Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Help, Again. Please


DavinaRN

Recommended Posts

DavinaRN Explorer

Ok I ate at O'Charleys for lunch. Salad (lettuce & cheese only) with ranch (listed as gluten free) and Loaded potato soup (listed as gluten free). Got a second bowl of soup, ate a few bites and started filling my normal gluten sick (11:30 am-neasua, pain, "D" feeling, just not having). I took a zofran, BC (always get body aches, stabbing abdominal pain soon after) and continued shopping. Fast forward to 1:30ish, palms were red, itching and burning; I was so sick to stomach, "D" feeling bad but not started, could barely stand straight due to abdominal pain. Thank God my mom with me, told her we had to leave store (had been to bathroom twice, but no "D"). I made it to sidewalk but just sitting down, while she got my car. Headed home, had to stop to get benedryl due to clawing palms and soles of feet time 1:50 when I took 50mg. Had "D" accident on way home :(. Got home 2:10, shower taken. By 2:30, severe chest tightness, felt like a bear hug from a giant who wouldn't let go, rash head to toe, fire truck red skin head to toe. Epi-pen shot and off to ER. At ER, bag of IV fluid, shot thru IV, prednisone, atarax, Pepcid. More "D" and threw up what was left in my tummy. Now I still have quesy tummy and "D" and get to look forward to 60mg prednisone a day for next 5 days.

So after my wonderful day of shopping with my mom, do you think gluten allergy instead of intolerance or some of both. Gotta follow up with primary (the one who said couldn't have wheat/gluten issues without constant "D")

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Sounds to me like you had a possible reaction to the medication on top of a glutening. You can take something one day and be utterly fine with it and the next time you take it, it'll bite ya (i speak from experience). I mention this because its a bit too long of the time between the possible glutening and the time you were in the E.R. Generally, if ya have an allergic reaction, it'll take place (the severe part of it) within 30 or so minutes after ingestion.

Link to comment
Share on other sites
HeazerHacker Newbie

When I got diagnosed with Celiac, I had to get multiple I.V.s for malnutrition and dehydration. I agree with shadowicewolf though that some of that sounds like an allergy. Have you ever had the allergy test where they give you a bunch of shots and tell you what you are allergic too? Maybe you should find out in case you do have an allergy so you do not end up with anaphylaxis. Have you been tested for Celiac? If so and you know you do not have it then it would not hurt to get an allergy test for wheat/gluten. When I have gluten, I get sick for days, sometimes up to a week. It is terrible, and that is why I end up with I.V.s

Link to comment
Share on other sites
Piccolo Apprentice

I found out from experience O'Charley's is not a safe place for us to eat in. I am not sensitive at all and the one meal I had there I reacted to. It kept me on the pot for a while.

Hope you feel better.

Susan

Link to comment
Share on other sites
Adalaide Mentor

You certainly had an allergic reaction. You also had a classic gluten CC reaction. I have to agree that you should do an allergy test to determine what it is you are allergic to. Until such time as you know, I would entirely avoid eating out and most processed foods because there is simply no way for you to know what it is you had an allergic reaction to. As a small girl my daughter's best friend was allergic to strawberries. Talking to her mom it seemed that she was fine one time and the next she simply wasn't. Because you were in a restaurant setting and there really isn't a way to know what on earth your food was in contact with, the allergic reaction could be a result of pretty much anything at all.

For those of us who simply have bad reactions and celiac, we "only" have to deal with being miserably ill and neurological problems and pain for a few weeks or months if we eat out and it all goes horribly wrong. For those with allergies it can be truly life threatening, it may be have to be a line in the sand for you.

Link to comment
Share on other sites
DavinaRN Explorer

Thanks everyone. After much research late last night, I have found that anaphylactic allergic reactions symptoms can include digestive issues (nausea, vomiting , abdominal cramps, diarrhea), skin issues (flushing, swelling, hives, itching) respiratory issues (coughing, wheezing, shortness of breath, chest tightness) heart/circulation (low blood pressure, dizziness, fainting) not to mention eye, nose, and nervous symptom. So even though I had decrease in joint pain and headaches along with GI issues. Thinking I may have both. Allergy testing Jan 11

Link to comment
Share on other sites
nvsmom Community Regular

Oh geez. Good luck with your testing! I hope you never have another experience like that again... Yikes!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    2. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    3. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

    4. - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

    5. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...