• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Brain Fog Is Going To Kill My Career
0

17 posts in this topic

Hi everyone,

I have been recently diagnosed with coeliac and have been on a gluten-free diet since September. Lately, I have been experiencing 'brain fog' and it is a nightmare.

I have always considered myself to have an awesome memory and always bragged about my short-term memory as I would be able to look at my notes just before being tested in an exam and remember what I had looked at quite accurately to get those extra marks. But lately my short-term memory is stuffed and I am only just realising. I have not liked my job for some time as I get so bored and there is no urgency in what I do. I started to not be able pay attention or concentrate well and put in down to "creating bad habits in a job I hated".

It is not so much the inability to concentrate but my forgetfulness is now shocking. I am building a house and it took me three days to remember to send through the title, I forget to put numerous things onto my shopping list. And worse, I have been offered an awesome new job and received a phone call to pick up my job contract over a week ago and just plain forgot. Even my boyfriend asked a couple days ago if I heard and I said I hadn't, even stating that it was "weird" I hadn't heard from my new boss about my contract. It took me a whole day to remember that he had called to come pick it up. I feel so awful and promised myself to pick it up today.. however he called this morning and asked me if I picked it up and sounded disappointed I hadn't. How can I explain it is not my fault and unlike me without sounding like it will affect my new job as I have so much learn.

I read that it can be an affect of cheating on the diet.. I am so careful, however my partner is not and still ingests gluten at home and I still get sick on occassion. I have decided that tonight I am going home and disinfecting the whole kitchen and removing all gluten from the area (at least until I figure out how to create a gluten friendly kitchen with gluten in it).

But does anyone have any tips on how to improve my short-term memory and inattention or stop gluten contamination from happening to me? I am so scared I will not be able to concentrate or remember things in my new dream job :(

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Once you have time completely gluten-free the fog WILL lift. I know it seems as though it will not, but it will. If time gluten-free does not improve your health it will be time to look to other possible intolerances.

I lost my career to undiagnosed Celiac Disease -- you are diagnosed -- you can salvage yours before it is too late.

Hang in there -- get ALL gluten out!

1

Share this post


Link to post
Share on other sites

Make sure your nutrient levels are good. If you are short on vitamin B, you will get brain fog. There may be other reasons. Keep walking in the right direction.

I hope you will get better soon,

Diana

0

Share this post


Link to post
Share on other sites

Does your boyfriend brush his teeth before kissing you? There is a source of cross contamination right there.

Also, post it notes are lovely for when you cannot remember a thing. As soon as you think of it, write it down and place it on your bathroom mirror. That way you will not forget.

0

Share this post


Link to post
Share on other sites

Thanks guys.. it is hard not to feel sorry for yourself sometimes, isn't it? I was quietly crying at my desk this morning because I became so overwhelmed with frustration and hopelessness.

I never thought that coeliac (celiac) could affect so many aspects of my life.. it is exhausting at times.

I am able to have a free blood test this week to have everything checked (vitamin and nutrient levels, etc.), as part of a health survey I did so I will definitely follow through with that.

I will also do the gluten clean out and if I am not feeling better by doing that then I will try cutting out all grains, and/or dairy.

I just want to be all better now so I can stop feeling so bad.

Thanks for your comments :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Does your boyfriend brush his teeth before kissing you? There is a source of cross contamination right there.

Also, post it notes are lovely for when you cannot remember a thing. As soon as you think of it, write it down and place it on your bathroom mirror. That way you will not forget.

Yeah sometimes he'll eat something then touch my hand or something.. and I'm like "Thanks for wiping your gluten germs all over me". And the other day he was washing up dishes and I was trying to cook. I asked him to wash a cutting board and he was trying to tell me was clean, I was like "it is COVERED in bread crumbs". Frustrating! So I think I need to talk to him about it as he just doesn't think sometimes.. but I would love to not have gluten in the house all together - I think he knows how upset I am at the moment so I think I can get him to agree (at least until he can more careful).

Post-its are a good idea.. I'll give that a try. Thanks :)

0

Share this post


Link to post
Share on other sites

and separate cooking items == like a bright green cutting board for your stuff -- preparing on a safe surface is of paramount importance

You can share a kitchen...but some duplicate items are essential -- we were combined for a while -- I went from a 4 slice toaster to two - 2 slice toasters -- one being covered in a bright green cover so no chance of cc. Separate colander, wooden cooking utensils, non-stick frying pans, etc...again separate color of items really helps.

0

Share this post


Link to post
Share on other sites

i keep a notepad and pen nearby me anytime i'm sitting down and jot to-do's down. i jokingly refer to it as my "portable brain." i used to be smart (hahahaha) but know i am definitely not as quick as i used to be. i don't know how much to blame it on undiagnosed celiac for 40ish years, how much is hormones, being middle-aged . . . or what. no matter what the cause, it helps me keep track of things. i started a new job this past september and had a few panic moments thinking i wouldn't be able to remember what i was being told. i decided getting it done right was more important than looking foolish, so i started jotting it all down on my notepad. it's really helped.

