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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Coffee And Strong Tea Put Anyone Over The Edge And Give You Celiac Like Symptoms?
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8 posts in this topic

I hate it when I don't know what does it and after I was doing so well. Have many people given up coffee, soda,

tea? I went to the gym and was fine and then came home and had a diet coke and the rest of my morning coffee and a few sips of yesterday's tea. Then felt girgly, but wanted to get take out for the kids. We went to pick it up and it hit like a train. I had to take 2 imodium while there. I hate that when I was doing so good. Sometimes I get lax after a span of doing so well. My dd said her stomach was bothering her so maybe it is a germ in our house. We had a fun night of drinking at my aunts a few night back. That could have made me more apt for an issue. Who knows. I also ate some semispoiled sunflower sprouts. I hate taking imodium because then it may plug for a few days and then have this same problem. I'll try to skip the coffee tomorrow. lol

On a better note, Happy new year everyone. I wish everyone a symptom free year. (In our dreams, I know. But I can wish it anyway.) :)

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I have been caffeine-free since approximately 1972. I drink only herbal/fruit teas. An occasional decaf coffee. Try eliminating the caffeine and see if it helps. Those things you mention, while hard to give up, are not giving you any nutrition anyway :) But if your daughter feels bad too, you may have gotten some cross-contamination somewhere.

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Its the caffine probably. I generally don't do it as it makes me wide awake. I dropped it completely after my GERD got bad. I've yet to try it again.

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I had to give up coffee and tea and caffeine sodas 9 years ago. I now have a couple of small teas a week but get a bit of reflux. I don't know if it is related to the celiac, but I uncovered it when doing an elimination diet when I also lost wheat. Wish I had known then what gluten is...

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Actually I had a similar reaction myself yesterday. I drank a coconut latte thinking that I usually do okay with little occasional cups of coffee...but boom, right afterwards and for hours after that, I had C, D and some pretty horrible abdominal pain. At first I blamed it on the caffeine, but since then, I am thinking it was either the milk or the syrup.

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Both alcohol and coffee cause intestinal permeability to increase (leaky gut) and we are consequently more sensitive to gluten, lactose and fructose (sugar). I gues, given the recent New year celebrations, we will see more stories like this.

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I sometimes get very bad stomach cramps and D after drinking coffee or black tea. It happens about one out of 10 times and mostly when I don't put milk, other than that I haven't the slightest clue why I get this reaction. It's not my gluten symptoms so no cc involved.

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I sometimes get very bad stomach cramps and D after drinking coffee or black tea. It happens about one out of 10 times and mostly when I don't put milk, other than that I haven't the slightest clue why I get this reaction. It's not my gluten symptoms so no cc involved.

Coffee is acidic and hurts my stomach if I don't add a bit of milk.

http://www.livestrong.com/article/511107-how-to-neutralize-the-acid-in-coffee/

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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