• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ladies With Celiac Disease
0

17 posts in this topic

Hi all. this is my first post on the forum. well i heard that women are 9x more likely to get dx than men.

Is this true? if yes do we know why? I think it might just be that women are more likely to see a doctor, more likely to have insurance, and to admit certain symptoms, etc. thoughts?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It is worth noting that, in general, women are more likely than men to be diagnosed with ANY autoimmune condition. No one knows why.

0

Share this post


Link to post
Share on other sites

It is worth noting that, in general, women are more likely than men to be diagnosed with ANY autoimmune condition. No one knows why.

yeah i remember reading that somewhere too

0

Share this post


Link to post
Share on other sites

I've heard its because women are more in tune to their body and more willing to go in and find out why.

0

Share this post


Link to post
Share on other sites

My doctor said people who are high-strung are more likely to get diagnosed because of their personality. But I wonder if people with severe GI issues are more likely to be high-strung. I feel out of control when everything I eat makes me sick, so I get anxious...which means anxiety all the time until my diet is resolved. I've noticed women with autoimmune diseases do tend to be high-strung. Could there be a connection there?

0

Share this post


Link to post
Share on other sites
Ads by Google:


My doctor said people who are high-strung are more likely to get diagnosed because of their personality. But I wonder if people with severe GI issues are more likely to be high-strung. I feel out of control when everything I eat makes me sick, so I get anxious...which means anxiety all the time until my diet is resolved. I've noticed women with autoimmune diseases do tend to be high-strung. Could there be a connection there?

That makes sense. when you are stressed your body releases cortisol, which disrupts your immune system. Which may be the reason celiac disease presents itself after a period of stress or illness. I myself still get panic attacks even after being gluten free a long time :\

0

Share this post


Link to post
Share on other sites

There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease won't always progress to severe stages, take a look at the Chicago celiac center:

"Only 3% of people with the disease are diagnosed" -http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis'>http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

"The number of Americans with celiac disease would fill 936 cruise ships. Passengers on 908 of the ships won’t know they have it." - http://www.cureceliacdisease.org/

I highly doubt that of these 97 percent undiagnosed celiac's they are all just ignoring severe symptoms and suggestive blood tests (I.e- anaemia) - The disease can very well have little affect on some people and show low positive results, sometimes these low positives will go to full blown positive and sometimes it wont. Autoimmune diseases in general are a guessing game with few providing a slam dunk diagnosis. Some people will go and live a completely normal and long life with a low stage autoimmune disease that never progresses.

I would be willing to bet that around 60 percent of the general population would have at least one slightly elevated antibody test if you ran the entire disease panels on them (I have had 15 different A.I antibodies tested and there are still more). Do these tests really mean anything at the current time? Sometimes they do, sometimes they don't.

0

Share this post


Link to post
Share on other sites

I saw a few reports on TV that said women would be more prone to the autoimmune diseases than men because our immune systems are slightly different. We have to be able to shut off the immune response to a parasitic invader living inside us for 9 months. I affectionately call mine M & J. :). I don't have time to google that, but maybe you could find something along those lines as an explanation. Female hormones may be a factor, too. I don't think there is a real answer.

I have also heard that women are more likely to talk to each other, on forums, and with a doctor about health issues than men. I think women may go to doctors more regularly as they tend to see an OB/gyn every year or two.

0

Share this post


Link to post
Share on other sites

There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease won't always progress to severe stages, take a look at the Chicago celiac center:

"Only 3% of people with the disease are diagnosed" -http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

"The number of Americans with celiac disease would fill 936 cruise ships. Passengers on 908 of the ships won’t know they have it." - http://www.cureceliacdisease.org/

I highly doubt that of these 97 percent undiagnosed celiac's they are all just ignoring severe symptoms and suggestive blood tests (I.e- anaemia) - The disease can very well have little affect on some people and show low positive results, sometimes these low positives will go to full blown positive and sometimes it wont. Autoimmune diseases in general are a guessing game with few providing a slam dunk diagnosis. Some people will go and live a completely normal and long life with a low stage autoimmune disease that never progresses.

I would be willing to bet that around 60 percent of the general population would have at least one slightly elevated antibody test if you ran the entire disease panels on them (I have had 15 different A.I antibodies tested and there are still more). Do these tests really mean anything at the current time? Sometimes they do, sometimes they don't.

So basically a lot of men will ignore the problem, GI problems or whatever it is, for as long as possible? Yeah I know people who would rather die than have to eat healthy/different food than they are used to!

