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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Am I Unreasonable?
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7 posts in this topic

My family is planning a long car trip. On the forum, people were discouraged that my family would choose to eat at a restaurant that I would not eat at. Traditionally, we have eaten out atleast 1 time a day on our family trips often twice. We have 7 people in the car, and a car oven that can perhaps accomodate food for 2 people at the most. At our destination, we have booked a hotel that includes a kitchen, so we will eat there. What else can my family do?

At home we got all of the gluten out of the areas I use in the kitchen. My family no longer makes gluten containing foods in my house. My family tried to find eating places that could cook for me. Jason's Deli has gluten free, but when I was there once, they actually told me they couldn't guarantee it was gluten free! I have seen places with "gluten free noodles or chips." I can't eat those either since I am not tolerating grain.

I saw a post on the Five Guys burgers and was so impressed, I was ready to go. Five Guys Burgers was also mentioned by my chiropractor, who is gluten intolerant, and had a safe experience there. Then someone on the forum reacted to going to Five Guys burgers and I didn't want to try going there either. Basically, I am refusing to go to any restaurant.

I am 6 months into grain free. I have feelings like I am just beginning to really heal. I am on a rotational diet besides. I was 30 years with symptoms. I have been feeling good. I am going to be away from home and needing energy.

Does anyone blame me for being so careful?

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When I travel, I always pack my food and get a hotel with a kitchen. My family might get sandwiches and I just go in and get iced tea and eat my stuff. Sometimes we go to Wendy's and I get a Frosty and don't feel left out at all. I make sure I have something I really like, like Fritos, in case I feel left out. Often we just pack picnic stuff. I will get packs of cold cuts, chips, fruit, carrot sticks, make gluten-free cookies, fruit snacks, drinks, etc. they have gluten bread, so I pass out the cold cuts and cheese & fruit, etc to paper plates and they handle the bread. It's cheaper than eating at McDonalds and healthier as my family will eat fruit or carrot sticks in a picnic but not at McDonalds. It's not relaxing as I have to keep passing out more grapes, etc but it keeps everything gluten-free.

Sometimes I put a few carrots or grapes in little baggies and label them with a big K. Then I have my safe carrot sticks and they can gluten up the bigger bag. This might work best with so many people.

You could get a little camp stove. Mine is big enough to make 4-6 burgers at once or many hot dogs. You could grill out lunches or at the hotel along the way.

Got interrupted by 16 yr old boy seeking food!

If it doesn't bother you to either watch the others eat at a restaurant or stay behind in the hotel or car, then do it. With that many people traveling, it might be nice to have a half hour of quiet! I know when I travel with 40 teens for Robotics, I enjoy staying back from dinner in my room and eating a snack dinner ( nuts, crackers, fruit, etc)

Edited by kareng
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Diana,

I just posted about this little food warmer. About $20 and I have seen them at Target in the last week or so. You might be able to get a car adapter and plug it in in the car to heat some soup or casserole for your trip. Freeze portions before you go so they will last a few days in a cooler.

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Protecting your health is NEVER unreasonable. Do whatever you have to do, and if others don't understand that is their problem.

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No, you're fine. Everyone has different levels of carefulness they need to practice, so they don't get sick. :)

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It's your choice. A pain, maybe, but your choice. I do think, however, that means you have to figure out how to pack/travel so that you can have enough food, even if they choose to eat out too. For starters, I would suggest a roof rack!

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I am very sensitive and I can travel now. I have a small microwave and a cooler that plugs into the car that I can also plug in at a hotel. I am pretty much healed and have my diet figured out.

I can see how during the healing and figuring out process it would be difficult to travel. You need to give your health the importance that it deserves. Others need to appreciate the importance of that. The next trip might be better for you.

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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