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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is There A Name For This Diet?
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Ray21    1

Hi,

I am not sure if there is a name for what I can and can not eat. I seem to do fine with a small amount of white rice or potato but no other grains. Also, unlike people who do fine on a Paleo diet with seeds, I can not eat seeds either.

So basically, my diet is Paleo +rice/potato and (- seeds) !

Is there a name for this diet?

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kareng    1,992

How about "What Works for Ray Today"? :D

I don't know how long you have been doing this, but you might be able to add some foods back in a few months or a year.

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Persei V.    8

Mine is paleo, -seeds and nuts +potato/white cane sugar.

Also known as "The only stuff I can eat" diet.

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Ray21    1

How about "What Works for Ray Today"? :D

I don't know how long you have been doing this, but you might be able to add some foods back in a few months or a year.

hehehe... well i am trying to find out if there is an actual name for it so I can look up recepies and join their meetup groups! ... who knows I may find all kinds of friends and even my soulmate ...... Anyone else out there is on "What Works for Ray Today" diet ??? :D J/K

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kareng    1,992

You could find Paleo recipes and just add what you can eat or subtract what you can't. Or start your own dating forum? ;)

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Chaff    9

Ray, have you tried soaking the seeds? I know the Paleo folks do this, but they often don't talk about it much. It's a little involved (soaking overnight and then low-level roasting for a while) but I hear it helps with digestion immensely. Most websites with instructions on it get them from the book Nourishing Traditions (which I have on order and haven't read yet).

For example: http://www.mommypotamus.com/how-to-soak-and-dehydrate-nuts-the-nourishing-traditions-way/

Works for grains, too, apparently: http://www.cheeseslave.com/why-soak-and-sprout-grains/

Anyway, I've only soaked rice and polenta (both helped a LOT) but haven't had the courage to do nuts yet. But I can handle almond milk OK, although regular almonds not so much, so it seems like it should work.

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foam    16

Everyone says not to eat potato but there's something in that stuff that works well. I think it's the poisons in the skin (I eat them with the skin) and there are supposed to be some fairly powerful compounds in potato skin, anti fungals. The only problem I've had with them was as a kid if I ate a lot of baked potato's with skins I'd have the most crazy vivid nigthmares and have them every single time I ate potato late at night..

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Ray21    1

Everyone says not to eat potato but there's something in that stuff that works well. I think it's the poisons in the skin (I eat them with the skin) and there are supposed to be some fairly powerful compounds in potato skin, anti fungals. The only problem I've had with them was as a kid if I ate a lot of baked potato's with skins I'd have the most crazy vivid nigthmares and have them every single time I ate potato late at night..

Well, since most of these food allergies revolve around problem with certain protein digestions, I wonder if potatos just don't have the protein that I am allergic to. I know I am allergic to Gluten, but I am talking besides glutern. Maybe there is other protein that are not yet researched enough to make as much headlines as gluten. For example, I hear there is a protein in Oats that some people are allergic to. My body actually acts much worst to oats and oat bran then it does to wheat so I am one of them.... It could very well be that my body can digest all the protein in the potato. Same with white basmati rice, but not the brown rice which is suppose to be better for you!

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foam    16

Ray21 you are right, it's the proteins that cause the problems. I'm in the same boat but have some extra complexities because I also have a high eosonphil white cell count that's causing more damage on it's own it's also caused an enlarged node/tumour in my neck, I also have a IgE antibody level over 4000 (which should be under 200) although I don't have any actual allergy as such, I am just intolerant to grains and some kinds of dairy (although Yoghurt is doable. I've been slightly sick for well.. decades but I started to have enormous daily stomach and small intestine issues about 3 years ago and that's when I went off wheat, I was practically on the toilet all day... not eating wheat helped a lot but because I kept eating Corn etc I didn't ever really improve that much.

