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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Chronic Non-Specific Dermatitis...
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10 posts in this topic

...was the result of my son's skin biopsy. Which quite frankly, I knew before I even took him to the doctor's office. I was kind of hoping to clear up the 'non-specific' part! So needless to say a little frustrated. And a little mad. When I spoke to the arrogant doctor (as previously documented on this forum :-) ) we discussed that he would take 3 samples - two blisters and a clear bit. When I took the dressings off, I saw he took the first two only. So I'm wondering if that's what's led to this result? Is it possible that such an inconclusive outcome is due to just taking two blisters and no clean skin?

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The biopsy HAS to be taken from CLEAR SKIN ADJACENT TO AN ACTIVE LESION. So the 2 biopsies he did don't count. :(

I feel like the arrogant doctor did this on purpose.

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I had wondered about the sabotage thing myself....it sounds horrid but wouldn't have surprised me. Especially since he told me specifically he would take clean skin and then didn't. I'm kicking myself for not actually watching him - but I had to turn away. And we had had the 'take it from the clean skin' discussion immediately prior so I thought we were sorted....*sigh*

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Yes, he scammed you--what an arrogant, arrogant doctor! Is there any recourse? Either you need to have a new derm do it over again or insist that the first one do it correctly. Bring in written information if you need to--this man needs to be educated!

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Problem is jlaw is in India so I don't know that there is much recourse for her over there. :(

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I have a sneaky technique - I'd go back and say there seems to have been a mistake and I know you were very keen to get a biopsy on clear skin as we know how important it is, so we can sort it out quickly today. Or something like that.

I had forgotten that you were in India with a very traditional doctor. Sometimes getting what you want without having the other person lose face is more important than winning an argument. You could even say you know you were upset on the day and are sorry you distracted him. Or something.

I have had to be sneaky and fawn a bit to get my son tested.

I hope you find a way. Go Mum, go!

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Good tactic mindwarp! It's worth a shot jlaw.

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Thanks all, and Mindwarp, you sound like the kind of person I wish I was more like! You are absolutely right, especially in this culture where everything is done in a round-a-bout way, as opposed to talking directly. Still, I do have a contact for another reputable dermatologist in this city...my poor little brave boy. Should not have to do this again...

Thanks all for your support

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Hugs for your brave little boy!

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Great if you can get him to another dermatologist. Sorry you have to see him go through that again. When I took my son for his skin prick gets and blagged a celiac panel I was great being strong while with him, but blubbed and shook once dh could take over. Just to say I feel for you.

Good luck, sounds like you are doing a great job x

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