• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Best Leaky Gut Healing Diet To Follow
0

35 posts in this topic

JERSEYANGEL -

Just curious, were you able to figure out why you were having a problem with the chicken?

No, not specifically. I think that, as happens sometimes, I was reacting to a lot of things while my gut was still damaged and trying to heal.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The operative word is "management" . Not cure.

Until the connection to gluten was discovered by doctors in the Netherlands after World War II, no one really knew what sparked the autoimmune response.

I think it was 1952, unfortunately there is so much more to learn about this disease and we, along with millions of others, are proof that the conventional treatment for Celiac Disease is grossly inadequate. The current conventional treatment for Celiac is antiquated and ineffective long term...There is a real need for more research to be done.

To say adopting the SCD diet after a celiac diagnosis will "cure" celiac disease is simply not true.

Does the SCD help alleviate more symptoms for many people? YES!

And people should try it if they wish to see if it will help.

I am not arguing this point with you at all.

Phew...that's a relief. ;) I think it's likely a very individual thing...some claim they are cured.

I hope you see the distinction I am trying to make here.

Best wishes to you!

Indeed I do!

Clearly there is so much more to be learned about this disease. I'm not sure I actually said "I" believe the SCDiet will cure Celiac, but that Dr. Haas was known in his day as having discovered a cure. The banana diet is fun to read about. In the end the SCDiet was what he concluded was resolving his patients intestinal issues, bananas were not a big part of it, except that eating very ripe ones is on the allowable food list. Elaine Gottshall gives a very good explanation of the science behind why his diet works in her book Breaking the Vicious Cycle.

I wish my drs over the years had been better equipped to instruct me in the area of diet...most of us are left on our own devices to figure it out. So it's a relief to have some practical advice with scientific backing.

Let's not be naive about the popularization of certain kinds of treatments. The gluten-free food industry is a good example of that...over priced packaged foods, many of which could be classified 'junk food'...it's a total money grab. I'm leary of any 'remedy' that is a marketing scheme.

For me personally Celiac disease was not the first autoimmune disease I developed, which I'm more and more convinced was caused by leaky gut syndrome...(but where did the leaky gut come from? did gluten cause the leaky gut or did the leaky gut cause celiac disease?---I lean strongly toward the latter explanation.) The remedy for leaky gut is starving off pathogens with special diet and other means and rebuilding healthy intestinal flora with probiotics. Doing this seems (for me personally) to be reversing all my autoimmune diseases...slooowly. Others have experienced the same thing.

(We seem to have more than one train of thought happening in this thread and I apologize to the original poster if this is veering off into outer space. We could move it elsewhere.)

0

Share this post


Link to post
Share on other sites

I do not think it has gone so terribly off topic at all. The discussion of various approaches to healing a leaky gut is very much on topic.

But, the link you posted to---does indeed say the SCD diet cures it--along with this

"Curing celiac disease depends on repopulating the intestinal tract with helpful flora microbes."

While I agree probiotics are necessary to repopulate the good gut flora,

I do not see how this is a "cure" for celiac. It is part of the treatment in getting the symptoms under control.

Everyone should do what they feel is best to feel well.

Kind regards.

0

Share this post


Link to post
Share on other sites

I think there is a difference between "curing Celiac" and "healing from Celiac". These diets, probiotics, etc can help you "heal" but they are not a "cure". There is no reputable medical/scientific data that a Celiac can go back to eating gluten with no ill effects once thier gut is healed.

0

Share this post


Link to post
Share on other sites

Exactly--there is currently no cure for Celiac Disease. There are things people can do to help with or even eliminate the symptoms of the disease, but the underlying cause will always be there.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Yep...no cure and many different dietary changes and combos of supplementation can produce results for many -- the key with all is removing all gluten first, then make any other changes needed to help the damaged small intestine heal and stay healed!

0

Share this post


Link to post
Share on other sites

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who were symptom free after returning to a regular diet, which he and they considered evidence of a cure. I think it's a fabulous bit of information worth looking into. If I ever get to the point where I feel my body is healed and I can resume a diet that is healthy (which would be far from the typical american diet btw) I would also consider myself cured of the disease. Ha...hasn't happened yet! I agree with you all who say 'there is no cure' but I would qualify it by saying, "To date conventional western medicine has not recognized a cure for celiac disease"...however that doesn't mean there is no cure for it, or that it is incurable.

0

Share this post


Link to post
Share on other sites

Perhaps we are haggling over words, but the words we choose to use on this forum are important as there are many newly diagnosed individuals who read "cure" which leads to more confusion during an often very confusing transition.

In my opinion:

"Cured" would mean someone with Celiac Disease would both heal and be able to safely ingest gluten for life.

"Healed" means health has been restored by healing the damaged small intestine. Often this requires removing more than gluten - while it is possible to get some food intolerances back into the diet - for Celiac Disease gluten can never be ingested safely - well at least until our friends down under work the kinks out of theiir vaccine research.

