• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Best Leaky Gut Healing Diet To Follow
0

Rate this topic

35 posts in this topic

Recommended Posts

JERSEYANGEL -

Just curious, were you able to figure out why you were having a problem with the chicken?

No, not specifically. I think that, as happens sometimes, I was reacting to a lot of things while my gut was still damaged and trying to heal.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The operative word is "management" . Not cure.

Until the connection to gluten was discovered by doctors in the Netherlands after World War II, no one really knew what sparked the autoimmune response.

I think it was 1952, unfortunately there is so much more to learn about this disease and we, along with millions of others, are proof that the conventional treatment for Celiac Disease is grossly inadequate. The current conventional treatment for Celiac is antiquated and ineffective long term...There is a real need for more research to be done.

To say adopting the SCD diet after a celiac diagnosis will "cure" celiac disease is simply not true.

Does the SCD help alleviate more symptoms for many people? YES!

And people should try it if they wish to see if it will help.

I am not arguing this point with you at all.

Phew...that's a relief. ;) I think it's likely a very individual thing...some claim they are cured.

I hope you see the distinction I am trying to make here.

Best wishes to you!

Indeed I do!

Clearly there is so much more to be learned about this disease. I'm not sure I actually said "I" believe the SCDiet will cure Celiac, but that Dr. Haas was known in his day as having discovered a cure. The banana diet is fun to read about. In the end the SCDiet was what he concluded was resolving his patients intestinal issues, bananas were not a big part of it, except that eating very ripe ones is on the allowable food list. Elaine Gottshall gives a very good explanation of the science behind why his diet works in her book Breaking the Vicious Cycle.

I wish my drs over the years had been better equipped to instruct me in the area of diet...most of us are left on our own devices to figure it out. So it's a relief to have some practical advice with scientific backing.

Let's not be naive about the popularization of certain kinds of treatments. The gluten-free food industry is a good example of that...over priced packaged foods, many of which could be classified 'junk food'...it's a total money grab. I'm leary of any 'remedy' that is a marketing scheme.

For me personally Celiac disease was not the first autoimmune disease I developed, which I'm more and more convinced was caused by leaky gut syndrome...(but where did the leaky gut come from? did gluten cause the leaky gut or did the leaky gut cause celiac disease?---I lean strongly toward the latter explanation.) The remedy for leaky gut is starving off pathogens with special diet and other means and rebuilding healthy intestinal flora with probiotics. Doing this seems (for me personally) to be reversing all my autoimmune diseases...slooowly. Others have experienced the same thing.

(We seem to have more than one train of thought happening in this thread and I apologize to the original poster if this is veering off into outer space. We could move it elsewhere.)

Share this post


Link to post
Share on other sites

I do not think it has gone so terribly off topic at all. The discussion of various approaches to healing a leaky gut is very much on topic.

But, the link you posted to---does indeed say the SCD diet cures it--along with this

"Curing celiac disease depends on repopulating the intestinal tract with helpful flora microbes."

While I agree probiotics are necessary to repopulate the good gut flora,

I do not see how this is a "cure" for celiac. It is part of the treatment in getting the symptoms under control.

Everyone should do what they feel is best to feel well.

Kind regards.

Share this post


Link to post
Share on other sites

I think there is a difference between "curing Celiac" and "healing from Celiac". These diets, probiotics, etc can help you "heal" but they are not a "cure". There is no reputable medical/scientific data that a Celiac can go back to eating gluten with no ill effects once thier gut is healed.

Share this post


Link to post
Share on other sites

Exactly--there is currently no cure for Celiac Disease. There are things people can do to help with or even eliminate the symptoms of the disease, but the underlying cause will always be there.

Share this post


Link to post
Share on other sites

Yep...no cure and many different dietary changes and combos of supplementation can produce results for many -- the key with all is removing all gluten first, then make any other changes needed to help the damaged small intestine heal and stay healed!

Share this post


Link to post
Share on other sites

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who were symptom free after returning to a regular diet, which he and they considered evidence of a cure. I think it's a fabulous bit of information worth looking into. If I ever get to the point where I feel my body is healed and I can resume a diet that is healthy (which would be far from the typical american diet btw) I would also consider myself cured of the disease. Ha...hasn't happened yet! I agree with you all who say 'there is no cure' but I would qualify it by saying, "To date conventional western medicine has not recognized a cure for celiac disease"...however that doesn't mean there is no cure for it, or that it is incurable.

Share this post


Link to post
Share on other sites

Perhaps we are haggling over words, but the words we choose to use on this forum are important as there are many newly diagnosed individuals who read "cure" which leads to more confusion during an often very confusing transition.

In my opinion:

"Cured" would mean someone with Celiac Disease would both heal and be able to safely ingest gluten for life.

"Healed" means health has been restored by healing the damaged small intestine. Often this requires removing more than gluten - while it is possible to get some food intolerances back into the diet - for Celiac Disease gluten can never be ingested safely - well at least until our friends down under work the kinks out of theiir vaccine research.

