• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Anyone Not Have A Stronger Reaction To Gluten After Going gluten-free?
0

Rate this topic

16 posts in this topic

Recommended Posts

I've noticed that this seems to be a common theme, but it also may just seem more noteworthy to post about a more severe reaction to gluten after going gluten-free than to post about an unpleasant but not especially spectacular reaction.

Starting this thread in the hopes of pulling for the other end of the sample and maybe getting a more balanced perspective.

And yes, I am aware that even if you don't have a huge reaction, with celiac it is not OK to eat gluten, and it *will* damage you even if you don't have an immediate, punishing reaction. From the sound of it, accidental gluten ingestion happens to most of us at some point, though, so it strikes me as relevant information even if fully committed to being gluten-free.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I was going to post something similar. I was gluten free for 3 weeks then decided to "test" (a piece of bread) and had no reaction. At least no tummy ones. I was really surprised since my tummy has still been really bad even without gluten so maybe I really don't have a gluten issue?

Share this post


Link to post
Share on other sites

If I accidentally get some gluten, i.e., in a Rx or such, my reaction is the same as before gluten free. Of course, I recognize it for what it is and am more aware of it, but it is not any different.

Share this post


Link to post
Share on other sites

I fit this post. I had no symptoms prior to going gluten free - and have had no symptoms since going gluten free - four months ago. If it weren't for the positive blood tests and positive endoscopy - I would question whether or not I really had Celiac! I can't imagine that I haven't messed up being totally gluten free over the past four months. I was actually hoping to get a tiny bit more sensitive so I would know if I am sticking to the diet correctly.

Share this post


Link to post
Share on other sites
Ads by Google:


I was glutened a couple of times in the first two months and I remember those reactions being the same as those I had before going gluten-free. The symptoms just seemed more noticeable because I was not longer used to stomach aches and bloating.

Share this post


Link to post
Share on other sites

Not me. I was diagnosed as a silent celiac and have been strictly gluten free for about 19 months now. As far as I know I have only been accidentally glutened twice. The only way I knew is that I found that one product packaging had been labelled incorrectly; the other was in a restaurant in Europe that caught my mistake after the fact. Didn't get sick or anything but I am still unwilling to ingest any gluten. Sometimes I wish I had some indication of being glutened - not very sick, obviously, but just something minor.

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


I fit this post. I had no symptoms prior to going gluten free - and have had no symptoms since going gluten free - four months ago. If it weren't for the positive blood tests and positive endoscopy - I would question whether or not I really had Celiac! I can't imagine that I haven't messed up being totally gluten free over the past four months. I was actually hoping to get a tiny bit more sensitive so I would know if I am sticking to the diet correctly.

Omg this is pretty much exactly me, even down to the timings. I got screened because my sister was diagnosed, however I've never had any noticable symptoms. Accidentally got glutened a few days ago (was so annoyed, my own fault for not checking properly) and didn't really react at all.

I know that those who have strong reactions would call us lucky, but I was actually hoping I'd have something noticable as a barometer for whether I'm getting CC'd or accidentally ingesting. I know that I have to follow gluten-free strictly, but without any tangible benefit after 4 months it's pretty frustrating.

  • Upvote 2

Share this post


Link to post
Share on other sites

Physical symptoms are a poor indication of what is actually happening in the intestine. Even people on a strict gluten-free diet can have damage that persists for a long time, even years. While this forum is not intended to provide medical advice, everthing I have read would indicate that if you have had a positive diagnosis you should be avoiding even traces of gluten.

Share this post


Link to post
Share on other sites

I've been gluten free for 8 years, and for the first six of them I had very strong reactions

to the rare glutening I experienced. I went over a year without being glutened, and then

this past May I was glutened by a restaurant. I knew it happened in the restaurant, but

I am a 48-hour reactor, so I had time to prepare. It was the mildest reaction I've ever had,

which may have something to do with the digestive enzymes, detox tea, and charcoal I

started taking right away, or might not. So either that combo works GREAT (possible) or

my reactions are now much less severe. Or both!

Share this post


Link to post
Share on other sites


Ads by Google:


Ummm...in my post above I spoke too soon. Had the first obvious gluten reaction in my life this week. And by obvious I mean something that I could without question immediately tie obvious symptoms to a product that contained gluten. Of course I would never, ever deliberately ingest gluten and I, too, realize that despite being so-called asymptomatic (I had other symptoms in retrospect such as miscarriages but did not tie it to gluten at the time) damage is still being done. Anyway, 15 little minutes after eating 1/4 of a pudding cup, I suddenly had a migraine (rare with me these days), vomiting, swollen lips, diarrhea and plugged sinuses. Sure enough. Somehow I had missed "wheat starch" on the label. I am such an avid careful label reader! It is actually a relief that I got sick so I now know what to look out for. It was very difficult before not having a clue whether I was glutened or not! Well, now I know. ;) Makes me wonder whether I had some sort of allergic reaction, too, considering the swollen lips and plugged nose/sinuses. Now I can better relate to those of you who get so ill!

Share this post


Link to post
Share on other sites

love2, with swollen lips and vomiting that does sound like a possible allergic reaction. May be worth talking to a doctor to see if you sshould have epipens around. I am not an expert, but my son has nut allergy, and we were advised that if you have had a reaction it can become more severe on subsequent exposures.

Share this post


Link to post
Share on other sites

love2, with swollen lips and vomiting that does sound like a possible allergic reaction. May be worth talking to a doctor to see if you sshould have epipens around. I am not an expert, but my son has nut allergy, and we were advised that if you have had a reaction it can become more severe on subsequent exposures.

