• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Confused! Can Ttg Reduce By This Much While Still On Gluten?
0

7 posts in this topic

This is the background:

3 year old son has had symptoms of coeliac disease (bloating, tummy ache, diarrhoea) starting early 2012.

*27 June 2012. Blood tests done. TTG was 262, DGP 170.

*31 Aug 2012. Upper endoscopy carried out. Biopsy "normal" Marsh stage 1/2

*1 Sept-10 Sept 2012. Gluten free diet. Gastroenterologist contacts us with results of biopsy, advises us to restart gluten, and a follow up biopsy is booked for 21 Dec 2012.

*6 Dec 2012. Blood tests repeated. TTG now only 54, DGP down to only 77.

*21 Dec 2012. Awaiting biopsy.

Can anyone shed any light on this? Is it normal for TTG to fluctuate by so much?

Apart from the 10 days in early September, he has been on a gluten-containing diet this whole time.

The only other factor I can think of is that the first half of the year was quite stressful for our 3 year old. His brother was born in Feb, and he also started pre-school.

Thanks in advance for your help on this one!

Edited by CaveMum
0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Could it be that he was eating less gluteny products at that time? One time ( the initial test at ped's office) my son's main test was 25 but then three weeks later ( this was taken at Ped GI's office) was up to 67. His biopsy showed an estimated three years damage.

0

Share this post


Link to post
Share on other sites

Could it be that he was eating less gluteny products at that time? One time ( the initial test at ped's office) my son's main test was 25 but then three weeks later ( this was taken at Ped GI's office) was up to 67. His biopsy showed an estimated three years damage.

We wondered whether we'd changed his diet without realising, but in fact in the last three months, while waiting for the 2nd biopsy, we've made absolutely no restrictions on gluten (though it makes me feel sick thinking what gluten is doing to him). Is there anything else apart from gluten which influences TTG?

0

Share this post


Link to post
Share on other sites

The test is the IGA TTG one correct? That one tests for damage done in the intestines if i remember right. It is rare, but other conditions such as chrons disease (sp?) and some other AI conditions can be a culprit. Celiac is the main one that does it, however.

0

Share this post


Link to post
Share on other sites

The test is the IGA TTG one correct? That one tests for damage done in the intestines if i remember right. It is rare, but other conditions such as chrons disease (sp?) and some other AI conditions can be a culprit. Celiac is the main one that does it, however.

Thanks for your response. Yes, it was the IgA TTG. Endoscopy/biopsy is on Friday, so I suppose there will be a chance then to talk with the Gastroenterologist about the situation. In the meantime, I will perhaps look into crohn's and other auto immune disorders

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi there,

I believe a positive test (and I believe his was) is very accurate and specific to Celiac. We have an incredible GI who trusts TTG enough to diagnose Celiac on that test alone. (One daughter diagnosed through positive TTG and we ended up also doing genetics and endoscopy which revealed a little, but not much damage. The biggest outcome: she was a changed child off gluten!).

There are a good number of false negatives (including mine--I had a positive biopsy and never had positive bloodwork). I had so many food aversions that I wasn't eating much gluten as it was. Same was true for one of my daughters (negative TTG and ultimately diagnosed Celiac).

My biggest question is: how was your little one feeling/acting when off gluten?

And, my second biggest question is: what does your instinct tell you?

:) Sending you lots of support!

0

Share this post


Link to post
Share on other sites

Thanks for your response. When we had our consultation in October with the gastroenterologist to discuss the positive TTG/negative biopsy, she mentioned that he had been tested for EMA as well, which is specific only to coeliac disease. I believe at the very least he has gluten intolerance; whether or not he has "coeliac disease" will depend on the biopsy this Friday. Either way, we have decided he will be going on a gluten free diet after this second biopsy. There definitely will not be a 3rd biopsy. In the meantime I have read a couple of Rodney Ford's books and in retrospect, we should have refused the second biopsy and just taken him off gluten months ago. Our gastroenterologist was very insistent that a second biopsy was necessary - this specialist is in fact the Head of Paediatric Gastroenterology at our country's leading children's hospital - which made it difficult to refuse the procedure.

When he was off gluten in early September, his improvement was very rapid. His bloated tummy went away and the bowel motions firmed up. For the first time ever, he complained that it was hard to do a poo! His sleeping improved and we thought he seemed happier and less irritable. I am really looking forward to seeing what happens over the next few weeks, once he is off gluten. It makes me feel quite sad that he has had such a rough year; I really wish that I had known enough at the time to disagree over the need for a second biopsy. However, he only has a few more days on gluten, and then he's done with it for good.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,774
    • Total Posts
      932,336
  • Member Statistics

    • Total Members
      64,246
    • Most Online
      3,093

    Newest Member
    spartnbu
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello.  I was wondering what flavor the potato chips were.  Some flavors have dairy in them, like sour cream and onion, or ranch, or cheese.   Sometimes people with Celiac Disease develop an intolerance, or even an allergy, to dairy which can affect behavior, too. Some chips have flavor enhancers akin to MSG that might trigger a reaction.   Potato chips are processed with sulfites to prevent them from discoloration.  Some Celiacs develop a sensitivity to Sulfites in the diet.   And some Celiacs find it helpful to remove nightshade vegetables (potatoes, tomatoes, eggplant, and peppers) from their diets. Every one is different and reacts differently their own triggers.   I agree with Kareng.  You need to talk to your son.  I bet he feels embarrassed by his behavior, and is perhaps scared of not being able to control himself.  Your reassurance that he has your support can be invaluable.   You and your son might want to figure out together a plan of action if the situation arises again.  Help him learn to recognize when he's reacting and help him get through it.  Skipping rope to burn off the extra energy, puzzle books to focus the mind, soft lights and music, writing in a journal or coloring, or a clock ticking are things that may help.  But your love and support will be most important. Hope this helps.  Be encouraged.            
    • I think this site is a far better source of info and support than any of the Facebook groups I've seen. Its certainly been a great help to me. I found that too much web surfing on some other sites including Facebook just made things more difficult, there are either sites pushing commercial solutions with little real scientific grounding or there are often well meaning people with particular axes to grind offering dubious advice.  I stopped visiting those sites finally as they just added to the climate of fear and anxiety around diet and health. If your journey is any way like mine, you'll find that things get much better, both in terms of adapting to the diet and also in your general health and well being. The first weeks are hard but as you learn to read labels, know which are your safe products and make sure you are completely gluten free then your body will do the rest.  
    • Looks like this soup does contain gluten: https://www.chilis.com/docs/Chilis-Allergen-Generic.pdf The page that lists gluten free options does not show the enchilada soup as being gluten free (scroll down a few pages).  
    • Okay, you ordered it online.  What does the ingredient label say?  I did not even know they made a canned or packaged soup?  Or did you order online and picked it up at the restaurant?   Maybe there is no gluten at all.  Maybe they only use masa flour (corn) as the soup base.  
    • I ordered it online and it was an accident. The store is now closed and the internet is not offering any solutions. The customer service helpline is useless.
  • Upcoming Events