• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help With Cp Results?
0

9 posts in this topic

My daughter had a celiac panel done in 2010. I was told the results were neg. so we left it at that. She has been having API s again so I had them run another panel, new doctor. I don't have the new results back yet but here are the ones from 2010. Can you tell me what you think?

Gliadin Antibody IgA - H 83 normal high Less 20

Gliadin Antibody IgG - 19 normal,high less 20

Tissue Trans AB IgA - H 28 normal high less 20

Tissue Trans AB IgG - 18 normal high less 20

And yes I did bring these results to the new doctor -though her doctor was more consernd about the urinalysis report so she focused on that. They are supposed to be calling me,with an appointment for a GI referral today Also

I had my son tested in 2010, all his results were less than 20 excepts for the Gliadin Antibody IgA which was 27. I will be bring him back to have him rested. He has been having increased stomach pains for the past month. My son also was dx with leukemia at the age of 21, received chemotherapy for 3 years, is now cancer free. My youngest daughter also had leukemia, dx at the age of 3 1/2 , passed away 2007 at the age of 11 due to complication from the bone marrow transplant. My oldest daughter has had a few stomach issues, nothing too bad, will also have her tested. All my labs were normal. We have suspected celiac or crohns with my husband though he has never been tested

The panel was ran on Friday afternoon, I'm not sure how long it takes for results. I will be calling when they open this morning. .

H. Pylori AB Negative

My daughter is also having some kidney issues the last few weeks, currently waiting on repeating an urinalysis. I won't list those labs unless someone here knows something about those results. From the searching I've done this weekend I found that celiac can be linked to kidney disease?

Thank you!

Edited by Rgd
0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Uhm those results are not negative, two are clearly flagged as "H" for high. Can you post the reference range of the tests? I am assuming the tests are the standard negative under 20, your IgA specific antibody reaction to gluten is high positive, and the tissue transglutaminase is also positive showing there is damage in the intestine. Put that together and you have a damaged intestine due to a negative reaction to gluten. I bet your new results will be much higher, hopefully they tested the deamidated versions this time, let us know the results.

I am just throwing this out there but because those results were obviously positive (especially the gliadin IgA) and your doctor never reported that to you, upon your daughter actually being diagnosed, you could have a malpractice law suit in your hands. Especially if you can link further complications due to being misdiagnosed.

0

Share this post


Link to post
Share on other sites

Can you give us the range of the tests? What is considered normal, and whatnot? All labs are a bit different.

0

Share this post


Link to post
Share on other sites

Have you brought those test results to her new doctor? Do bring those to that doctors attention. She should have been diagnosed when the tests you posted were run. Yes celiac can impact kidney function (and many other organs) but once she goes gluten free her kidney function can return to normal. I hope you are able to get her diagnosed quickly and do test every other family member as well.

0

Share this post


Link to post
Share on other sites

Can you give us the range of the tests? What is considered normal, and whatnot? All labs are a bit different.

I added the normal range above. I'm not sure if they added the "deamidated" version, not sure what that is?

0

Share this post


Link to post
Share on other sites
Ads by Google:


The deamidated version is more specific to celiac, the older anti-gliadin tests are not very accurate, especially the IgG version. However the IgA is still sensitive to celiac which is what came back high positive.

These tests would be necessary for a more accurate diagnosis:

Deamidated gliadin IgA

Deamidated gliadin IgG

Endomysial Ab

As I said before, your daughters results were strong positive in reaction to gluten and positive to the gut damage test, you are going to need to run the three tests I just posted as well as possibly an endoscopy if it is necessary.

0

Share this post


Link to post
Share on other sites

The deamidated version is more specific to celiac, the older anti-gliadin tests are not very accurate, especially the IgG version. However the IgA is still sensitive to celiac which is what came back high positive.

These tests would be necessary for a more accurate diagnosis:

Deamidated gliadin IgA

Deamidated gliadin IgG

Endomysial Ab

As I said before, your daughters results were strong positive in reaction to gluten and positive to the gut damage test, you are going to need to run the three tests I just posted as well as possibly an endoscopy if it is necessary.

My daughter had a celiac panel done in 2010. I was told the results were neg. so we left it at that. She has been having API s again so I had them run another panel, new doctor. I don't have the new results back yet but here are the ones from 2010. Can you tell me what you think?

