• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

Well, looks like I am already having my first complication with the surgery. Was diagnosed with Diabetes Insipidus, so I have to start a new hormone treatment ASAP and keep a VERY close eye on my sodium/electrolyte levels. Awesome.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Not exactly what you were hoping for there then.

Good to hear they got it all out though. Maybe you will have more pieces of the puzzle, to help you get back to health.

I am rooting for you here, take it easy

Mw x

Share this post


Link to post
Share on other sites

Well, looks like I am already having my first complication with the surgery. Was diagnosed with Diabetes Insipidus, so I have to start a new hormone treatment ASAP and keep a VERY close eye on my sodium/electrolyte levels. Awesome.

 

So sorry to hear you have another illness to deal with. But it's a good thing that they caught it. Continuing to keep you in my prayers!

 

Sending extra positive energy, healing (((hugs))) and love,

Loey

Share this post


Link to post
Share on other sites
Guest Sequand54

I'm sorry to hear about the complications of the surgery. You are such a brave soul and we are all hoping that your overall health will get better soon.

Share this post


Link to post
Share on other sites

Continuing to keep you in my thoughts and prayers!

 

Love & healing (((hugs))),

Loey

Share this post


Link to post
Share on other sites

*hugs* Thanks all. The Diabetes cleared up fairly fast. I ended up going into adrenal failure about a week after the surgery. Was able to come back from that. Now I am dealing with a gnarly sinus infection. So much pressure I feel like my face/head may burst!! Took anti biotics but still in a good amount of pain so I'm trying to see what's up. I can't keep coughing like this because if it gets any worse, the coughing can mess up the surgery and I can get a spinal fluid leak, and this infection can spread to my brain if it doesn't go away soon. Uhg!! Hope you're all doing well! <3

Share this post


Link to post
Share on other sites

I am SO proud of you! Hang in there sweet lady. I hope they're still giving you cough medicine. We're all keeping you in our hearts and thoughts! 

 

Sending Love, (((Hugs))) & Prayers,

Loey

 

P.S. Will PM you a longer message over the next few days.

Share this post


Link to post
Share on other sites

Hope you're all doing well. I had to see an ENT these last two weeks to see why I'm still in SO much pain. Looks like there is a lot of tissue built up from the brain surgery, so guess what! I get to have ANOTHER surgery on July 3rd. Go me!! >.<

  • Upvote 1

Share this post


Link to post
Share on other sites

Hope you're all doing well. I had to see an ENT these last two weeks to see why I'm still in SO much pain. Looks like there is a lot of tissue built up from the brain surgery, so guess what! I get to have ANOTHER surgery on July 3rd. Go me!! >.<

 

 

Lucky you!  At least you know you are more than just a pretty face.....you have something in your head besides fluff!  :D

 

 

Maybe a little laugh? :ph34r: 

Share this post


Link to post
Share on other sites

Yep...Go You.

 

This news SUCKs....but your new picture is beautiful!

 

Hang in there :)

Share this post


Link to post
Share on other sites

Well, let's hope at least that you get the pain sorted out this time round.

 

Good luck, let us know how you go

 

Mw x

Share this post


Link to post
Share on other sites

Thanks guys! Just hoping I'm feeling my best soon after because I'm supposed to DJ in July as well and also go to a show shortly after the surgery and I am NOT missing it! I may fit in better at the show with my nose all bloodied anyway, lmao.

Share this post


Link to post
Share on other sites

How are you feeling? Sending healing (((hugs)) & love!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,701
  • Member Statistics

    • Total Members
      67,279
    • Most Online
      3,093

    Newest Member
    Jean 67
    Joined
  • Popular Now

  • Topics

  • Posts

    • LOL yeah miralax was a joke for me WHOLE BOTTLE NOTHING, doctors thought I was lying. I found the ONLY thing that works for me is Magnesium Citrate, the bottled fizzy stuff for colon preps. Daily maintenance requires me to take Natural Vitality Calm daily, you dose to tolerance start off at 1/4 tsp 1-2 times a day and up it to the full dose over a week. If you get loose stools cut it back. You dose to tolerance with magnesium and with this disease a issue with absorbing it is very common, causing chronic constipation in many and requiring supplementation.
      Try going to a whole foods only diet for a while with soups and stews with veggies and meats also. Nut butters and avocados help lube up the system. I use some other seeds etc to add in bulk but I think we need to focus on clearing your out first before regulating.
    • I would say no even then....it belongs in its own little corner in hell. We have had members get sick from cross contact touching and handling paper mache, playdough, and dry wall spackle containing wheat then touching their mouths, or food.....heck you can inhale the powder from the sanding spackle and have it get trapped in the mucus in you respiratory tract to run down your stomach and make you sick......has happened to a few on many occasions.
    • Cross reactivity is a bit of a myth type thing, but we do get food sensitivities and intolerance issues that do creep up and they are always different for each person. A food diary and keeping track of what causes symptoms is what you need to do. Here is a true gluten avoidance list and a article on food sensitivities.
      https://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html
      https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
  • Upcoming Events