• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Am Not Getting Better
0

12 posts in this topic

i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm sorry you are still sick. Have you read the "newbie 101" thread? It will help you find the places gluten hides so you don't get cross-contaminated. Do you live with gluten eaters? If so, you need a dedicated toaster, your own colander, your own jars of condiments, and to keep your food away from theirs. I know it sounds crazy, but a few weeks ago I got glutened from touching a cookie crumb and not washing my hands before I ate. Mind you, I didn't EAT the cookie crumb, just touched it.

Another thing that unfortunately happens to a lot of us is additional intolerances. Lots of folks have trouble with dairy and soy. Some of us have trouble with corn or nightshade vegetables. Then there are salicylates, oxylates, lectins, and other natural chemicals in foods.

But I would start simple. Make sure you aren't getting cross-contamination. Then, if you are still sick, try doing away with dairy. If you are STILL sick, do away with soy. After that, if you are still getting sick, an elimination diet sounds in order.

Read as much as you can here. Ask lots of questions. We will help you figure this out! (((HUGS)))

1

Share this post


Link to post
Share on other sites

yes i live with my mom and she eats gluten , and we wipe down everything that gluten touches , and everything wooden that we use in the kitchen we bought new ones

0

Share this post


Link to post
Share on other sites
Ads by Google:


To help you better, give us an idea of what is going on? What are you eating, what precautions are you taking etc. It is hard to offer help without more information.

The little information that you gave said that you wipe down everything that gluten touches. Can you give more details on that? You may need to do it more carefully. Do you use soap?

You might need to have a separate counter. It would depend on how sensitive you are. I am very sensitive and didn't get better until we made our household gluten free. The gluten eaters were still able to eat gluten out of the house. Many celiacs are able to prepare gluten containing food without problems. It depends on your level of sensitivity.

1

Share this post


Link to post
Share on other sites

I'd like to suggest that (even though you wipe everything down that comes into contact with gluten) you get in the habit of NEVER putting any of your food down on a counter -- instead grab a plate, or paper plate, or piece of wax paper, etc. It's a good habit to get into and adds a pretty foolproof layer of protection in your food handling.

0

Share this post


Link to post
Share on other sites




is it common to take this long to get better ??

87

Hi James,

It is not super unusual for people to have continuing symptoms for quite a while. The trick to stopping them is to make sure you are 100% gluten-free. That means everything including vitamin pills, medicines, pet food, kisses from girlfriends etc. If that doesn't help then you may need to look at other food intolerances. The immune response doesn't stop in a few hours after a glutening, it can continue for weeks. So if you get just a little bit of gluten but only once a week it still keeps the immune system response going, possibly for months or years.

0

Share this post


Link to post
Share on other sites

can anyone recomened a good probiotic and gas medication ty for all ur help

0

Share this post


Link to post
Share on other sites




i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

Don't lose hope until you have tried to solve it from all angles. If gluten free alone doesn't solve it, you can try looking for other intolerances and nutrient defieciencies. After that, you can supplement and cater to intolerances. If you are doing all of these and still are having trouble perhaps more time will solve, or allow you to find the next step for you.

Diana

0

Share this post


Link to post
Share on other sites

Hi James,

One thing you can do for gas is avoid sugars and starchy foods. Those make lots of food for bacteria which then make gas. Peppermint tea or Altoids peppermints are good for getting gas out of the stomach,.. But don't get in the habit of taking them every day, think of them as a medicine.

Solgar and Country Life or Nature Made brands are good for pro-biotics and enzymes. Or Vitamin Shoppe brands.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,342
    • Total Posts
      935,606
  • Member Statistics

    • Total Members
      65,018
    • Most Online
      3,093

    Newest Member
    FAHutch
    Joined
  • Popular Now

  • Topics

  • Posts

    • I will just stick with christopherbean company, the fact the main sales rep I talk to has celiac in the family means a lot, she said they use it all the time. I tested some of the iffiest flavored version grounds for gluten all negative. NOT had any issues drinking all kinds of coffee from their company in the past few months. FACT the flavored ones actually taste like what they say and just need a bit of sweetener is making me a coffee addict again lol. Clearing a pot a day so far and looking forward to each day wondering what flavor I should do >.> today was banana foster coffee, its 7 am and i already am on my third cup. If your still in doubt just buy their beans and grind your self.  I am grateful for the guy that started this thread as he ended up motivating me to start my campaign to find a gluten-free flavored coffee, where I ended up emailing several companies, I still saved 2 of the replies from companies saying DO NOT drink our coffee if you have celiac. Sorta funny how that brought up the issue and proved some points about gluten in the coffee industry.
    • Ch88 yes im  glad i had the blood test but it was found by accident so bit of a shock when i found out. God knows how long i had it but i always remember as a child suffering from stomach pain alot but back in the eighties it was unheard off!  But if you or any other membets can offer advice on what happens after the biopsy it would be much appreciated.
    • Most of the articles you presented were blogs.  They focused in one article pushed by the American Chemical Society.  The research looked at ground coffee in Brazil ONLY.   https://www.acs.org/content/acs/en/pressroom/newsreleases/2014/august/keeping-filler-ingredients-out-of-your-cup-of-coffee.html We know that Brazil is a very poor country.  Just look at what happened during the last Olympics.   For piece of mind, do not drink ground coffee brands from Brazil.  Instead, grind your own beans or purchase grounds from a reputable company.    
    • Okay, a positive on thyroid antibodies,  but what about the rest of the thyroid panel?  That tells more of the story.   Is  rest of the thyroid panel all in the normal ranges?  Is that why you were recommended to take a supplement instead of actual thyroid hormone replacement?  Many doctors try a tiny dose of thyroid hormone replacement.  Was this considered?   Symptoms besides gray hair?   You can either embrace the gray hair or color it.  My research and personal experience has never come across a method of reversing grey hair.  My SIL grayed  at 18.  She has been coloring her hair black for decades and her thyroid is normal. 
  • Upcoming Events