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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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So I had an MRI the other week and they finally called me with the results. Looks like a I have a rather large brain tumor that is more than likely what has been causing my chronic migraines. Needless to say, I'm pretty flipping scared....

I go in to the docs tomorrow for more blood tests and I see my neurologist on the 26th to figure out the plan of how we are going to go about getting it removed and what not.

So just send positive thoughts my way please? I need them pretty bad right now.....

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Oh honeybun, what a trauma for you. Of course you're flipping scared, but it is probably benign. I know you can't help worrying, but oftentimes they are. Will definitely keep my fingers crossed for you. Sending oodles of positive thoughts, and some warm {{{{{HUGS}}}} and {{{{cuddlesl}}}} your way.

Hang in there and do continue to let us know what is happening with you.

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Sweetie.

Like Shroomie, I am sending all good vibes, encouraging thoughts, prayers and positive energy to you.

I am sure you are scared, hon and I do not blame you one bit, but try to think positive thoughts about your

prognosis and recovery.

I send ((big warm hugs)) to you.

Keep us posted.

My best to you, IH

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Hi

I will certainly be sending positive thoughts and hugs your way.

Of course it is scary, but I'll have fingers crossed for you and the neuro to make the BEST plan to get you healthy again.

Let us know how you are getting on

Many many good wishes

Mw x

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On No! Sending some postive thoughts your way. Keep us posted if you feel up to it?

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Prayers and hugs sent. But a few more hugs are not bad right? (((((((hugs))))))). My sister had a I think they called it gamma knife or some such thing. And a co-worker at my old job had some kind of brain surgery. People do recover from such things.

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Very scary honey. :( Hugs and strong thoughts heading your way.

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Oh Sweetie :(

HUGE Hugs heading there right now!

Prayers today and in the coming days for strength and healing.

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Thank you all, it's always nice to know there are people out there who care. Once I know more after the 26th I will let you all know <3

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That has to be hard.

On one hand, you know whats been causing it, yet on the other hand.... :(

Hope ya get better :)

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Thanks all, I've been trying to rest a lot because it's been making me rather sick lately.

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We have a bit more information. The tumor is NOT cancerous. It's about the size of my pituitary gland and it is in the back of the gland, so it's not messing with my optic or my sinuses, which is a good thing, but in a way, a bit bitter sweet, since now instead of the surgery option being easy and through my nose, they will have to go in through my skull more than likely. We do not know my treatment methods yet, but it's more than likely going to be brain surgery.

So, at least that's a bit of good news before Xmas :)

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This is good news! "Not cancer" is always good news.

I am sorry you have to be operated on( as the other option is less invasive), but if it gives you any encouragement at all, my (then) 82 year old Mom had brain surgery for a dangerous subdural hematoma. She had a few weeks of a b%$@#in shaved head hairdo that we threatened to dye

purple ( we were this close to getting her to go for it, too!)

and she did have to do some required post-op therapy to make sure her coordination was not affected (it wasn't)

but she recovered rather quickly.

You're young and strong and I bet your doctors think your prognosis is excellent, yes?

I am sure this makes you still nervous, of course (all surgeries are scary. I've had 8 in my lifetime, so I understand this apprehension) but you're probably feeling relieved and optimistic, too.

I send you all good wishes and prayers for a quick and total recovery.

Please keep us posted! Merry Christmas, hon.

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Ditto - I'd say that is excellent news - not dismissing a very serious surgery - just very good to hear it is not cancer.

Merry Chrristmas to you - thank you for updating us :)

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Really pleased to hear your good news, not having cancer must be a relief.

The surgery you described and location of the tumor sounds manageable. All the very best for Christmas and for the start of your healing.

Mw x

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I'm late to this thread, but I can offer some encouragement. Your tumor sounds exactly like the one a friend of mine had. It was benign, but it was fast growing. She had to have surgery too. She was 50 years old at the time and came through the surgery with flying colors. Just a few days after she got home I was visiting her and freaking out when she got on a ladder to pull down some stuff in the rafters of her garage. But she was absolutely fine. And now, ten years later she is still fine.

My wish for you is that it will be as easy and successful as hers was. ((((HUGS))))

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Most excellent news. Celebrate a benign tumor this Christmas, and you will have plenty of time to prepare for the surgery in the New Year. I am so glad for you!.

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Hi Kristin!

Any news from Neuro? Hoping to hear you have received more positive news :)

You remain in my thoughts and prayers for healing.

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Since the tumor seems to be in the back of my pituitary, the neurologist can't do much since "technically" it's not IN my brain. So I talk to an endocrinologist about what other tests she wants me to do, to see if it's "active" or not, (messing with my hormones and/or secreting them), and then from there, we will hopefully start having a treatment plan in place. Been in and out of the ER from migraines and sever nausea over the holidays and these last few days. Trying to hang in there. Thanks to you all for the well wishes :)

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We are all keeping you in our thoughts, hon. :)

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Have been thinking of you this week. Hope those docs come through good for you, sounds like they are being thorough and getting you the right specialists. Hugs x

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Sending all good wishes and hopes that they come up with a resolution quickly so you can stop feeling so bad.

I suffered migraines most of my adult life and they (well, I'll just say it...) absolutely suck.

((hugs)) to you.

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And another big HUG :)

Thanks for the update.

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