• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Brittanyadell

I'm Not Convinced By My Test Results.

Rate this topic

Recommended Posts

Okay, so I am a 17 year old girl who has had one blood test to see if I was celiac or had any deficiencies in my nutrient, vitamin and mineral levels. This was about 4 or 5 months ago now... All the tests came back NEGATIVE.

I have been severely lactose intolerant since I was a baby, and remember growing up with a constant stomach ache or upset stomach after eating virtually anything. From ice cream, to pasta, to cake, I was constantly in the washroom with terrible upset stomachs. When I was 11, I began getting severe ocular migraines (where your vision becomes swirly for about 30 mins, but rarely any pain), my eye doctor and family doctor told me that there's no way to determine the cause of these "migraines" but often times food can be associated with them. Around age 13, I was stricken with the most severe stomach aches I have ever gotten. They started out as just a regular stomach ache, I apologize if this is a little TMI, then the pain would increase and increase until my stomach would make this noise (similar to blowing bubbles through a straw into a little bit of water) and this would happen over and over again. It would send my body into a sort of opposite vomiting spell. My bowel movements were often times watery, fatty (kinda with white mucus looking stuff on it, sometimes with undigested food). One minute okay, the next having increasing pain, then severe diarrhoea. I was prescribed Zantax and was told I had IBS and to avoid acidic foods.

When I was 15, I began exercising and eating considerably less processed foods. I ended up dropping from my unhealthy weight of 153 down to my current weight of 130. My weight loss has happened very naturally, over the period of almost 2 years, with only healthy changes as the cause. This helped my stomach very, very much, but I still had many negative symptoms.

In February 2012, I made the decision to stop consuming dairy. I replaced nearly every dairy product in my diet with a soy alternative, resulting in what I considered a severe hormone imbalance. I missed my for the months of February and March, had severely oily hair and skin, and put on a fairly large amount of water weight. I then opted for a more soy-free version of my dairy-free diet - I know use almond milk, and just don't eat any kind of cheese or yogurt or anything like that.

I began training for a half marathon in the spring, began training with a trainer and she recommended I try cutting out gluten to see if that helped the remainder of my still frequent stomach troubles. I did as she said and began a mainly gluten-free diet in July 2012. I noticed it helped very much. My diet consists mainly of fruits, veggies and protein. Occasionally the odd piece of Udi's bread or a gluten-free, DF cookie.

However, I really just want conformation. I had a blood test taken as I said, that came back negative, but the severity that I get sick when I consume something containing gluten or dairy is unbelievable. Is it possible to have celiac disease and have your blood test come back negative? If I go back to my doctor, he will think I'm crazy, but I just am not convinced that something more serious isn't going on.

I am not currently following a 100% gluten-free diet, and haven't been having the most happy insides lately. I'm sorry this is so long, I just wanted to get my story clear in hopes that someone could help or relate or lend me a little bit of advice. I'll be starting university next fall, or travelling am nervous that without a clear diagnosis that I could be putting myself at risk.

The foods I have determined that I am extremely sensitive to are: Dairy (I'm for sure lactose intolerant), Gluten (suspected intolerance or maybe celiac disease?), Peanuts (severe stomach ache from them), Raw Carrots (severe stomach ache and gas), and I'm very sensitive to sugars (I try very hard to avoid any artificial sweeteners, but even natural sugars cause my insides to act up). *I also have suffered from severe eczema and often times break outs around the times I consume gluten.. I don't know if that could have an effect.

Thank you so much for reading this essay of a post,

Brittany

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My blood work was negative, but I responded so great to not eating it. I could tell after one meal--I didn't feel more sick after eating than before I ate. Luckily my endocrinologist agreed that even if the blood work was negative, but having a positive dietary response that going gluten free would not hurt me. She said it isn't like a diagnosis changes the treatment plan. Celiac, gluten sensitivity/intolerance or wheat allergy are all treated by not eating it.

Share this post


Link to post
Share on other sites

You may not have been eating enough gluten to have a positive celiac test. No worries--you know what you're reacting to....so simply eliminate ALL gluten for life. You'll be glad you made the decision.

  • Upvote 1

Share this post


Link to post
Share on other sites

If you went gluten free in July, and got tested September (four months ago), that means you were gluten free prior to testing, so the tests can't give you a reliable answer to whether or not you have celiac. You have to be consuming gluten at the time of (and for a few weeks or months prior to) testing in order to be accurate.

Share this post


Link to post
Share on other sites

If you went gluten free in July, and got tested September (four months ago), that means you were gluten free prior to testing, so the tests can't give you a reliable answer to whether or not you have celiac. You have to be consuming gluten at the time of (and for a few weeks or months prior to) testing in order to be accurate.

That's definitely a point I hadn't put much consideration into. Thank you!

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,955
    • Total Posts
      943,655
  • Member Statistics

    • Total Members
      67,258
    • Most Online
      3,093

    Newest Member
    CharleneM
    Joined
  • Popular Now

  • Topics

  • Posts

    • Gemma......if you are ever in London, please check out this place.  It is a 100% gluten free bakery and the food is out of this world!  I can't get bread like this in the States and it certainly is worth a road trip for anyone living in the Uk, within reasonable distance from London.  It will easily satisfy all of your bakery cravings and I bet the bread freezes well. http://www.beyondbread.co.uk/
    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
  • Upcoming Events