• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Saw The Gi Yesterday About The Iron Deficiency
0

Rate this topic

4 posts in this topic

Recommended Posts

So I saw my doctor and pretty much gave him a quick run through of my health history for the past year. It was a pretty disappointing appointment. He pretty much said ok so last time we did the EGD you were gluten free for a few months before and kept on it. I told him I had been back on gluten for about 9 months now he said great lets do an EGD and small bowel study, we will do biopsies and check for an ulcer. All he said was you are losing blood somewhere lets find out, if I can't go to the OB/GYB. I live in orlando and this guy is supposed to world renowned on malabsorption disorders in general yet our visit lasted about 7 minutes!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


So I saw my doctor and pretty much gave him a quick run through of my health history for the past year. It was a pretty disappointing appointment. He pretty much said ok so last time we did the EGD you were gluten free for a few months before and kept on it. I told him I had been back on gluten for about 9 months now he said great lets do an EGD and small bowel study, we will do biopsies and check for an ulcer. All he said was you are losing blood somewhere lets find out, if I can't go to the OB/GYB. I live in orlando and this guy is supposed to world renowned on malabsorption disorders in general yet our visit lasted about 7 minutes!

Don't fret over the length of the visit. You got his attention, but he won't devote more time to you until he gets the results of the tests. THEN you can complain if he gives you only 7 minutes. Look at it this way -- those minutes he saved on that visit he can devote to someone who needs longer -- like you will on your post-testing visit :)

Share this post


Link to post
Share on other sites

Have you had your platelets checked? If you get low on platelets you can't clot properly and you'll bleed in odd ways. Thrombocytopenia it's called. It's just an idea...

Hope you find answers.

Share this post


Link to post
Share on other sites

I have thrombocytosis (high platelets) and have an autoimmune clotting condition in which I clot too well. I had a whole blood workup down in the hospital, the only thing they didn't was an EGD cause they figured do it outpatient cause the pathology for biopsies takes awhile ya know

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,109
    • Total Posts
      939,723
  • Member Statistics

    • Total Members
      66,096
    • Most Online
      3,093

    Newest Member
    grgygrrl
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks desirun. I have takenhim off gluten and he has improved out of sight. Only times he hasbeen sick since was when he ate something with gluten. His 14 yr old brother has just been diagnosed with type 1 diabetes and now coeliac screen has come back positive for him as well. Ttg was 745. normal is anything under 20.  Waiting on gene test for him before scheduling biopsy. Makes it more likely that my younger son does have coeliac now I think. Will also be getting my daughter tested asap. 
    • I've done a lot of "hotel hobo-ing" pre-gluten-free and post-gluten-free. Previously, I did a lot of traveling for university sports and was concerned with saving money/having reliable food that would be nutritious while competing. Now I am more concerned with not getting poisoned. Bring [dry] rice or corn grits and cook them like oatmeal using either a kettle at the hotel or in the microwave. This does not take up much room in a bag for flying. I personally make my own rice grits using my coffee grinder (do not use brown rice though - it'll take a long time to cook!), but you can probably buy them pre-made.  You might also be able to snag single serving honey, peanut butter, jam, sugar, salt from the hotel itself if you're super thrifty . But I usually just buy a jar of peanut butter, tub of yogurt and some fresh fruit or vegetables from a grocery store. Maybe some jerky if I'm feeling fancy.   If the hotel room doesn't come with a kettle or microwave, you can ask for one. I have never had a problem asking for either a kettle or a microwave when I told the staff I had "severe food allergies" or a "medical reason." . You could also use the coffeemaker to boil water/prepare stuff, but I would not if you are sensitive. Lots of people like old, gluten-eating me use the coffeemaker to cook instant noodles and oatmeal (yes, it does actually work). I would hazard that unlike the mugs/cups they give you in the room, the coffeemaker only gets a superficial rinse between customers. I personally bring a single use drip cone and filters for my coffee or just get the hotel coffee.
    • If it were my child, I'd keep him off of gluten and dairy as recommended by the dietician, especially since he's not well and this is possibly celiac.  It won't hurt him to be off of gluten and he may even improve, but if this is celiac disease or gluten intolerance, he will not improve on the gluten.  Right now your goal is for him to be well as soon as possible. I personally would wait until your son is healthy and recovered to even consider reintroducing gluten for a challenge. There is nothing worse then not having clear answers. I would encourage you to be persistent. Eight weeks is not typical for a "bug." Follow your gut, if you are getting the cold shoulder see another doctor/doctors.  Get and keep copies of all test results as part of your son's history to help new consults avoid retesting and to help determine the next steps in his care. Have you seen an allergist...?  
  • Upcoming Events