0

Share this post


Link to post
Share on other sites

Yes, but I think the point some are trying to make is that just because patients felt "symptom free" doesn't mean they weren't redoing all the damage to their systems. Once completely healed, I'm sure plenty of people could go back to eating whatever they wanted with no symptoms...however, months or years down the road, they would be right back to where they started or worse. Patients felt better because they stopped eating the offending foods and healed their systems. That's like drinking small amounts of poison every day and feeling terrible...stop drinking it and you will miraculously feel "cured". Just my opinion. I had a skin condition too that is HEALED since going gluten-free. However, it is not CURED because if I were to go back to eating that way everyday, my skin condition would return.

0

Share this post


Link to post
Share on other sites

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who were symptom free after returning to a regular diet, which he and they considered etevidence of a cure. I think it's a fabulous bit of information worth looking into. If I ever get to the point where I feel my body is healed and I can resume a diet that is healthy (which would be far from the typical american diet btw) I would also consider myself cured of the disease. Ha...hasn't happened yet! I agree with you all who say 'there is no cure' but I would qualify it by saying, "To date conventional western medicine has not recognized a cure for celiac disease"...however that doesn't mean there is no cure for it, or that it is incurable.

Celiac is an autoimmune disease. No matter how well you get yourself feeling--which is totally possible--the disease itself is still there. I feel perfectly normal unless I get accidentally cross contaminated. Took years to get to this point, though, and I would never consider relaxing the "no gluten ever" rule.

Plus, with Celiac, symptom intensity does not necessarily correlate with damage.

You have a right to eat whatever you want, but Celiac at this point can't be cured--there is a lot we still don't know about the disease, but this we do know for sure.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,420
    • Total Posts
      930,452
  • Member Statistics

    • Total Members
      63,844
    • Most Online
      3,093

    Newest Member
    Jennifer S.
    Joined
  • Popular Now

  • Topics

  • Posts

    • Welcome to the forum.  First, you need to get copies of your celiac test to confirm you actually had it done and what the results were.  Second, to confirm a diagnosis, you must obtain biopsies via an endoscopy.  Were the doctors gastroenterologists?  Third you need to research  celiac disease.  Yes, you can be asymptomatic, but could still have instestinal damage as the small intestine is vast. here is a good place to start:  http://www.cureceliacdisease.org/screening/  
    • That's good to know about Texas Children's, unfortunately I don't believe they accept our insurance. Our former pediatrician joined with one of their medical groups and we had to find a new one due to insurance. I'll check out their site though.
    • 9 months ago I went to my doctor for normal blood work.  She called me to tell me everything looked great, but o yeah, my gluten sensitivity levels were extremely high.  I should probably stop eating gluten since it looks like I have celiac.  She hung up and I never heard from her again.  I cut out gluten completely, even though I have never experienced one single symptom of celiac.  9 months later, I decided to reach out to another doctor to get a second opinion, as I experienced absolutely zero change on 9 months of strict gluten free diet.  All this doctor did was request the results from the previous doctor, tell me it is confirmed I have celiac, and hung up the phone.  This angers me tremendously on two counts.  One, I have absolutely zero symptoms of celiac, and would NEVER know if I was "glutened".  Two, the complete lack of information or support from both doctors is horrifying to me.  And finally, I simply do not believe the diagnosis and as considering just starting to eat a normal diet again.  I would never know the difference.  I am really just venting because this situation upsets me so much, and I have suffered mentally and socially from going gluten free.  Since I have absolutely zero symptoms, even if I was actually celiac, I highly doubt anything would ever come of it if I continued to eat gluten.  I could just pretend I never heard from either terrible doctor and go on living my life.  Someone has to have been in the same situation as me, right?
    • Texas children's hospital in the med center has a celiac center now.   https://www.texaschildrens.org/departments/celiac-disease-clinic Good luck!  
    • this is a very common subject on here.  personally, most of my tests were negative, but i did the same thing you did (stopped eating gluten before the tests) my gi advised me to continue eating gluten free because i was so malnourished and when i stopped the gluten i actually began to gain weight.  in other words, i think she was afraid for me to do the challenge bc it might kill me lolz.  some people want a definite dx if they have kids that need to be tested in the future, some will not follow a strict g//f diet without a firm diagnosis (they think they can cheat just bc they were never formally diagnosed) what happened with my scope is the dr saw evidence of damage.  that and my response to the diet were enough for me.  she advised me to stay gluten-free and i agreed.  it's been tough sometimes, but i never purposely cheated (that's how near death i was - swore i was dying of the big 'c'.......what a relief to not have that and my 'chemo' is 'impasta'.  or fake bread. )  welcome to the forum and good luck with whatever you choose 
  • Upcoming Events