• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Recurrent Miscarriage, Rashes, Digestive Issues...celiac?
1 1

8 posts in this topic

Hi there,

Hoping to get some thoughts from others out there who are familiar with the range of symptoms and issues associated with celiac disease (or gluten intolerance).

My story is sad and complicated, but basically starts with the fact that I'm 26 and have had 5 early miscarriages in the past year. Testing was inconclusive, until finally my RE found that I have an autoimmune thyroid condition (anti-thyroid antibodies/hashimotos). He started me on a low dose of synthroid to boost me up (even though my current TSH is considered "normal".

Anyways, in reading more about autoimmune thyroid conditions, I found out that they are highly related to celiac disease and that they can also respond to a gluten-free diet. So I decided to go gluten-free because, well, at this point I'm willing to try anything to be able to have a healthy baby.

After doing all this reading, I've done done more reflecting and an convinced I have done kind of gluten intolerance issue. I did blood testing a couple of days after first deciding to try gluten-free, and the clinic said that should still be Ok for identifying the antibodies/tissue transglutaminase). I'll find out in January.

Anyway, my symptoms include:

- recurrent pregnancy loss (infertility)

- thyroid autoimmunity

- skin rashes (Not DH), possibly eczema or chronic hives

- dairy intolerance developed in the last few years (this has *completely* improved since going gluten-free 2 weeks ago)

- stomach gurgling, gas and bloating (also stopped on going gluten-free)

- chronically loose, smelly stool (sorry TMI! But, my BMs have been completely normal on going gluten-free!)

- grandmother recently told me my uncle "was celiac as a child but grew out if it" (right. )

It seems fairly compelling to ne, especially given my digestive improvements. I'm even thinking that if the blood test comes back negative, I might just stay gluten-free to see how it goes (with pregnancy, thyroid condition, digestive health, etc).

What do you think? Thoughts, insights, or advice greatly appreciated!

Thanks :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Northern gal, and welcome.

The short answer to your question, is Yes and Yes, both to either celiac or non-celiac gluten intolerance, and to it being the cause of frequent miscarriages; it is highly likely. If you use forum's search engine and enter celiac and miscarriage in the box you will find many discussions on the board on this subject. We have multiple posters who have had trouble conceiving or trouble carrying to term who have had successful pregnancies once off gluten.

Read up and come back and ask specific questions if you still have them. Best wishes for a conclusive result when your tests come back. Even if they come back negative, you should give the diet a trial for three to six months because of the newly recognized condition (by doctors and researchers) of non-celiac gluten sensitivity. Which means you will test negative for celiac but still not tolerate gluten :)

0

Share this post


Link to post
Share on other sites

I think it's highly probable. It sounds like you've done your homework when you state the sarcastic "right" re: your uncle growing out of celiac disease.

NOW, I just hope they did all the correct blood work on you. So many do not know what the full celiac panel consists of.

And I applaud your desire to give gluten-free a good solid try even if the blood comes back normal. The only reason for you to really have an official dx is when you have children; if you have an official dx then if they show signs of celiac it would be easier to convince the powers that be to test your kids.

And welcome to the board! :)

0

Share this post


Link to post
Share on other sites

Hey Northern gal,

Did you ever get a conclusive result from your doctor with a diagnosis? Are you still on a gluten-free diet? Any more miscarriages? After reading your post and several others, along with recent journal articles, I feel like I've had a lightbulb go on over my head. I've had 3 early miscarriages in the past 10 months. My doctor wants to test me for random genetics disorders and the like. But of course, why didn't I think of gluten issues before this!? My mom has celiac disease and I've had random GI issues almost my entire life. Gluten sensitivity seems like a much more plausible solution. 

0

Share this post


Link to post
Share on other sites

welcome, evergreen474  :)

 

Since your mother has celiac, and with your miscarriages, I would highly suggest you get tested for celiac.  Do NOT stop eating gluten until all testing is complete.  A complete panel is:

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

 

Check out the chapter in the book Real Life with Celiac Disease by Dennis and Leffler regarding fertility. I'm not at home right now, so I can't remember the exact quote but there was something to the effect that all people with unexplained fertility should be tested for celiac disease.

 

Your GP can order the above tests. Good luck!

 

 

Hey Northern gal,

Did you ever get a conclusive result from your doctor with a diagnosis? Are you still on a gluten-free diet? Any more miscarriages? After reading your post and several others, along with recent journal articles, I feel like I've had a lightbulb go on over my head. I've had 3 early miscarriages in the past 10 months. My doctor wants to test me for random genetics disorders and the like. But of course, why didn't I think of gluten issues before this!? My mom has celiac disease and I've had random GI issues almost my entire life. Gluten sensitivity seems like a much more plausible solution. 

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hey Northern gal,

Did you ever get a conclusive result from your doctor with a diagnosis? Are you still on a gluten-free diet? Any more miscarriages? After reading your post and several others, along with recent journal articles, I feel like I've had a lightbulb go on over my head. I've had 3 early miscarriages in the past 10 months. My doctor wants to test me for random genetics disorders and the like. But of course, why didn't I think of gluten issues before this!? My mom has celiac disease and I've had random GI issues almost my entire life. Gluten sensitivity seems like a much more plausible solution. 