Yes - I'm booking a doctor appointment anyway and will definitely bring this up. It does indeed sound like an allergic reaction. I am thankful Benadryl took care of it but one never knows with subsequent exposures!

Share this post


Link to post
Share on other sites

I didn't have strong reactions at first, I might get a little bloated if I ate quite a bit (at first I used to cheat here and there), but over the last year and a half I stopped cheating and every time I've been accidentally glutened since, it's been about 10x worse then the last time. It's strange how much it increased for me, especially since I was pretty well asymptomatic at first. Now if I get glutened I'm very sick for a week (bloating, nausea, fatigue etc...) and it's been a month and a half since my last gluten instance and I'm still feeling it unfortunately. It also seemed to have knocked out my immune system too, as I am normally very healthy but have been sick with either the flu or a cold since then.

Share this post


Link to post
Share on other sites

I didn't have strong reactions at first, I might get a little bloated if I ate quite a bit (at first I used to cheat here and there), but over the last year and a half I stopped cheating and every time I've been accidentally glutened since, it's been about 10x worse then the last time. It's strange how much it increased for me, especially since I was pretty well asymptomatic at first. Now if I get glutened I'm very sick for a week (bloating, nausea, fatigue etc...) and it's been a month and a half since my last gluten instance and I'm still feeling it unfortunately. It also seemed to have knocked out my immune system too, as I am normally very healthy but have been sick with either the flu or a cold since then.

Don't underestimate how much of the "lingering glutening" might be the flu. If you're in the US, flu is EVERYWHERE right now.

Share this post


Link to post
Share on other sites


Ads by Google:


I got "glutened" today at work. I have been gluten-free since Jan. 3. I needed a fork for my lunch, and went to the cafeteria to get one. 15 minutes after eating, I had horrific diarrhea - and was in the bathroom for 15 minutes. The only thing I can think of, is the students touch as many forks as they can before they ever pick one.

No more cafeteria forks for me!!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,133
    • Total Posts
      939,841
  • Member Statistics

    • Total Members
      66,113
    • Most Online
      3,093

    Newest Member
    cb1105
    Joined
  • Popular Now

  • Topics

  • Posts

    • We were in Santorini and Athens in August 2015.   We found eating gluten free easy in Greece.   Their cuisine involves fairly simply ingredients, olive oil, salt, and herbs.   My celiac daughter can eat almost all the grilled meats and vegetables.   Obviously you have to avoid the pita.   Also, be careful of the gyro meat, because some places threw beer in their marinade.   My daughter enjoyed lots of grilled fish, seafood, and meats there. We found the Greeks very friendly and accommodating, when we explained that we have to avoid gluten, the servers knew what that is, and were happy to accommodate us. Airport is different.   I have the habit of calling the airline a couple of week before the flight to make sure they have gluten-free meals for my daughter.   But I always pack backups for long flights.
    • You'll get to the point where you can eat other things, you just have to give it time. Can you do eggs? Hard boiled eggs. They make fast snacks and are highly portable. If you make nut butters, you can just eat it by the spoonful.  I don't like "normal" coconut macaroons, too wet for me, ick! I found this recipe though which drives me insane --- sooooooo good I about swallow my tongue. http://www.foodnetwork.com/recipes/alton-brown/toasty-coconut-macaroons-recipe-1912139 Don't know if you like them or not but re-fried beans. I NEED my carbs!!!!! If I don't get carbs, I will get weak & shaking 30 minutes after eating. I can't eat every 30 minutes!!! So I eat a lot of re-fried beans. I make a big vat & then portion into containers & freeze. If you have or get a stick blender, it will make super fast work of mashing those beans up. Only takes 2 minutes or less. I use olive oil in mine & lots of it -- need that fat. 
    • Coconut, almond butter, and cocoa nib fat bombs...I use plant fats to do it. You can make some great snacks out of fresh almond butter, shredded or coconut flour, and cocoa nibs. Sweeten with stevia for little dough like balls of goodness. Oh you miss potato chips, two options here I like to make my own protein chips with pea protein, or I can have 2-4 protes chips (vegan pea protein  chips made by a company) but they have to be eaten in moderation. Coconut chips....yeah I get Lets' Do Organic ones I can snack on a hand full of them or throw a handful of cocoa nibs in my mouth for snacks. If you like meat, try making jerky. get a dehydrator season your own and just do it.....lucky you can eat meat. I miss making roast in a crock pot....I used to make some of the best shredded meats. My old smoker.....I could make some of the best ribs and roast EVER. The jerky can be made and taken for snacks on the road or while out, crack open a can of spinach (canned unsalted delmonte does not bother me) or pack some stewed greens and have some jerky tear it up stir it in canned keto on the go. Other lovely thing are tuna and salmon if the canned bother you I often find them too salty to enjoy I have taken some and smoked it or dipped it in liquid smoke then cooked in a baking dish then loaded in to the dehydrator. I find doing this I can have that little bit of fish when I want without worry of spoilage (sucking on it and chewing it for a long time make it really satisfying for me) ....SOO doing this next week to try the fish again. Speaking of fish...since I perfected keto bread in my bakery this month......I think I might try making a tuna sandwich with avacado mayo....not had a tuna sandwich in over 5 years.....
    • I am a newly diagnosed celiac and am traveling abroad for the first time since starting the diet. I will be going to Greece in the spring. I was wondering if anyone had any tips for eating gluten free abroad or at airports? Thanks! 
    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
  • Upcoming Events