Lately I'm making my own Yoghurt from A2 milk from this company since the A2 yoghurt isn't available in my local supermarket yet. http://www.a2milk.com.au/ I make it with a spoon of normal bacteria from a normal yoghurt and add in some LGG and other probiotics in it which is super easy to make and I don't know why I didn't do this years ago. I'm going to see if you can set yogurt made from pure LGG only soon. The A2 milk really makes a difference in the digestibility of the proteins and my own inner feeling is that I'm digesting it 100% perfectly, I don't even get any grumbling/gurgling from it like I do from the normal milk here which comes from friesian (holstien) cows and is A1 protein, that is bad bad news). The only allergy I technically have is to yeast which I think has built up because of Candida.

So my problem is that because all the proteins from grains and legumes have been leaking through my small intestine for years and years I've got anti bodies to all those proteins which makes me very intolerant of them, because I was vegetarian for a couple of decades I've eaten way too much grains. I'm now eating meat and the good thing is that it's building my body up and fixing my many malabsorbtion deficiencies, for the first time in ages I have enough minerals to wake up with mucus in my eyes! :) amazing. I'm also acne free for the first time in 20 years after only 2 weeks on red meat.

But It's also still not helping my eosonphilia because of the proteins in it although it's much easier to digest than grains, the only meat I'm dodgy on is Chicken, especailly the breast as it's almost non digestible, red meat and fish though I get near enough to 100% digestion on. However! something that may interest you is that is that whenever I take antibiotics my eosonphil count drops and my white tongue magically goes away... The only bacteria that can really cause these problems I have is helicobacter pylori and I have been treated for it before but obviously the high card high sugar diet I used to be on feed it too much and it didn't die off. Now I'm taking another course of treatment for it since it really seems to be the smoking gun in my case, or some other uncommon similar upper intestinal bacteria. If I keep eating my home made lgg yoghurt I seem to be able to take antibiotics just fine without issues, normally they totally ruin me and I give up on them.

I can get my eosonphil count down just fine eating potato only and vege juice just because there's almost no protein in those foods. But you can only do that for a limited time when you are already deficient and borderline malnutritioned as it is.

The trick for me is, sure I can take the antibiotics and eventually kill off the H pylori but then how to you eat enough protein to repair your gut without increasing your eosonphil count and ruining you gut and probably getting reinfected with a bacteria. You could technically do it with straight pure amino acids because they your body doesn't recognised them as anything bad. But I don't have any.. should get some. In the end I might just give up and take cortisteriods for a couple/few months to give me some respite from the eosonphillia and get my IgE levels down to a sensible level. I can't really take H pylori anything but very seriously with my genetics because my Grandfather suffered for years with stomach problems and ended up dying at a young age from complications of Ulcers.

All grains other than white rice give me problems, although even white rice causes my body to be "stiff" as in slightly inflamed compared to potato. Pretty much every other grain sends my to the toilet half out of my mind almost straight away, most especailly Corn and Wheat but Oats was never any good either, they are all too hard/ to slow to digest and leak through your gut undigested before they break down into amino acids.

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mushroom    1,205

I wonder if potatos just don't have the protein that I am allergic to. I know I am allergic to Gluten, but I am talking besides glutern. Maybe there is other protein that are not yet researched enough to make as much headlines as gluten. For example, I hear there is a protein in Oats that some people are allergic to. My body actually acts much worst to oats and oat bran then it does to wheat so I am one of them.... It could very well be that my body can digest all the protein in the potato. Same with white basmati rice, but not the brown rice which is suppose to be better for you!

Ray, are you able to eat potato skins without any problem? It is the skins that I cannot eat because they contain the protein called lectin (there are also lectins in many other foods; e.g., probably in brown rice because it has the outer husk of the rice grain which is removed for white rice.) I tend to avoid brown rice to keep away from as many lectins as possible. The lectins contain a substance which is poisonous to insects (causes their blood to clot) and is the plant's first line of defense against attack.

Ray21 you are right, it's the proteins that cause the problems....