0

Share this post


Link to post
Share on other sites

Hi Brownie, I have more sympathy than anything because I am going through the same. gluten-free diet helped, now I have cut out grains, too.

Not a medical advice, but meditation helps me a lot. Have you ever tried breathing exercises? These things increase mindfulness, which I find help with my awful forgetfulness.

0

Share this post


Link to post
Share on other sites

Be sure to check your shampoos and lipsticks--lots of gluten action could be going on there.

0

Share this post


Link to post
Share on other sites

Not as bad, tho, as that cutting board just covered in glutenoid crumbs. Yuck! Completely unacceptable ! Really, you must get yourself some new, CLEAN, VIRGIN cooking accessories, mark them boldly with a permanent marker, and tell Mr. Contamination Vector to keep his glutentrash off of it !

Oh, and definitely use post it notes, and a notepad to jot things down immediately, if you don't have one of those cutesy electronic devices with a place to put calender reminders. It is interesting how aging effects memory also, in the sexes. As my parents aged, I noticed my mother, who didn't drive, could still remember routes to get to places she had been, and could navigate other drivers, like my stepfather, who could not remember as well. Now, I've noticed this interesting thing going on with my spouse, he can't quite remember where some store is, for example this weekend, but I could remember what street it was on, and what town, and how to get to it from a certain route to the north. But we were south of it. So he whips out his little new phone with the new map app and looks it up to confirm that I had the correct street (of course I did ! ;) ) but he's going to take a different route. I would have driven back up the highway to find the starting point I already knew, to re orient myself, without using the map. That's the difference. We live in an area which had a huge, huge growth rate in the past dozen years, population quadrupled, and they are still putting in some connector roads, and there is a whole slew of these new roads only a few years old yet that I just don't have memorized, but he does. So he takes the new route, and because it is dark, I am not quite following how he is doing this, but I don't really care. 5 years ago, I would have mentally insisted that I could be able to immediately pick up on this different route. Now, when we got close (by the street address) coming from the opposite direction, he started doubting himself, and I had to point out which side of the road we would be turning on to enter the parking lot, and soon enough, the store appeared.

But I wasn't worried because I was basically familiar with the entire area. However, I've learned that if we are going to a new place, I need to be less complacent because men do tend get too fond of their little electronic gizmos, and tend not to actually pay attention to the real, physical landmarks of where they are. :rolleyes: This is why I had to remind him to not turn left immediately as we were leaving. :lol:

0

Share this post


Link to post
Share on other sites

I totally understand where youre coming from, my boss recently told me I was 'forgetting things and to use a notebook' which is not good when my job is safeguarding!!. A few months ago I went gluten free for 4 weeks and on the last 2 weeks my mind/memory was amazing like never before ...unfortunately I now have to eat gluten until biopsy is done so Im very frustrated!

I'm sure you need to give yourself time to heal and you'll be fine :) but a few ideas to try while you wait:-

* Drink water to bring oxygen to the brain which helps memory recall.

* Ginko/Ginseng - my boss used to swear by it.

* Yoga - helps with destressing/clears the mind

* Beetroot surposedly good for the brain and parsley for the adrenals

* B complex

* Why not try a 3 day juicing detox for mind and body: Jason Vale on youtube

Good luck, you'll be fine :) oh and Congratulations on your New Job!!! :) ...knock em dead! ;)

0

Share this post


Link to post
Share on other sites

I have been really good this week :) and I really appreciate the advice.

I have been putting in reminders to my email and leaving post its about so I can remember stuff.. it seems to be working as I haven't forgotten anything so far... at least that I know of!I

I disinfected my pantry and removed the bread and wheat flour (finally) - have relocated the bread to a cupboard/benchtop in the laundry (ditched the flour) which will store Mr. Contamination Vector's gluten treats and toaster, his OWN cutting board and knife. I also brought new chopping boards. Next I will be cleaning out my cutlery drawers as I am sure some bread crumbs have made there way from the bench into the open drawer at some stage. Also, I really need a good check of my makeup.. I have checked most of my lip stuff, does the other makeup matter if it goes on your face and that? (is that a silly question?)

When I wrote my comment on here I was so upset. But I am actually looking at things with a clearer head now that I have had time (and with some help) and have come up with solutions and I feel a bit better. Sometimes I do panic and get overwhelmed (damn anxiety) - but I must be positive!!!

Thanks Veggie Gal, I am very excited about my new job and feeling better about it .. I drink 2-3 litres of water everyday!! But yoga and a juice detox may help too. Maybe buy some gingko tablets. I'd try anything at the moment!

I just went through the gluten challenge myself recently so I know exactly how hard it is!!

So I wish you luck and hope you get the answers you seek.

0

Share this post


Link to post
Share on other sites

I have been really good this week :) and I really appreciate the advice.

