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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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I Am New To Pancratic Enzymes And Recently Started Rotational Diet?

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I recently started rotational diet, pancreatic enzymes, and vitamin B 12. Sorry all of you scientific people to start 3 things at once, but that is where I am at.

1 My tummy is noisy, noisy, noisy.

2 I am experiencing some pain in the lower abdomen.

3 My pants are getting too short. Okay, what I think I mean is that I am losing tummy and must pull the pants farther up to compensate for it. I don't think I have lost weight. The inches are only down to my lowest normal level.

4. . I had been tending toward diarreah since going gluten free. I was really constipated a couple of days.

5. My head seems clear day after day, except when I had a very constipated day once. Then after I got cleaned out, I feel really good for a while.

6. Sometimes, I feel very unusally well, extremely well, is more like it. Don't get me giddy!

7. Sometimes I think I am surely dying.

8. I felt ticklish for the first time in years.

I have double checked all of the new supplements for gluten and they all check out. I am wondering if I am now feeling pain, because I am not so numb as I was. I have been surprized on the forum when people talked about a painful expereience. I bloated 9 inches overnight once, but felt no pain whatsoever. That is one of the reasons that I went 30 years undiagnosed. I couldn't feel what was happening to me.

Diana

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Various stages of inflammation can cause all of this.

The only thing I can suggest is don't change too much too quickly or you will never know which change is helping or conversely -- hurting.

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I don't know what pancreas thing you are on. I tried one called Pancreatin. Someone told me they thought I should try it and stupidly I did, even though I didn't think that I had pancreas symptoms. That stuff made me sooo sick to my stomach! After taking it for a week, I had to stop. Then my stomach got a lot better.

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I had a nutrient blood test and was found short of pancreatic enzymes, so that is why I decided to take them. I am almost certainly swollen, but have been arguing with my doctors about it. I say swollen, but they just say I am the shape I am! I didn't get a marker test for swelling. I keep wondering if I "should" look emaciated, but I am not. I haven't been absorbing well.

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I have failed every blood test for inflammation my entire life - yet when I am in a state of healing I look 20 pounds lighter over night and my joint pain disappears - bloating returns and so does pain - i dont just mean abdominal bloat - i bloat everywhere yet docs always told me my weight is simply a matter of calories in - calories out. This is untrue in a body in constant AI crisis.

Supplements can be helpful, but too many can be harsh on an already inflammed digestive system.

Should add each of my four endos show severe inflammation - sed and crp do not show the entire picture of inflammation in your body.

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    • It's good to know it was of use, thanks for letting me know   All the best, Matt
    • Hi Matt,   Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.   Have a wonderful day, Lex
    • I am worried about the cost but I think having that test done would help me rule things out. Either way I need to see a G.I my issues are getting out of control.
    • Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway. I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help! 
    • I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.  I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
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