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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sugar And Fruit Problems
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20 posts in this topic

Hi

I have had great improvements on the gluten-free diet but I have got a bit stuck. I think I have managed to gluten myself 5 times in 6 weeks. My symptoms are day 1 extreme tiredness and mood swings, day 2 migraine, day 2to3 sickness and D followed by a few days feeling run down.

The only other thing I have noticed is that it seems worse if I have much sugar or fruit. Like maybe half a satsuma would be a much as I could do in a day, or a small glass of juice. I won't touch apples, grapes, melon etc any more, and even my old standby banana is too much.

I also tend to get bad reflux from fruit and sugar goodies.

I have been having maybe 2 gluten-free brownies a week in a coffee shop, and pinching the kids chocolate around Christmas. Can't stand most yogurts any more.

I have found recently and in the past that sugar is very addictive for me, and after a few days upping my consumption fairly minimally (say a small cake or couple of cookies) I often end up with sickness and D.

I am starting the Whole30 programme on 2nd, which is a wholefoods paleo type diet, as an elimination.

I know that part of the answer is to cut it out, but how extreme does this need to be?

I wondered if anyone has any advice about this?

I have had negative thyroid tests and I am not diabetic. I wondered about fructose intolerance or SIBO but my GI was dismissive. I have a small hiatus hernia.

Sorry if this is a mixed up post - as you can see I am confused :?

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Hi CM,

I think the first priority is to eliminate the glutenings. While those are going on it's hard to tell what other food reactions might be. Until those stop for a couple weeks your system will be a bit "messed up" immune system and digestion wise.

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Gee Free speaks the truth, kiddo.

No way to tell if anything else is going on as long as you are being dosed by small hits and the inflammation is ongoing.

It could very well be fructose malabsorption for example, but it could also just be your gut is in chaos.

Frankly, the whole 30 program will be a good way to "clear the decks" so to speak.

Nothing there that will give you any chance accidental glutenings.

I won't lie to you, though...the first week on that program may cause some withdrawal symptoms.

(at least, it did or me, but once I had a week under my belt, I felt pretty darn good)

I never should have reintroduced so many fun foods all at once over the holidays :unsure: as I am now in a bit of GI distress myself.

Ah well. onward and upward.

Hope you start to feel better soon..Lots of water to rehydrate from the D and rest.

And we'll tackle this whole 30 thing together.

,

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Having seen me ill so much Mr Mindwarp is getting closer to going for a gluten-free house... I will call and see if my sons blood tests are in as we agreed whole house if son is positive. My theory is that if I still get glutened on wholefoods it must be cc.

Thanks both

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I hesitate to say this anyone because many celiacs co-exist with WEs and do fine, but if you're not ingesting anything with gluten, but you're still serving gluteny meals, especially to kiddos whose hands touch everything around them, then, yes, hon, there's a good chance you are inadvertently getting hit.

Neg tests or not, what about a month long trial for the household to see if you feel better? Can't hurt. May help.

If Mama doesn't feel good 24/7, then things get dicey for all.

Just a suggestion.

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I think I will try the whole30 so I know I am not ingesting gluten, and if I am still getting hit regularly try and persuade the house to go gluten-free, at least for a trial. Sigh.

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We can help you transition them over. They will not even be able to tell (mostly ) :lol:

Let's try this first.--getting you over being glutened---and see if you feel better.

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Hi

I have had great improvements on the gluten-free diet but I have got a bit stuck. I think I have managed to gluten myself 5 times in 6 weeks. My symptoms are day 1 extreme tiredness and mood swings, day 2 migraine, day 2to3 sickness and D followed by a few days feeling run down.

The only other thing I have noticed is that it seems worse if I have much sugar or fruit. Like maybe half a satsuma would be a much as I could do in a day, or a small glass of juice. I won't touch apples, grapes, melon etc any more, and even my old standby banana is too much.

I also tend to get bad reflux from fruit and sugar goodies.

I have been having maybe 2 gluten-free brownies a week in a coffee shop, and pinching the kids chocolate around Christmas. Can't stand most yogurts any more.

I have found recently and in the past that sugar is very addictive for me, and after a few days upping my consumption fairly minimally (say a small cake or couple of cookies) I often end up with sickness and D.

I am starting the Whole30 programme on 2nd, which is a wholefoods paleo type diet, as an elimination.

I know that part of the answer is to cut it out, but how extreme does this need to be?

I wondered if anyone has any advice about this?

I have had negative thyroid tests and I am not diabetic. I wondered about fructose intolerance or SIBO but my GI was dismissive. I have a small hiatus hernia.

Sorry if this is a mixed up post - as you can see I am confused :?

You could also be reacting to any one of the ingredients in 'sugar goodies'. I only need to eat a chocolate chip cooky to get reactions to all 7 of my diagnosed allergens (gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg). If yogurt bothers you, at least consider eliminating dairy for awhile to see if your symptoms decrease. A better approach would be an ELISA (blood) test for immediate or delayed reaction allergies to commonly eaten foods. Then you wouldn't need to spend time guessing with elimination diets or following suggestions from other people. We can be allergic to any food, including the 'safe' ones recommended for elimination diets.

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Thanks burdee :). My previous eliminations have revealed caffeine, sesame, aspartame etc, alcohol, corn. I have always struggled with sugar, and find it hard to limit. This has been the case for several things I have excluded. I wonder if it is coming to the fore now the gluten has gone.

I was chatting on another thread about the difficulties of getting blood tests in the UK. Many doctors seem sceptical, and sorting out the good from the others in private testing is tough. I am seeing a dietitian soon so I''ll have another go.