Gliadin Antibody IgA - H 83 normal high Less 20

Gliadin Antibody IgG - 19 normal,high less 20

Tissue Trans AB IgA - H 28 normal high less 20

Tissue Trans AB IgG - 18 normal high less 20

And yes I did bring these results to the new doctor -though her doctor was more consernd about the urinalysis report so she focused on that. They are supposed to be calling me,with an appointment for a GI referral today Also

I had my son tested in 2010, all his results were less than 20 excepts for the Gliadin Antibody IgA which was 27. I will be bring him back to have him rested. He has been having increased stomach pains for the past month. My son also was dx with leukemia at the age of 21, received chemotherapy for 3 years, is now cancer free. My youngest daughter also had leukemia, dx at the age of 3 1/2 , passed away 2007 at the age of 11 due to complication from the bone marrow transplant. My oldest daughter has had a few stomach issues, nothing too bad, will also have her tested. All my labs were normal. We have suspected celiac or crohns with my husband though he has never been tested

The panel was ran on Friday afternoon, I'm not sure how long it takes for results. I will be calling when they open this morning. .

H. Pylori AB Negative

My daughter is also having some kidney issues the last few weeks, currently waiting on repeating an urinalysis. I won't list those labs unless someone here knows something about those results. From the searching I've done this weekend I found that celiac can be linked to kidney disease?

Thank you!

I got the results of my daughters cp panel. I don't have a copy of them yet, nurse said it was negative. She read a few values off to me, the ttIgA was less than 2 , Gliadin IgA was 5 last time was 83. Now she was on flagly and serious for 1 day- would that effect the results at all ?? I'm happy if those are the true results but the results are way different than the ones taken in 2010, something doesn't seem right?

Sorry that should have said steriods not serious, she had 30 mg of steriods in her system and took 2 doses of flagyl , each tablet 500 mg, the day before the blood draw. The little searching I did does show that steriods can show a false neg, but would 30 mg be enough to mess up the results?

Just got off phone with nurse, they have schechduled an appoint for next week with a GI doctor. I did call that doctor and ask about the steriod issues, they want the labs drawn again so I will have that done next monday and hopefully have the results by Thursday. Does anyone see a GI doctor at st Louis children's ?

Edited by Rgd
0

Share this post


Link to post
Share on other sites

Steroids in prolonged use can effect the results, I doubt that one time before would but I can't be sure on that. Flagyl would not cause false negatives, if anything it would cause false positives since it is notoriously hard on the small intestine.

I am at a loss at this point, I am not sure what to make of results being so high than dropping, perhaps your daughter is an example of how inaccurate Gliadin AB's are. If your daughter had celiac and was eating gluten there is no reason for the antibodies to drop like that, active disease simply does not do that.

My only suggestion would be to retest using the methods I posted above as well as being off steroids for a week. Also did she get tested for IgA sufficiency? What led you guys to celiac to begin with?

0

Share this post


Link to post
Share on other sites

Steroids in prolonged use can effect the results, I doubt that one time before would but I can't be sure on that. Flagyl would not cause false negatives, if anything it would cause false positives since it is notoriously hard on the small intestine.

I am at a loss at this point, I am not sure what to make of results being so high than dropping, perhaps your daughter is an example of how inaccurate Gliadin AB's are. If your daughter had celiac and was eating gluten there is no reason for the antibodies to drop like that, active disease simply does not do that.

My only suggestion would be to retest using the methods I posted above as well as being off steroids for a week. Also did she get tested for IgA sufficiency? What led you guys to celiac to begin with?

In 2010 she was having constant bad stomach pains, missing lots of school. My husband has had horrible stomach problems all his life. we're always assumed that he had colitis. He has never been tested for it though, stubborn. So they tested her knowing my husband has some thing going on. She has been eating gluten all this time. I don't know what to think with those results. She will be retested next week. So I guess I'll just have to wait and see. thank you for your help.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,506
  • Member Statistics

