• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Results....
0

88 posts in this topic

Recommended Posts

kristenloeh    14

So I had an MRI the other week and they finally called me with the results. Looks like a I have a rather large brain tumor that is more than likely what has been causing my chronic migraines. Needless to say, I'm pretty flipping scared....

I go in to the docs tomorrow for more blood tests and I see my neurologist on the 26th to figure out the plan of how we are going to go about getting it removed and what not.

So just send positive thoughts my way please? I need them pretty bad right now.....

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


mushroom    1,205

Oh honeybun, what a trauma for you. Of course you're flipping scared, but it is probably benign. I know you can't help worrying, but oftentimes they are. Will definitely keep my fingers crossed for you. Sending oodles of positive thoughts, and some warm {{{{{HUGS}}}} and {{{{cuddlesl}}}} your way.

Hang in there and do continue to let us know what is happening with you.

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Sweetie.

Like Shroomie, I am sending all good vibes, encouraging thoughts, prayers and positive energy to you.

I am sure you are scared, hon and I do not blame you one bit, but try to think positive thoughts about your

prognosis and recovery.

I send ((big warm hugs)) to you.

Keep us posted.

My best to you, IH

Share this post


Link to post
Share on other sites

Hi

I will certainly be sending positive thoughts and hugs your way.

Of course it is scary, but I'll have fingers crossed for you and the neuro to make the BEST plan to get you healthy again.

Let us know how you are getting on

Many many good wishes

Mw x

Share this post


Link to post
Share on other sites
kareng    1,992

On No! Sending some postive thoughts your way. Keep us posted if you feel up to it?

Share this post


Link to post
Share on other sites
Ads by Google:


GFinDC    609

Prayers and hugs sent. But a few more hugs are not bad right? (((((((hugs))))))). My sister had a I think they called it gamma knife or some such thing. And a co-worker at my old job had some kind of brain surgery. People do recover from such things.

Share this post


Link to post
Share on other sites


Ads by Google:


GottaSki    459

Oh Sweetie :(

HUGE Hugs heading there right now!

Prayers today and in the coming days for strength and healing.

Share this post


Link to post
Share on other sites
kristenloeh    14

Thank you all, it's always nice to know there are people out there who care. Once I know more after the 26th I will let you all know <3

Share this post


Link to post
Share on other sites


Ads by Google:


kristenloeh    14

Thanks all, I've been trying to rest a lot because it's been making me rather sick lately.

Share this post


Link to post
Share on other sites
kristenloeh    14

We have a bit more information. The tumor is NOT cancerous. It's about the size of my pituitary gland and it is in the back of the gland, so it's not messing with my optic or my sinuses, which is a good thing, but in a way, a bit bitter sweet, since now instead of the surgery option being easy and through my nose, they will have to go in through my skull more than likely. We do not know my treatment methods yet, but it's more than likely going to be brain surgery.

So, at least that's a bit of good news before Xmas :)

Share this post


Link to post
Share on other sites
IrishHeart    1,634

This is good news! "Not cancer" is always good news.

I am sorry you have to be operated on( as the other option is less invasive), but if it gives you any encouragement at all, my (then) 82 year old Mom had brain surgery for a dangerous subdural hematoma. She had a few weeks of a b%$@#in shaved head hairdo that we threatened to dye

purple ( we were this close to getting her to go for it, too!)

and she did have to do some required post-op therapy to make sure her coordination was not affected (it wasn't)

but she recovered rather quickly.

You're young and strong and I bet your doctors think your prognosis is excellent, yes?

I am sure this makes you still nervous, of course (all surgeries are scary. I've had 8 in my lifetime, so I understand this apprehension) but you're probably feeling relieved and optimistic, too.

I send you all good wishes and prayers for a quick and total recovery.

Please keep us posted! Merry Christmas, hon.

Share this post


Link to post
Share on other sites
GottaSki    459

Ditto - I'd say that is excellent news - not dismissing a very serious surgery - just very good to hear it is not cancer.

Merry Chrristmas to you - thank you for updating us :)

Share this post


Link to post
Share on other sites

Really pleased to hear your good news, not having cancer must be a relief.

The surgery you described and location of the tumor sounds manageable. All the very best for Christmas and for the start of your healing.

Mw x

Share this post


Link to post
Share on other sites


Ads by Google:


bartfull    565

I'm late to this thread, but I can offer some encouragement. Your tumor sounds exactly like the one a friend of mine had. It was benign, but it was fast growing. She had to have surgery too. She was 50 years old at the time and came through the surgery with flying colors. Just a few days after she got home I was visiting her and freaking out when she got on a ladder to pull down some stuff in the rafters of her garage. But she was absolutely fine. And now, ten years later she is still fine.

My wish for you is that it will be as easy and successful as hers was. ((((HUGS))))

Share this post


Link to post
Share on other sites
mushroom    1,205

Most excellent news. Celebrate a benign tumor this Christmas, and you will have plenty of time to prepare for the surgery in the New Year. I am so glad for you!.

