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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Discouraged...
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7 posts in this topic

Two months ago I was diagnosed as celiac. I believe I have only been Celiac for 1 1/2 years before diagnosis. I was just fine with zero problems and allergies until a large round of antibiotics. After the antibiotics - I ended up with alot of digestive issues, rashes, headaches, ect ect.

Anyhow...DH and I have two daughters. We were trying to conceive this year(before diagnosed) and ended up with 3 miscarriages. We never had any problems conceiving our daughters (but that was back when I was healthy.) I have been on a very strict gluten free diet for 2 months. I feel discouraged because we want so bad to have one more baby, and I worry it'll never happen. The miscarriages hurt me so bad and I worry I'll have difficulty carrying a baby to term.

Otherwise,I feel better, all of my symptoms have gone away and I actually feel great. But I find every now and then I get an occasional rash despite being as strict as I can with the diet. I home cook all our food and we never eat out.

I have been rash free for a full month, then I eat some Hersheys dark choc chips on yogurt and I get a rash. I can't contribute it to anything else but the chocolate chips - but they are supposed to be gluten free. I get discouraged because I'm trying to take care of my health and stay gluten free so we can TTC but then I feel like I've been set back. I know I've only been celiac for 1 1/2 years so I'm hoping the damage to my body hasn't been too great.

My other concern is I read alot of stories of women who have entered early menopause due to celiac. I'm scared that could be me. I have had the worst hot flashes (when eating gluten - before diagnosed), just horrible sweating spells. They have gone away since being gluten free and only come back when accidentally glutened. I am 34 years old my periods are exactly 28 days like clockwork and very normal.

We want so bad to extend our family by one more.

Can this happen for me? Has anyone else been through this? Are these normal feelings?

Sorry, if my post was all over the place - this has been bottled up in me.

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Welcome to the forum, Alexis. I am so sorry you are going through this sad, sad time with your miscarriages. It is very heartbreaking and stressful. But you are very young still -- many women today don't start their families until your age, so please don't think that your time is past.

With the miscarriages your body is sending you a message that it is not yet ready to carry a child to term. Gluten exacts a terrible toll on us and it does take time to recover. If you have not already done so, have your pcp run a blood panel for all your vitamins and minerals because celiac is a disease of malabsorption and you may be low on many of these, vitamins A, B, E, D, K, especially D and B12, but for babymaking folate as well, and iron/ferritin, potassium, zinc, magnesium. Once you have all these nutrients in good balance your body should be ready again to carry your next baby. Do not be in too much of a rush to conceive because you and the baby both need to be healthy :)

Two months is actually a very short time in the the period of gluten recovery. It took you one and a half years to get where you are, so it is going to take you a while to get back. Not the 1-1/2 years (actually a very short time in which to be diagnosed) but if it were me I would give it six months to restore your health. Many, many of our posters who had trouble conceiving before diagnosis have no problem once they have regained their health. :)

If your periods are regular and you are no longer consuming gluten, I think you are pretty safe from early menopause. Sweating, hot-flash-like symptoms can occur without menopause.

The rash is possibly beginning dermatitis herpetiformis which is the skin version of celiac, which can persist for some time after you stop eating gluten and is often aggravated in some people by iodine. So you could try avoiding foods high in iodine - such as milk and egg yolks, seaweed (sushi), etc. A google will show a list of these foods. So it is possible the yogurt contributed to your rash.

So keep up the good work of staying gluten free, supplement as necessary and in a few months you should be able to conceive and carry your baby to term. Do not be discouraged. You are doing well and have come a long way. :)

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Welcome to the forum, Alexis. I am so sorry you are going through this sad, sad time with your miscarriages. It is very heartbreaking and stressful. But you are very young still -- many women today don't start their families until your age, so please don't think that your time is past.

With the miscarriages your body is sending you a message that it is not yet ready to carry a child to term. Gluten exacts a terrible toll on us and it does take time to recover. If you have not already done so, have your pcp run a blood panel for all your vitamins and minerals because celiac is a disease of malabsorption and you may be low on many of these, vitamins A, B, E, D, K, especially D and B12, but for babymaking folate as well, and iron/ferritin, potassium, zinc, magnesium. Once you have all these nutrients in good balance your body should be ready again to carry your next baby. Do not be in too much of a rush to conceive because you and the baby both need to be healthy :)

Two months is actually a very short time in the the period of gluten recovery. It took you one and a half years to get where you are, so it is going to take you a while to get back. Not the 1-1/2 years (actually a very short time in which to be diagnosed) but if it were me I would give it six months to restore your health. Many, many of our posters who had trouble conceiving before diagnosis have no problem once they have regained their health. :)

If your periods are regular and you are no longer consuming gluten, I think you are pretty safe from early menopause. Sweating, hot-flash-like symptoms can occur without menopause.

The rash is possibly beginning dermatitis herpetiformis which is the skin version of celiac, which can persist for some time after you stop eating gluten and is often aggravated in some people by iodine. So you could try avoiding foods high in iodine - such as milk and egg yolks, seaweed (sushi), etc. A google will show a list of these foods. So it is possible the yogurt contributed to your rash.

So keep up the good work of staying gluten free, supplement as necessary and in a few months you should be able to conceive and carry your baby to term. Do not be discouraged. You are doing well and have come a long way. :)

Thanks, I really appreciate the information. I needed to hear something positive.

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I got pregnant 2 months after going gluten free (January of this year) miscarried in February and got pregnant again in July. I'm just about 26 weeks now. We did almost 4 years of fertility treatments with no results, diagnosed and within months I was pregnant with zero help. It takes time for your body to really heal.

Hang in there =)

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There should be a law that they have to test for celiac disease first before prescribing fertility treatments! :unsure:

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I got pregnant 2 months after going gluten free (January of this year) miscarried in February and got pregnant again in July. I'm just about 26 weeks now. We did almost 4 years of fertility treatments with no results, diagnosed and within months I was pregnant with zero help. It takes time for your body to really heal.

Hang in there =)

Congratulations on your healthy pregnancy! Thanks for reminding me that it takes time to heal - reading these posts has been helping me feel more positive about it.

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It took me a good 18 to 20 months to get pregnant as my body healed from Celiac and I now have a healthy 9 month old. Also, like you, I get crazy "hormonal" type symptoms after getting glutened. I wish you the best!

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