• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Burgers And Fajitas
0

7 posts in this topic

I was diagnosed this week with celiac by a routine blood test and am trying to wrap my head around going gluten free. I've seen a lot of posts about cross contamination that make me believe some of my doctors advice about eating out might be a bit lacking in accuracy. I was told "just take the bun off the burger" or "order the fajitas and just eat the meat and veggies out of the tortilla." From what I've been reading, it seems as if the meats have touched the buns so to speak, they are no longer safe? I don't (extremely thankful) have much, if any "noticeable" reaction to gluten (although I now know whats going on inside my body) so I don't know if I would have any idea if I was glutened. Sorry if this is an obvious question. I'll be learning quickly I'm sure! Thanks in advance for your responses.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Sounds like your doctors don't know much about Celiac. Look up " celiac centers" and see what the experts say. They will all tell you that no gluten, even the small amount that sticks to a burger or is in the soy sauce the chicken is marinated in, is safe. Here's one to get you started.

http://www.cureceliacdisease.org/living-with-celiac/guide/treatment

0

Share this post


Link to post
Share on other sites

Hopefully, soon your body will be warning you when you make mistakes. Mine took about 4 days of a gluten free diet before it really started bellyaching when I goofed. Other than that you can learn alot here, and in time you will know how to handle it.

Diana

0

Share this post


Link to post
Share on other sites

Yikes! No, no. You can never do this. Once I got a burger patty to go for my daughter. I told them that I wanted just the patty but they put it on a bun. This was not long after she had been diagnosed. Thinking I could be smart, I took the bun off, rinsed the patty in the sink and reheated it. She got sick as a dog.

You also have to ask about fajita meat in a restaurant. I know it sounds silly but some places use a marinade that contains soy sauce and soy sauce usually contains wheat. You can get gluten-free soy sauce but most restaurants won't have it.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi RedRaider,

I am in the same boat. About a week ago I started on the gluten free diet because of those symptoms.

I've learned so far that you need to be *SURGICALLY* clean about avoiding gluten. Even a crumb of bread will have a reaction.

It makes for dining at a burger place difficult. I guess you could ask them to change their gloves before making your burger, but cross-contamination in that environment seems likely.

0

Share this post


Link to post
Share on other sites

(1) please find a doctor who has more knowledge about celiac. They are out there.

(2) you should not "just take the bread off," as it will still be contaminated by gluten. Even if it does not seem to make you sick, it could be damaging your intestines.

(3) There are places to eat out, but you have to do your research. As far as chain restaurants, "Five Guys" burgers is great because they cook the burgers and buns separately and have a dedicated fryer for the fries. Plus their kitchen is open so you can watch and make sure everything is done properly. They automatically change gloves when I request "no bun," and I bring my own gluten-free bun to use. I know people also like Red Robin for good gluten-free practices, but we do not have that in my area. I am fortunate that there are two local burger joints that offer gluten-free buns and have a separate prep area, so I feel safe eating there, too.

(4) Fajitas are tricky, because a lot of them are marinated in soy sauce--again, you'll have to do a bit of research. I learned when going to a work function that the "Uncle Julio's" chain marinates all their grilled meats in (wheat) soy sauce, so I ate at Chipotle beforehand for my mexican fix. I also learned the hard way that some restaurants make their margaritas with beer! Good luck, and you will feel better, I promise.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,676
  • Member Statistics

    • Total Members
      63,883
    • Most Online
      3,093

    Newest Member
    Stephanie kate
    Joined
  • Popular Now

  • Topics

  • Posts

    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
    • I don't know what you drank or where.... so here are a few thoughts. - sure, a dive bar might have dirty glasses and serve a cocktail in a beer glass?  But a nice reminder place, with a dishwasher, should be fine.  If it's a sketchy place, Stick to wine, then it's served in wine glasses that aren't used for beer or bottled ciders in the bottle.   - ciders on tap might, just a slight chance, have an issue.  Because of beer on tap, mixed up lines, etc. - you may have a problem with alcohol - you may have issues with The  high sugar content of the drink.  I know I have similar issues if I drink serveral ciders of extra sugary brands - are you positive it was a gluten-free drink?  Not this " redds Apple" pretending to be a cider - it's beer with apple flavor.  Or one of those " gluten removed " beers?  
    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
  • Upcoming Events