Thanks for your input, never seems simple :)

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Thanks burdee :). My previous eliminations have revealed caffeine, sesame, aspartame etc, alcohol, corn. I have always struggled with sugar, and find it hard to limit. This has been the case for several things I have excluded. I wonder if it is coming to the fore now the gluten has gone.

I was chatting on another thread about the difficulties of getting blood tests in the UK. Many doctors seem sceptical, and sorting out the good from the others in private testing is tough. I am seeing a dietitian soon so I''ll have another go.

Thanks for your input, never seems simple :)

I 'struggled with' (felt nauseas and anxious) after eating foods with sugar for years. After I was diagnosed with cane sugar allergy and substitued beet sugar, honey, agave, maple syrup, etc., I realized the 'anxious' feelings were really tachycardia caused by my cane sugar reaction. I still get nausea and tachycardia if I accidentally consume cane sugar in a product. (That happened 2x last summer when trusted products changed their ingredients by adding cane sugar.) Before I was dx'd with cane sugar allergy, I told people that my heart raced after eating sugary products. They told me I just felt guilty about the calories. I never realized it was really reacting to the cane sugar with tachycardia. I suspect that if we listened to our own bodies, rather than listening to other people or reading 'health' propagana (often generated by the food industry in the USA), we could figure out our true allergies much more easily.

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Hi Celiac Mindwarp, I wanted to express my compassion for what you're going through right now. Giving up sugar is really difficult because not only does it have a physical addiction component but an even tougher psychological one.

I did my first Whole30 before Christmas of last year and it was tough. There were a lot of cravings but so worth it in the end. After 30 days is the reintroduction period where you can find out exactly how your body reacts to sugar. I already knew I was celiac with allergies to eggs, dairy, and soy before starting my whole30 so I knew I would never "test" those through reintroduction but I was curious about the sugar. I've always known I'm sensitive to sugar but never knew just how serious it was until I reintroduced it. I reacted so violently and gained 9 lbs of water weight pretty much overnight from trying a few gluten, egg, dairy, soy free cookies and an apple. I also had a lot of the same symptoms you describe. I have come to the difficult conclusion that my body just does not like sugar in any form and have since given it up for good. This is a big change for me considering I used to eat about 4-5 fruits a day. But now that I'm more in tune with my body I know I do better without sugar and fruit.

I'm glad you are going to do the Whole30 because it really teaches you to be aware of your body and how it reacts to all foods. I am so grateful for it. My life has improved tremendously since I disciplined myself to just do it. Good Luck and feel free to message me if you need help cutting the sugar and fruit out.

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Thanks so much freedomseek

What you say sounds so familiar. In a way, the whole30 total elimination is the easy bit for me I think. I have cut it out several times before, and then it has taken just a little bit to get me going again. Then off goes the whole cycle again.

It is interesting you had such a strong reaction post whole30. I suspect I will end up like you. Maybe this will be my convincer.that it just isn't worth it.

Was it all forms of sugar for you, and did you reintroduce them separately? Like honey, fruit, cane sugar, chocolate... I can feel the cravings heading off even just thinking about it!

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Burdee so true about if only we could listen to our bodies more!

Those damn label changes... I have just been told I need reading glasses, and I swear it is squinting at all those stupid labels :)

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hi Celiac mindwrap,

i just want to say, though i am so new at this gluten-free diet and all the fun (:)) that goes with it, i feel your pain. i strongly suspect , though i am only gluten intolerant, that i have been `glutened`many times preparing meals for my hubby and 4 kids (well, three now that i have one dear daugher on a gluten-free diet as well). just a couple weeks ago, i made pizza crust for them, and my hands cracked and bled just from kneading the dough! (imagine! i have been making bread with wheat since i was a kid! and suddenly, four months gluten-free and i am bleeding from touching it!)

i too feel the only way i will be safe and healthy is to get IT out of my home altogether...but until then, i live in fear!

as for your sugar issue, i suspect i may be sufferring at your side. I feel very bloated, sick, heartburn (like a panic attack kindof pain) after ingesting sugar, esp in the form of milk chocolate. zylitol is a good substitute, if you are using it in small amounts, as it it made form birtch trees and very pricey.

i am not familiar with the whole30 program you mention, please enlighten me. meanwhile, i encourage you to stay strong, fight it! your health really is most important right now, and if mama ain`t HEALTHY, ain`t nobody HEALTHY cuz we arent`any good to them lying on the couch moaning in pain are we ;)

hugs.

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What is this whole30? I am New to the celiac scene. I have not officially been diagnosed but have done my research for my symptoms. I do not have insurance and will try anything to feel better after 4 years! I am in pain now and I think it is from cross contamination. I discarded some regular four in the garbage and washed the dish and I feel bad. I cooked a gluten free meal and am guessing if I should put my gluten-free flour in the same container or just throw it away. HELP...am I going crazy?

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Fructose is bad. I stay away from all sweet things except pure dextrose (in Smarties and pixie stix). Causes me no end of awfulness.

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Hey Chaff, just read your other post about fructose intolerance. Glad you found something to try out.

I am looking at fructose intolerance, SIBO and histamines. Hopefully I will work something out :)

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Celiac Mindwarp - How did the Whole30 go? I am on day 2. I hope this helps me figure out why I am having some of the same symptoms I had before going gluten free three years ago. Did it help you?

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Celiac Mindwarp - How did the Whole30 go? I am on day 2. I hope this helps me figure out why I am having some of the same symptoms I had before going gluten free three years ago. Did it help you?

 

Hi, and welcome to the Forum.

 

This thread ended over a year ago and Celiac Mindwarp may not see your question.  Why not go ahead and start a new topic on the Whole 30.  You will get more feedback that way.

 

Good Luck.

 

Colleen

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