This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
Subscribe to FREE Celiac.com email alerts
What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
You might also consider histamine. That can aggravate things and it is tricky to test for. However, eating "anti-histaminically" is fairly easy and healthy. My spouse solved a lot of mysterious reactions when he started trying to take histamine into account.
We found this website to be very helpful. https://healinghistamine.com
Histamine could be an additional variable to your hunt - good luck!
Pocah, how long have you been gluten-free?
i used to get the rash, or the itch at first, on my elbows for the tiniest amount of g. But after 8+ years, it no longer happens! I ate corn flakes twice, as breading, not checking the ingredients. Thought my husband did. He didn't know about malt flavoring, or probably forgot! Anyway, I got c instead. I miss my dh indicator. C is so normal in my life it doesn't stand out.
I wonder if this post is referring to me? I tested high positive with blood tests and was denied an endoscopy as it was seen as unnecessary. The Dr. said they already knew it was celiac based on the extremely high blood test. I immediately went gluten free and all further testing including endoscopy which I had to beg and barter and pull strings to get, have been negative. Might it be Pellagre instead? My fatigue is much better gluten free but carbohydrates seem to cause almost instant brain fog. I have at times doubted my diagnosis because it came from a misinformed Dr.
For me, the rash is rather handy. It serves as an indicator that I have exposed myself to gluten. With about 1 teaspoon of wheat based product ( bread etc ) I will come out in a rash somewhere within about six hours or so, and it will be itchy for about 24 hours then disappear. It gets worse the more gluten I consume. But looking on the bright side, it lets me know if I have encountered a "hidden source" of gluten, which is good. Rather this rash than the consequences of prolonged exposure from a hidden source.
Reality check in the past few weeks, looks like I got glutened at what should be a "safe" restaurant for gluten-free and gone right back to the beginning again recovery-wise
Now too scared to eat anywhere and turning down social opportunities because of the food issues, what a miserable way to live this is.