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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Anyone Gained Weight Without Gaining Size Or Muscle?
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5 posts in this topic

I'm assuming this is related to the Celiac disease because it all started when I got really sick, but my doctors have been essentially useless.

I'm a fairly skinny 19 year old girl. I was just recently diagnosed but I've probably been dealing with Celiac since infancy. I'm tall - 5'8 - and I wear either a size 4 or a 6, sometimes an 8 (my measurements are 36 - 28 - 36) and I normally weigh about 145 lbs. Recently I've been weighing in at about 165 lbs but I haven't gained any size or muscle. The doctors are kind of ignoring it but it's really bothering me, I guess. 165 is very, very heavy for me. My PCP theorized that it could be built up fecal matter.

Has this happened to anyone else? It's driving me bananas.

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Hasn't happened to me. Wish I could borrow some of those extra pounds, LOL. Ain't been able to get up to a normal healthy weight.

The only thing I can think of is bone density. I agree that 165 pounds is too much for your height and frame, unless you're a body builder or doing a lot of strength training or some such.

Perhaps your body is finally able to do something it has been trying to do for a long time, but it hasn't adjusted to the new circumstances yet. Like when you reach for a bottle that you think is full, but it's almost empty, so you use too much force and your arm goes way up too high.

Maybe your body simply needs time to adjust. How long have you been gluten-free?

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No, at 5'-8", 165# isn't too much, it depends upon your build.

I'm gaining weight :ph34r::blink: but losing size because I'm gaining muscle, I gain it relatively easily if I work out, and I'm wide in the shoulder and hip, I'm never one of those "small" sizes even if I were to be thin. Last summer I told the sales clerk at REI I needed a men's lightweight sun- block shirt because of this, and she said, (this cracked me up) "oh, you have kayaker's arms, you want one of these." :lol: It's true, I do. But it's just the genetic luck of the draw. I couldn't believe it when I last weighed myself, I was sort of horrified, but I'm a lot fitter, so it's a trade off. Honestly you would never guess how many freaking vegetables, nuts, and fruits I eat. :angry: And I cut back on my bread making, and I don't eat cereal. Apparently this is a side effect of aging and hormone change. 2 years ago I tried cutting way, way back on the amount of food I ate, and absolutely nothing happened other than I got very tired, a lot, and sort of puffy <_< . Now, if I get glutened mildly, I will retain fluid, that is one of the first hints that something cross contaminated has breached the hull.

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Hasn't happened to me. Wish I could borrow some of those extra pounds, LOL. Ain't been able to get up to a normal healthy weight.

The only thing I can think of is bone density. I agree that 165 pounds is too much for your height and frame, unless you're a body builder or doing a lot of strength training or some such.

Perhaps your body is finally able to do something it has been trying to do for a long time, but it hasn't adjusted to the new circumstances yet. Like when you reach for a bottle that you think is full, but it's almost empty, so you use too much force and your arm goes way up too high.

Maybe your body simply needs time to adjust. How long have you been gluten-free?

I've been gluten free for about 2 months now, but the first notice of this was at the appointment when I was first diagnosed.

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No, at 5'-8", 165# isn't too much, it depends upon your build.

I'm gaining weight :ph34r::blink: but losing size because I'm gaining muscle, I gain it relatively easily if I work out, and I'm wide in the shoulder and hip, I'm never one of those "small" sizes even if I were to be thin. Last summer I told the sales clerk at REI I needed a men's lightweight sun- block shirt because of this, and she said, (this cracked me up) "oh, you have kayaker's arms, you want one of these." :lol: It's true, I do. But it's just the genetic luck of the draw. I couldn't believe it when I last weighed myself, I was sort of horrified, but I'm a lot fitter, so it's a trade off. Honestly you would never guess how many freaking vegetables, nuts, and fruits I eat. :angry: And I cut back on my bread making, and I don't eat cereal. Apparently this is a side effect of aging and hormone change. 2 years ago I tried cutting way, way back on the amount of food I ate, and absolutely nothing happened other than I got very tired, a lot, and sort of puffy <_< . Now, if I get glutened mildly, I will retain fluid, that is one of the first hints that something cross contaminated has breached the hull.

I know my BMI is still considered normal, it's just that I have a relatively small frame. I'm a busy student so I'm not active enough to have a dense muscular frame. I'm sure I have some fluid retention, but that seems to be a lot of extra weight that I'm not used to having.

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