Share this post


Link to post
Share on other sites
GottaSki    459

Hi Kristin!

Any news from Neuro? Hoping to hear you have received more positive news :)

You remain in my thoughts and prayers for healing.

Share this post


Link to post
Share on other sites
kristenloeh    14

Since the tumor seems to be in the back of my pituitary, the neurologist can't do much since "technically" it's not IN my brain. So I talk to an endocrinologist about what other tests she wants me to do, to see if it's "active" or not, (messing with my hormones and/or secreting them), and then from there, we will hopefully start having a treatment plan in place. Been in and out of the ER from migraines and sever nausea over the holidays and these last few days. Trying to hang in there. Thanks to you all for the well wishes :)

Share this post


Link to post
Share on other sites
mushroom    1,205

We are all keeping you in our thoughts, hon. :)

Share this post


Link to post
Share on other sites
IrishHeart    1,634

Sending all good wishes and hopes that they come up with a resolution quickly so you can stop feeling so bad.

I suffered migraines most of my adult life and they (well, I'll just say it...) absolutely suck.

((hugs)) to you.

Share this post


Link to post
Share on other sites
GottaSki    459

And another big HUG :)

Thanks for the update.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,901
    • Total Posts
      938,571
  • Member Statistics

    • Total Members
      65,811
    • Most Online
      3,093

    Newest Member
    mytinyhouse
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hate to tell you but McDonalds French fries are NOT gluten free.  The "natural beef flavoring" contains wheat.  Their hasbrowns are also fried in the same fryers thus making them NOT gluten free.  Lots of Miss information by this poster.  
    • .....you do know the Mc Ds uses wheat in the fries? FRENCH FRIES Ingredients: Potatoes, Vegetable Oil (Canola Oil, Corn Oil, Soybean Oil, Hydrogenated Soybean Oil, Natural Beef Flavor [Wheat and Milk Derivatives]*), Dextrose, Sodium Acid Pyrophosphate (Maintain Color), Salt. *Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients. Contains: WHEAT, MILK. https://www.mcdonalds.com/us/en-us/product/small-french-fries.html

        Being a Hydrolyzed version it might not contain the gluten proteins.....but you said any wheat proteins.
      Side thoughts I would not trust that place, stuff is constantly cross handled and changing gloves between stations does not happen often.
      AVOID fast food restaurants, keep protein pars, prepackaged snacks, etc available in your car and pack meal prep kits.
    • Grew up in a Hispanic half family, and ironically have a bad allergy to corn now....anyway when they get a bit dried out you take 2 large sheet stretch of a paper towel soak, wring it bit then wrap 2-6 tortillas in it put on a plate an zap in the microwave for a bit, this steam cooks them, and if they are dried out a bit from the fridge and falling apart this can make them more pliable. If really dried out wet the tortillas directly.......we never wasted food. PS do not ask for times...I have not eaten them in 5+ years and I break out in a rash from touching corn.
    • Place in a ungreesed non stick pan on med heat and turn after 20 seconds. This is how I cook corn tortillas orig and then reheat as well.
    • It's way too late to help this original poster, but in reading this thread, there's so many things that worry me.... WENDY'S IS THE WORST PLACE TO TRY TO EAT GLUTEN-FREE!!!! They are NOT at all dedicated in ANY way and they are a nightmare to even ask for gluten-free.  I travel A LOT and I can't afford to spend a fortune or tons of time finding gluten-free restaurants that won't make me sick. I eat the Grilled Chicken Sandwich NO SEASONINGS (custom made to order very juicy and delicious - takes 7 minutes to cook and worth the wait) at McDonalds at least twice a week.  I am extremely gluten allergic - extremely sensitive to wheat protein and poisons in our food supply - and allergic to a bunch of other things too (including milk protein - whey, sodium casseinate, and lutein - flax seed, opiates = poppy seeds, and any kinds of grass such as wheat grass, etc).  I order "grilled chicken filet 'a la carte' with no seasonings" and medium french fries. In the mornings, when I can't cook at home, I order 2 round eggs and 1 hash brown.  I NEVER GET SICK AT MCDONALD'S when I order these orders. I search on Celiac.com any time I try to eat out and I rarely end up ordering places because too many people post about getting sick off this or that because so many of us don't know what is making them sick!!!!! People order then think it's got gluten in it when it could be cross- contamination or yeast or milk protein that is making people sick because they aren't aware that with a gluten-allergy undiagnosed for a long time comes a whole long list of these other things we need to watch out for!!!! Sign up for the gluten-free restaurant notification app and use Celiac.com, but ALSO DO YOUR RESEARCH AND GET THE ALLERGY TEST PANEL! If you can afford to pay $500 out of your pocket, get the DNA allergy test.
  • Upcoming Events