Share this post


Link to post
Share on other sites

Yes, but I think the point some are trying to make is that just because patients felt "symptom free" doesn't mean they weren't redoing all the damage to their systems. Once completely healed, I'm sure plenty of people could go back to eating whatever they wanted with no symptoms...however, months or years down the road, they would be right back to where they started or worse. Patients felt better because they stopped eating the offending foods and healed their systems. That's like drinking small amounts of poison every day and feeling terrible...stop drinking it and you will miraculously feel "cured". Just my opinion. I had a skin condition too that is HEALED since going gluten-free. However, it is not CURED because if I were to go back to eating that way everyday, my skin condition would return.

Share this post


Link to post
Share on other sites

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who were symptom free after returning to a regular diet, which he and they considered etevidence of a cure. I think it's a fabulous bit of information worth looking into. If I ever get to the point where I feel my body is healed and I can resume a diet that is healthy (which would be far from the typical american diet btw) I would also consider myself cured of the disease. Ha...hasn't happened yet! I agree with you all who say 'there is no cure' but I would qualify it by saying, "To date conventional western medicine has not recognized a cure for celiac disease"...however that doesn't mean there is no cure for it, or that it is incurable.

Celiac is an autoimmune disease. No matter how well you get yourself feeling--which is totally possible--the disease itself is still there. I feel perfectly normal unless I get accidentally cross contaminated. Took years to get to this point, though, and I would never consider relaxing the "no gluten ever" rule.

Plus, with Celiac, symptom intensity does not necessarily correlate with damage.

You have a right to eat whatever you want, but Celiac at this point can't be cured--there is a lot we still don't know about the disease, but this we do know for sure.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,156
    • Total Posts
      939,972
  • Member Statistics

    • Total Members
      66,141
    • Most Online
      3,093

    Newest Member
    Victoria Zoey
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you all for your great suggestions! Will take all of it on board
    • Dairy is a major issue with celiac, due to the enzymes to break it down being produced by the villi tips being mostly destroyed or damaged first. Eliminating for a few months may be critical. I might suggest digestive enzymes, I am taking Jarrow Enzymes at 2x the dose, Jarrow Bromelain, and sometimes some extra papaya enzymes. I have issues breaking down the large amounts of foods I consume otherwise (I am trying to body build bulk). I also would look at some protein powders if I was you. Vegan protein powders are easy to digest most times an can be great. Pumpkin Seed protein is the easiest on the stomach, being a balanced PH, high in zinc, iron, magnesium, it is very good for recovery and putting on weight in addition to others. Might also consider blends, try not to get anything with too much gums in it. I like NutraKey V-Pro and MRM Veggie Elite. I also buy a whole list of others. On her food, veggies, and meats should be cooked to almost mush, try using a crockpot and stewing them. This will make them easier to digest and break down.
      Is she having any other issues? Like Bowl issues? I find I can loose hunger if I back up, and I have to take magnesium like crazy and eat a whole lot of fiber to keep it moving. Take it you already read the newbie 101 section about getting all new cookware, and deconing the house? Bit of a extra tip I swear by to everyone, Freezer Paper/Butcher Paper. Makes a nice clean prep surface and easy clean up.
    • Hi Kirsty, Gluten messes me up in a lot of different ways, some of which I recognise in your first list. You can find a massive list of symptoms associated with celiac here: https://glutenfreeworks.com/gluten-disorders/symptom-guide/ and it may be that some of your other symptoms can be found there. It's also worth searching this forum as it's been going for a long time, in internet years at least.  It certainly messed with my blood sugar and like you I'd take tests which didn't reach the extreme values, but that didn't stop the symptoms. The only way I realised this was when I removed it from my diet, for other reasons and found that a load of different other symptoms also resolved.  After this happened I then went back on to gluten for a test, a gluten challenge. My symptoms came back, but my blood test and endoscopy were negative for celiac. My consultant told me to avoid gluten for life.  In your case you need to decide whether to push for more celiac testing or not. If not, please consider fully excluding gluten. My own experience is that it's not something that you can have a little of and get a health benefit, you are still engaging your auto immune system. Obviously if you're experiencing extreme symptoms when you remove it you should do it in consultation with your doctor, but maybe if you could just get through those difficult first few days you may experience relief from some of your symptoms? Best of luck matt    
    • So... his gp did a genetic test - positive - and has referred him to a gi. His paed and diabetes educator have ordered the genetic test and another coeliac screen for 3 months and then they will decide if he needs to see a specialist because they're still convinced its most likely a false positive. Why test at diagnosis of diabetes if they don't believe the results anyway? Why is this disease so confusing for the medical world?  Anyway we're sticking with the gp and hopefully it won't be too long before he gets into a gi.  It seems that blood tests don't matter in any situation. If they can find any excuse to invalidate them they jump at it.  Makes me so infuriated I just laugh about how I already seem to know more. 
    • Thank you! I have been considering lactose, though I'm reluctant to remove more things from her diet. She has not had the classic lactose intolerance symptoms of diarrhea, gas, or bloating, though I know she could still have trouble with it. She's been on the medication for less than a week, so it's not the cause of her symptoms. I did not call the manufacturer but it is listed as safe on glutenfreedrugs.com (under the brand name periactin). It was prescribed by a pediatric GI who specializes in celiac. The first question my daughter had for the doctor was whether the medication is gluten-free, and she told us it was.   
  • Upcoming Events