0

Share this post


Link to post
Share on other sites

LOL I'm "manly" and ignore the symptoms until a while after I should have gone to the hospital. LOL I ignored celiac for 30+ years.

I don't think acquiring an AI disease has to do with being highstrung. I've been called laid back to a fault so I know it's not the case for me, although I wouldn't doubt that a stressed person would end up with more symptoms.

I've read that they are looking into the link between the differences in our sex hormones. For some women, AI disease symptoms lessen after menopause because we have less hormones.

0

Share this post


Link to post
Share on other sites

I think it really has to do with the individual, not their sex. I am pretty laid back, always end up at the doc's after later than I should have been there (almost manly there :D but had to diagnose hubs' DH - which made a believer out of him when he looked it up)

I would agreen with Karen that my immune system appears to be different, and perhaps??? one which the TNF inhibitors were designed for - crossed fingers smiley --).

But I do think, in general, women are more likely to avail themselves of medical treatment, or force the men in their lives into it, than men. I don't know if it comes from the mothering instinct (I have no children) or a general awareness of the body or interest in its functions, but speaking for myself only, I want to know what's going on, gosh darnit !!! I hate that fuzzy IBS zone :ph34r:

0

Share this post


Link to post
Share on other sites

So basically a lot of men will ignore the problem, GI problems or whatever it is, for as long as possible? Yeah I know people who would rather die than have to eat healthy/different food than they are used to!

Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat it before it becomes symptomatic and problematic, my male friends all say the same thing "I would keep eating gluten until I was horribly sick and couldn't". My female friends are much more supportive of treating it before it becomes a problem. Once again you can't just simply group it as men do this and women do that but I do feel that men are more likely to ignore pains.

0

Share this post


Link to post
Share on other sites

I saw a few reports on TV that said women would be more prone to the autoimmune diseases than men because our immune systems are slightly different. We have to be able to shut off the immune response to a parasitic invader living inside us for 9 months. I affectionately call mine M & J. :). I don't have time to google that, but maybe you could find something along those lines as an explanation. Female hormones may be a factor, too. I don't think there is a real answer.

I have also heard that women are more likely to talk to each other, on forums, and with a doctor about health issues than men. I think women may go to doctors more regularly as they tend to see an OB/gyn every year or two.

This is very close to what I was about to respond - thanks for typing it out for me K!

0

Share this post


Link to post
Share on other sites

This is very close to what I was about to respond - thanks for typing it out for me K!

This is very close to what I was about to respond - thanks for typing it out for me K!

My poor tired fingers! Glad I could help.

0

Share this post


Link to post
Share on other sites

but I do feel that men are more likely to ignore pains.

I believe women are more likely to ignore all minor pain and are more likely to realize and ADMIT something is not quite right in the bathroom.

0

Share this post


Link to post
Share on other sites

LOL I'm "manly" and ignore the symptoms until a while after I should have gone to the hospital. LOL I ignored celiac for 30+ years.

I don't think acquiring an AI disease has to do with being highstrung. I've been called laid back to a fault so I know it's not the case for me, although I wouldn't doubt that a stressed person would end up with more symptoms.

I've read that they are looking into the link between the differences in our sex hormones. For some women, AI disease symptoms lessen after menopause because we have less hormones.

I used to ignore my symptoms when I was in middle school/high school (I'm in college now)

0

Share this post


Link to post
Share on other sites

Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat it before it becomes symptomatic and problematic, my male friends all say the same thing "I would keep eating gluten until I was horribly sick and couldn't". My female friends are much more supportive of treating it before it becomes a problem. Once again you can't just simply group it as men do this and women do that but I do feel that men are more likely to ignore pains.

A possible dx of gluten sensitivity you mean? Yea I have had people (mostly guys) tell me, "Well if I was you I would still eat whatever I wanted LOL"

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,439
    • Total Posts
      930,578
  • Member Statistics