So my problem is that because all the proteins from grains and legumes have been leaking through my small intestine for years and years I've got anti bodies to all those proteins which makes me very intolerant of them....

Yes, that goes for me too. I can do white rice, and the 'pseudo-grains' (or should I say not recognized as grains by the general population) buckwheat, teff and sorghum because they are things I have never eaten before. But I have lost so many foods and am struggling to get them back. For me, at least, it appears to be the lectins in the skins of the plants, which then generalizes to the whole plant, and then to the whole food group. It will be a red letter day if I can eat legumes again!!! White bean salad, mmm!!!

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foam    16

Mushroom I ate a lot of potato skin the other day as a test for the first time in a few weeks and didn't do that well with it as I thought I would lol! so I might retract that statement. I'm not on potato at all at the moment because I'm trying to starve this bacteria while I'm on antibiotics because I'm really improving considerably on antibiotics if for no other reason than my eosonphillia goes down, when it's high at about 30% wbc for years and years you get used to feeling how you do but you feel way better when the levels are down.. Turnips seem an awesome! replacement (peeled :)) for potato but in any case potato is better than rice, I'm sure about that. I'm 41 and progressively got more problems as I age, my wife is of Spanish decent and younger at 33. She has a big genetic advantage with grains compared to me who's a Northerner but even so she's recently developed intolerances to Corn and Lentils. She's pregnant at the moment and that really helps in showing things up! she gets a big red mark right around her mouth every time she goes near corn at the moment.

It's a real pain to fix this leaky gut, I'm really glad for this forum because most doctors and other people just don't get how it all works or even believe it exists, they are just all about the Celiac which is only one small part of a very big puzzle. It's pretty hard when you are fighting against some bacteria, trying to grow others, fighting your own immune system and half the foods and pretty much all the additives on the planet all at once :)!.

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foam    16

If you guys want me to walk you through how to make probiotic yoghurt just let me know, I'm going to make some more today and also try the pure LGG to see what that makes. I made two batches yesterday. One was ordinary cultures and the other ordinary + probiotics and for me the probiotic tasted better so I'm interested to see if it will culture on it's own in milk, I hope so because it's very expensive to by as a powder! so I'd be very happy to just keep on growing it myself.

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mushroom    1,205

Mushroom I ate a lot of potato skin the other day as a test for the first time in a few weeks and didn't do that well with it as I thought I would lol! so I might retract that statement. .....

It's a real pain to fix this leaky gut, I'm really glad for this forum because most doctors and other people just don't get how it all works or even believe it exists, they are just all about the Celiac which is only one small part of a very big puzzle. It's pretty hard when you are fighting against some bacteria, trying to grow others, fighting your own immune system and half the foods and pretty much all the additives on the planet all at once :)!.

Not only that, but I am doing something very counter-intuitive, in taking Humira injections for my psoriatic arthritis (which, although I think it is not as bad as before the diet, is still debilitatingly painful if I don't) and which are TNF inhibitors which, wait for it, suppress the immune system :ph34r: So anytime I get an infection of any kind I can't shoot up :lol: until I heal it up and then I get dangerously close to a nonfunctioning level.

Nobody knows the troubles I've known..... :blink:

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mushroom    1,205

If you guys want me to walk you through how to make probiotic yoghurt just let me know, I'm going to make some more today and also try the pure LGG to see what that makes. I made two batches yesterday. One was ordinary cultures and the other ordinary + probiotics and for me the probiotic tasted better so I'm interested to see if it will culture on it's own in milk, I hope so because it's very expensive to by as a powder! so I'd be very happy to just keep on growing it myself.

I think I missed something along the way -- what is LGG?

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foam    16

This is LGG, there's heaps of studies on it versus allergy and leak gut etc. http://en.wikipedia.org/wiki/Lactobacillus_rhamnosus

It's probably the best of the known bacteria's to help, along with the yoghurt it seems to help put a liner of mucus on your guts, the German doctor that specialises in curing leaky gut has all his patients on at least half a litre a day!.

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