attribute them to something else. In January 2012 my colon had enough and shut down. I lost muscle control of my colon and needed laxatives to get any movement at all. It took about a month to diagnose it properly as celiac. I had 2 bloodiest, both negative. My doctor wasn't getting it. I decided to go gluten free, did it for a week and got back control of my colon and I felt so much better. Then I ate a hamburger and onion rings and all my symptoms came back. I consumed gluten for almost 42 years till my body said enough.

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I had "C" as soon as pablum was introduced and was into the doctor in my early childhood because of my chronic stomach aches. I can't remember as many stomach pains when i was a teen (migraines started instead) but they came back as an adult. I developed other autoimmune diseases, and other symptoms until I figured it out and got myself diagnosed this past year at age 38.

... 38 years I guess.

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No clue as I have never felt ill from eating gluten. But I started suspecting something (not celiac at the time) when I had miscarriages. Then three years ago I got bronchitis then pneumonia. After that my celiac fog started - I believe my illness may have triggered it, as did an accident that left me in constant chronic pain. I have been diagnosed with fibromyalgia but believe that it is related to/caused from celiac. Not getting a bit better, even 1.5 years off gluten but there is always hope! :)

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I wish I knew! I keep trying to remember when things first started... Bread has bothered me for a long time... I always felt tired after eating it but that was it? Is that a celiac symptom?

Apart from that I would say my symptoms have come on really slowly. So slowly that I struggle to pinpoint it exactly. Apart from bread 'bothering' me, I guess I first started not feeling right about 5 or 6 years ago. So that would've made me 33/34 years of age.

I'm still struggling with the fact that I may have had this for a very long time... Or if not, something triggering it. It's a horrible idea to think that something I did (stress) might have started this horrible disease.

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I remember the very day it seemed to all begin. Around age 10 or 11, I was eating out with my family and, while we were all waiting for food, I was struck with these horrendous stomach pains that I had never experienced in my life. I was really scared ; it was like my insides were going to explode...I just wanted to poke a hole in my side and deflate/remove whatever little mythical horse was kicking the inside of my torso from multiple directions :P I later found out that this was what gas cramps felt like, and little did I know that these were going to become a regular part of my life (as in, 2-3 nights per week, without fail) for the next few years. They disappeared, as if magically, when I stopped eating gluten.

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