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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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jaimelynn

Undiagnosed - Talking With Doctor

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I am new to this forum and have had possible symptoms for over a year - actually longer if I look back at my history. I have been to the doctors multiple times and still have not had the doctor agree to test for celiac.

I have a "lump" in my upper right abdomen, but all testing has shown that everything in my upper abdomen in normal. I have had multiple ultrasounds and there appears to be nothing there.

I also am unsure as to what a normal bowel movement is. I alternate between bouts of constipation and diarrhea and pretty much have for as long as I can remember – just thought that was normal.

Most recently, I spent 8 hours last night/early this morning in the ER for sharp pains in my lower right abdomen. Didn’t think it would be related, but just had a friend tell me that they get lower right abdominal pain after eating gluten – which I realized is all I ate yesterday and also had a lot of since Christmas Eve :-/

They ruled out appendicitis and ovarian cysts, also kidney and liver issues based on ct scan, ultrasound, and blood work – that’s going to be a pretty penny.

Hopefully tomorrow I can finally talk my primary care into doing some celiac testing, because I notice when I don’t eat gluten I am feeling much better.

Any suggestions or recommendations would be greatly appreciated!

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I think the main thing right now for you is to INSIST on celiac testing before trying gluten-free, or the testing will become ineffective.

Oh dang, just saw that you may have already had the appt today. How'd it go?

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