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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Question About Gluten Sensitivity
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My son is now 18 montha old. Since august he has had loose/diarrea bm's til october when the doctor said to put him on gluten free for 2 weeks. Quickly, he started having normal bm's and Dr said to take him off gluten diet and he did fine for about 3 weeks. Towards the end of november he got sick and had diarrea and thought it was because he was sick. But it hasnt stopped and still has diarrea /loose diapers now. He is gaining weight normally, Dr's did common children food allergies test and celiac but came back fine...so does anyone else know what could be wrong?

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If your son was gluten free when he was tested for celia, his results probably aren't accurate. Plus very young children do not test well for celiac; they have a very high false negative rate. There is a chance his negative result was not accurate, or he could be a nonceliac gluten intolerant person.

Does your son drink milk? Perhaps his lingering "d" is from a lactose intolerance (common amoungst celiac). Is he still 100% gluten-free so gluten is definitely not a factor?

Best wishes. I hope you are able to find the answer and that his bm issues resolve quickly.

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Thank you, For the whole month of September I didnt give him any milk, only water and no juice. When they tested him I had cut out a lot of gluten but was still giving him some once in awhile..its so expensive for gluten free food! I completely cut out gluten again since Thursday and slowly it looks like he is getting little better w/ diapers. I did notice sime diapers seemed..like maybe they had acidic or something because I would change him quickly but he would be real red. I hope maybe its just a childhood thing and he grows out of this. I was hoping it was maybe one allergy instead of all gluten. He really loves it

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We experienced the exact same thing with our 18 month old; loose stools for two months. We could hear her mess a diaper and even if we got her out of it and cleaned off in 20 seconds, her bottom would already be red, like the stools were caustic. We just did the blood draw for the celiac panel over the holiday and are waiting on the results, but going gluten-free seems to have improved her symptoms.

My husband is celiac and a gluten-free diet doesn't need to be expensive, but it can take a little more effort. Just means you eat more whole foods instead of prepared stuff; I eat better now that I'm with him! More fruits and veggies! Because you're right- gluten-free ready-made food is super expensive and that's why we hardly buy any except for some breads and snacks.

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The testing for celiacs is not foolproof, so it makes sense to put him back on gluten-free full time for a few months. There has to be a reason he improved the first time right?

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    • I do have a referral to another GI at one of the top hospitals in North Carolina. I'm just waiting on the call to schedule an appointment. 
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    • No I havent cut out any gluten. I cut out stuff I knew hurt me. Like watermelon. Which sucks because I LOVE watermelon.  There are days that I cant even get words out. I can think a sentence and just cant get it out. I constantly stumble and feel drunk in my head. I'm hoping these daily shots of B12 I'm getting will start to help some.  Yesterday I put the milk in the cabinet    
    • Hello and welcome Its good that your doctor has ordered the celiac test, not sure why your GI didn't, as you say perhaps he was presupposing IBS... You mention cutting out food, you haven't tried cutting gluten yet have you? That can throw the results of any testing. You are best to stay on it for now at least, once testing is done it would be worth trying the gluten-free diet regardless of results. Dont lose heart, be persistent, get those answers and best of luck!
    • Hey Kez and a belated welcome to the forum  Sorry your post didn't get an answer, sometimes one slips through.  Re your results. The number prefixed with the H is the level of antibodies detected. The second figure should be the range beyond which the test is considered positive. Usually that's in the form of a range like this: So for the quoted test above a figure more than > 10 would be positive. I just can't tell from your post what the range is.  I suspect less than 7 was negative so you've either scored a weak or a full positive depending on the scale. Have you posted all the info that was on the test?  Here is a little more detail about what each test is looking for if you want to know the science: http://glutendoctors.blogspot.co.uk/2009/01/interpreting-lab-work-gluten-sensitive.html Coeliac can certainly play havoc with your skin. In my case I found dairy was a big offender as well. Best advice I can give you is to stay eating gluten till your endoscopy. Ask your health provider if its possible to call asking for cancellations if you want an appointment sooner. But stay eating gluten so you get an accurate result. If its negative, try changing your diet regardless. 6 months without gluten and dairy may sound scary but if it cures your health issues you'll never look back. Best of luck!
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