I have been putting in reminders to my email and leaving post its about so I can remember stuff.. it seems to be working as I haven't forgotten anything so far... at least that I know of!I

I disinfected my pantry and removed the bread and wheat flour (finally) - have relocated the bread to a cupboard/benchtop in the laundry (ditched the flour) which will store Mr. Contamination Vector's gluten treats and toaster, his OWN cutting board and knife. I also brought new chopping boards. Next I will be cleaning out my cutlery drawers as I am sure some bread crumbs have made there way from the bench into the open drawer at some stage. Also, I really need a good check of my makeup.. I have checked most of my lip stuff, does the other makeup matter if it goes on your face and that? (is that a silly question?)

When I wrote my comment on here I was so upset. But I am actually looking at things with a clearer head now that I have had time (and with some help) and have come up with solutions and I feel a bit better. Sometimes I do panic and get overwhelmed (damn anxiety) - but I must be positive!!!

Thanks Veggie Gal, I am very excited about my new job and feeling better about it .. I drink 2-3 litres of water everyday!! But yoga and a juice detox may help too. Maybe buy some gingko tablets. I'd try anything at the moment!

I just went through the gluten challenge myself recently so I know exactly how hard it is!!

So I wish you luck and hope you get the answers you seek.

Way to go Brownie!!!

Keep it up and be nice to yourself if the fog gets thick ;)

0

Share this post


Link to post
Share on other sites

i'm not an expert on this, but have been told that your skin is highly absorbent and you shouldn't use anything on it that has gluten. in other places i've read that you must take it in orally. so . . . who knows? i'm thinking to be on the safe side, i'd make sure all the cosmetics are ok. i've called manufacturers and checked websites - it's doable to check them all out.

glad you're feeling better!

0

Share this post


Link to post
Share on other sites

I too am having memory problems and have been for a long time before I was diagnosed in August 2012. I suspect however that I was gluten intolerant for a long time without realizing what it was. What led to my diagnosis was a outbreak of dermatitis hepetiformis. I do hope time will be the factor to help my memory. I am 72 years old so wonder if it is all due to celiac?

0

Share this post


Link to post
Share on other sites

You may have some level of adrenal fatigue and/or hypothyriodism. When I got burnt out and severe adrenal fatigue my memory went from really good to borderline dementia. I was also intolerant to casein, if you eat lots of milk/cheese maybe you should trial casein first. You probably don't have to remove cream/butter/ghee though since the milk fat isn't very allergenic

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,678
  • Member Statistics

    • Total Members
      63,884
    • Most Online
      3,093

    Newest Member
    Mato Sapa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Steph and welcome I'm yet another Brit, funny how the alcohol threads flush us out I don't drink now but after a big night I used to get truly savage all day hangovers, much worse than those of my friends. They could include splitting headaches, vomiting, nausea, a 'fuzziness' in my head, sweats etc.  After I put the pieces together and went gluten free I had a 'big night' on cider only and the next day was a revelation. What I'd thought was a 'normal' hangover was, for me at least, anything but. With gluten out of the equation hangovers were a breeze! The difference was mind blowing and just one more example of how gluten had been messing with me over the years. So when I read your post my first thought was that there was some trace gluten contamination going on. However: Obviously you've been at the diet for some considerable time now and know the score. I know Coeliac UK are firmly of the opinion that all spirits are safe but some (note some this a contentious one :D) members here will tell you they react to gluten based grain spirits for instance which distillation should render safe.  Then there's the dangers of shared lines if you're drinking say Strongbow in a pub as alluded to above. Lastly it its wine, there's the often cited but maybe apocryphal these days 'flour to seal the casks' possibility. Finally there's bar snacks, maybe a brand of nuts etc that you snack on that may have changed their production process? I'm sure you've thought of these already, but it may be useful if you post your alcoholic drink choices / bar snack of choice up here maybe someone will have some input?.   The second thing which leapt out was: Would you class yourself as super sensitive to cross contamination etc? Firstly that would make the cross contamination theory more compelling. You could test that out by having a drink at home under controlled circumstances to see whether the same issue arises? That could also answer the quantity question. Does one safe drink trigger it, two, three etc? Finally, and this is one that I find difficult, knowing you have the gluten issue may lead you to assume it's that when it could be something else. I tend to attribute EVERYTHING in the world to gluten these days due to it being able to affect me in so many different ways. Crisis in Korea? Gluten. Russian tanks massing on the Ukrainian border? Check their wheat intake. Global warming? etc. So it may make sense to pursue some other ideas at the same time. Try:  http://goaskalice.columbia.edu/answered-questions/suddenly-drinking-alcohol-makes-me-sick http://www.steadyhealth.com/topics/very-abnormal-hangovers-thinking-it-could-be-allergy-to-alcohol Cheers Sorry, best of luck! Matt  
    • Similarly, I've been vegetarian for 25+ years.  A 2015 Nature study connecting emulsifiers with microbiome changes has me wondering about the processed foods that I ate in the past, and I wonder about the wisdom of eating as much seitan as I did.  I mostly prefer my post-diagnosis diet since it forces me to consider every ingredient and to cook from scratch more.
    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
  • Upcoming Events