    • Total Members
      63,865
    • Most Online
      3,093

    Newest Member
    vprovenzatn
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi,  I am very sorry for posting back again. I have visited the consultant today and he said that the TTG is mildly elevated - does this mean it is a positive? The consultant said that as I tested negative for Celiac on three previous times, he thinks something else could be going on so came home worrying even more. The consultant has organised an endoscopy and requested it as a fast track and requested an urgent CT scan.  I was wondering if there is anything that I can do to best prepare for the endoscopy? Does my gluten amount seem to be enough with the 2 slices of bread on a morning? Is it also possible for the TTG to have become mildly elevated because of other conditions?  He mentioned to me that the colonoscopy didn't work really because of how it was clogged up and that the bowel prep didn't work.  I have also noticed that I am experiencing major constipation as well - I will have diarrhoea then it will fluctuate to constipation as well and have an awful gurgling sensation as soon as I eat anything like bread.  Thank you again for everyone on here. It is a wonderful forum. 
    • Hey y'all so I realized my allergy medicine probably affected the results of the IgE allergy blood tests. I tried to start eating gluten again so that I would be able to get the full blood panel from my GI but I can't do it. I ate two meals with gluten yesterday and ended up spending half the night in the bathroom throwing up because my body couldn't digest any of it. Do you know if there are any other ways a GI could diagnose possible celiac without me having to consume it?
    • Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware.  I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge. I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip. Can anyone offer the following advice: - have any of you traveled to these places or somewhere similar and how did you manage? - with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places) - CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce) - are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima? Thank you so much! Any advice will be really helpful! (Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it  I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!) Thanks Jes  
    • Hello. Been a while since I've been here. Not that I am necessarily better. But you've (the great peeps on this forum !  have been incredibly helpful and I know how to cope better, and I've made positive changes in mine and my daughter's lives. So, as you can see I am writing to ask you about this new EVIL I've just recently discovered is a neruo toxin, used often in frozen sea foods: Sodium triphosphate. For example; I've been eating frozen fish with gluten-free herbs and spices, added veggies for years and also frozen shrimp with hot butter and garlic. YUM! With no *apparent* side effects. I am not sure anymore...A few days ago, I had good serving of shrimp and the usual, butter with fresh garlic and a bowl of green leaf salad with olive oil and Himalayan salt and again garlic lol (a big fan of garlic here ) . Within an hour of eating, my abdomen was so bloated. I looked like I was pregnant and in my second trimester  . Wow! ...Ok, I thought to myself: WHAT did I ingest with gluten or milk, that could be the cause for this?...Everything seemed ok, over the last few days. So I had to read the ingredients of this shrimp. I guess something like instinct told me to do it. And BAM, I came across that thing: Shrimp, water, Sodium triphosphate. I did some searching online and did not find too much except that 'The United States Food and Drug Administration lists STPP as "generally recognized as safe." '  https://en.wikipedia.org/wiki/Sodium_triphosphate   THIS means very little to me personally. NOT reassuring at all.  I found something which DID scare me: " Even though deemed safe for ingestion, this is one chemical you want to avoid if you've experienced reactions due to eating frozen fish.  Check for seafood products labeled as "dry" which means they have not been contaminated with the chemical.  Food products labeled as "wet" have usually been treated with sodium tripolyphosphate.

      STPP, is a suspected neurotoxin according to the National Institute for Occupational Safety and Health’s (NIOSH) Registry of Toxic Effects of Chemical Substances. Food-grade STPP may cause acute
      skin irritation, and prolonged contact with skin should be avoided. STPP  is listed on the U.S. Environmental 
      Protection Agency’s Federal  Insecticide, Fungicide and Rodenticide Act as a registered pesticide and  it is also registered as an air contaminant under California’s  Occupational and Safety Health Act. The material safety data sheet lists STPP as toxic to the lungs with prolonged exposure having the potential to produce organ damage.  This neuro toxin also has the ability to cause internal inflammation from those suffering from autoimmune diseases.  Inflammation leads to painful flare-ups."   From this site: http://www.yourfibrosupport.com/fibro-relief-blog/side-effects-of-frozen-seafoodtreated-withsodium-tripolyphosphate It seems that there is one more evil to avoid. It's very hard to eat healthy, when you are on disability. It really is upsetting that even frozen fish which some of them I actually CAN afford, now are off the menu. The list just keeps getting smaller. I would like to point out that I have Candida, so it also means I can't eat things like Lentils or beans and the other gluten-free grains by the bucketfuls. I need to maintain a Paleo type diet. So, that's not cheap. We always have a lot of eggs at home and tuna and what meat I can afford, what is on sale, etc.   Been considering looking into free range meats and so on but that's not cheap. So, if I go that route, I'd have to split it with a person or two and probably buy a large freezer. Oh god. Just thinking aloud here...   I'd really appreciate any and all comments and suggestions.  Thanks very much for being so kind, L. 
    • I workout, but with lighter weight than normal. I never go to failure. But being tired is not one my symptoms.    
  • Upcoming Events