    • Total Members
      64,282
    • Most Online
      3,093

    Newest Member
    lyoncallies
    Joined
  • Popular Now

  • Topics

  • Posts

    • Certainly seems likely if those levels dropped due to gluten removal. I am just curious, when you had the scope eventually, were you eating it?  Are you feeling any better? 
    • 1. Double checked your antibodies? 2. Those of us with celiac have issues with some nutrients for various reasons, being either we can not absorb enough of them from our foods due to damage to intestines or the new gluten-free foods you changed to are non fortified and do not contain the nutrients you which is especially true if you eat a bunch of processed gluten-free foods. A combination of both of these can lead to extreme fatigues. I found taking Magnesium, and B-Vtitamin supplementation helps (Liquid Health Stress & Energy along with Neurological support same company, Liquid version is easy to absorb and no pills). Look into KAL Nutritional Yeast also, I use it to make condiment cheese sauces, toppings, blend it with egg whites. it contains many nutrients we are lacking and is a great supplement/food to have in your diet. 3, Look into what cycling lady mentioned, this could also be a issues. 4. Had your blood sugar checked?
    • I'm going to play Captain NCGS to Posterboy's Professor Pellagra (No doubt the Marvel and DC Cinematic Universes will soon be bidding for our services) and say that regardless of the blood test results, this: is exhibit one. You have a reaction to the gluten free diet. That doesn't necessarily eliminate fodmaps or issues with other components of wheat, but it's at least suggestive and the main reason I think you need to get back on it and give it a longer go. In fact, as I hinted at in the previous post, I'd be doing my 'goodbye gluten' top 10 croissant and bagel bucket list because I don't think you should go back to it simply based on exhibit one. It's messing with you in a way that it shouldn't. I had sciatic back pain for 20 years which I attributed to a disk injury. It was left sided and when bad travelled down my left leg following the sciatic nerve. I had all the scans, treatments, exercises etc. Nothing really worked and it was at times intensely debilitating.  Drum roll... Gluten free diet cured it. My new theory is that gluten related inflammation was localised in that area and it caused the pressure on the nerve. Now why there and not elsewhere? No idea, but it could be inflammation causing your pain? I went for several diabetes tests because I would suddenly become very weak, hungry and I would feel unwell. Weak, hot, light headed, on the verge of passing out. The tests were normal but I knew that I seemingly had a blood sugar issue. Another win for the gluten-free diet.  It sorted the tremors in my hand (begone thoughts of early onset parkinsons or ms) and the nerve twitching under my eye and etc etc. well you get the point. I've said above I sometimes wonder if I'm undiagnosed celiac but there are certain aspects of NCGS which seem to fit me and maybe you too. My digestion stomach etc is much better now but I wouldn't have said before all this that it was particularly bad. I read this http://www.bmj.com/content/345/bmj.e7982 and I have a similar experience that neuro symptoms were more apparent than digestive in the 'classic celiac' model. (more of that sort of thing here though I already sent you the Umberto Volta I think. I would be fascinated if you, your brother and myself were to do the gluten challenge and then take this test: http://www.medicaldaily.com/non-celiac-gluten-insensitivity-blood-test-392850 what the result would be. But you know what, unless the scientists put out a call for more volunteers I won't be doing it. In the search for answers, validation, certainty, it's easy to forget the real goal, feeling better. After several years on the gluten-free diet I feel better. I'm no longer thinking that the next bout of chest pain will be my last minutes on earth. I no longer worry about going blind because half my vision has gone grey, I'm not trembling, I don't have cardiac arrythmia, I don't have rheumatic pain, I don't have crippling back ache like I'm 40 years older, I don't get  faint, dizzy and heart pounding when I stand up,  I don't have brain fog, anxiety, depression (well sometimes!), painful stomach cramps, weird white tongue, rashes on my torso, horrible greasy skin on face, horrible dry peeling scalp, sores on my scalp and neck, white spots on my fingernails, I'm not sweating so much I have to douse myself in antiperspirant, I don't have all this and more and I don't have a letter from a doctor saying I have celiac and I don't give a **** about it. I don't have gluten and as the Godfather of soul would say...  I feel good  Feel good IT. You've done as much as anyone could to find an answer. Maybe there's one around the corner or maybe there'll be one in 5 or 10 years when the likes of Marios Hadjivassiliou, Umberto Volta or Alessio Fassano have completed their research. Or maybe not or never. It's in the 'nice to have' than the essential's for me now. Do the diet, note your symptoms, stay connected with your doctor so that if there is anything that sticks around suggestive of other things you're on top of it, but feel good and focus on that and enjoying life.  All the best!    
    • I think he's right. It's a hard burden at times at any age but there will be particular challenges for your daughter as kids don't want to stick out or have to be continually monitoring things like their food. Check out this advert from a UK retailer. Beware it's so sugary it could probably give a diabetic person a sugar crash! Maybe you could do similar? Just get or make a selection of kid friendly foods but don't say anything about it to your daughter, just everyone go in and start filling their plates.  If she asks you if you've done anything for her you just tell her that she can eat everything on the table. At least this would show both that choice is still available to her and that because everyone is eating the same thing that she won't feel like she's being singled out?  
  • Upcoming Events