 

Your OB/GYN can run the blood test for Celiac.  You could show him/her some info if they don't know about it.

 

http://www.cureceliacdisease.org/archives/faq/why-does-celiac-disease-lead-to-fertility-problems-in-women-with-undiagnosed-celiac-disease

0

Share this post


Link to post
Share on other sites

welcome, evergreen474  :)

 

Since your mother has celiac, and with your miscarriages, I would highly suggest you get tested for celiac.  Do NOT stop eating gluten until all testing is complete.  A complete panel is:

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

 

Check out the chapter in the book Real Life with Celiac Disease by Dennis and Leffler regarding fertility. I'm not at home right now, so I can't remember the exact quote but there was something to the effect that all people with unexplained fertility should be tested for celiac disease.

 

Your GP can order the above tests. Good luck!

 

 

 

Thanks for your advice. I'm going to bring this to my OB later this month when I see him. I'd rather run a celiac panel than the genetic panel. And if it is celiac disease or gluten sensitivity, it's a much easier fix than a chromosomal disorder. :) I can barely think of going through another miscarriage again. 

0

Share this post


Link to post
Share on other sites




Hi Evergreen!
Did you find out if you had Celiac?  Did your symptoms remain at bay on gluten-free? My mum's experience is a lot like yours (and my Grandma is diagnosed) and I'd really like her to get tested but she's (a doctor! who is) from the generation where "I don't have stomach symptoms" means it isn't worth bothering...
x

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      107,369
    • Total Posts
      935,714
  • Member Statistics

    • Total Members
      65,045
    • Most Online
      3,093

    Newest Member
    Alaina15
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sounded like it's against the law in that state to bring in outside food to any restaurant. A simple phone call to the tavern would have told them that. Prior planning is exactly what was needed here. We don't have the right to break laws, and outside of school and jail, (with the correct paperwork),  we don't have the right to have gluten-free food everywhere we go. I'm shaking my head at the parents and how they dropped the ball here. 
    • Thought I would bring up my most recent addiction. I always loved and had MAD cravings for chocolate. Not the sweet stuff, the powder is always what I craved, the darker the better. This was in part due to extreme anemia, and huge issues with getting enough iron due to internal bleeding issues with UC (I got cravings for dirt and chocolate but would just eat the cocoa).  But I used to have a love hate issues with it, if I ate too much like more then 2 tbsp in a sitting in anything I would get sick and I would do this often eating 1/4 in mixed recipes like a sauce, mixed with egg whites, almond butter, into quick cakes, or in icecream or shakes.. I still am unsure what this was, but the processed gluten-free labeled Hershey Special Dark was the main thing I consumed back then (around this time they did not have the plain Hershey or any other cocoa on the gluten-free list). This went on for a few years and then I moved on to RAW cocoa from Big Tree Farms and this lessened the nausea and sick feeling and enabled me to eat more but I still avoided it when I was not craving it due to it making me sick.  This year funny enough I got my anemia under control with upped vitamin C and finding out what triggered my bleeding flare ups was sugars from fruit, grain carbs, and starches, I found Crio Bru. Crio Bru is a coffee replacement, but it is actually just pure cocoa nibs/beans ground up like coffee ground, they come from different origin sourced beans with different roast levels, from a smokey dark french to lighter ones with smooth or floral notes. These, these I can sit down and grind up in almond milk or in shakes, sprinkle over deserts, mix in trail mixes, eat by the handful....and I  DO NOT GET SICK. I can eat over a cup of them and be very satisfied, they are very high in fiber and saturated healthy fats, antioxidants. and various other nutrients, and smash my binge eats faster then coconut or almonds. I only wish I had found them earlier, but this brought up some other thoughts.  Why does the processed cocoa bother me SO much more then these? Is it the alkalinity of them? The dry powder like state causing them to neutralize to much acid or absorb to much liquid? Or something added in the processing? Perhaps the processed cocoa just has a much much higher histamine level, I do not know but the fact these are so much better and finally my new best friend for putting on weight is amazing. Anyone else have a chocolate issues, chocolate loves, or addictions? Or perhaps thoughts on these?
    • Had a flashback of going on vacation once without enough food, I ended up walking the 5mile round trip to a grocery store to get cartons of egg whites, fresh veggies, and almond milk. I overstock everything now when I go places due to this lol.
    • THANK YOU for the link. Read through the whole thing. Didn't eat for >24 hours and started to feel A LOT better. Still sick, but nowhere near yesterday sick.  I decided to just talk/explain in detail how sick the food made me to one of my relatives who was very understanding. She is going to explain to other relatives that I won't be able to eat the food they offer for health reasons. She took me to a farmer's market and I now have a bunch of veggies, tofu, unflavored seaweed and unflavored dried chirimen. She's going to bake potatoes for me tomorrow and boiled me a dozen fresh eggs. I didn't eat the pre-cooked store bought eggs because they had an odor that smelled like flavoring and I didn't want to take a gamble. Finally, I can eat something. Hopefully day 1 nightmare was it.
  • Upcoming Events