• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Long Flight With Celiac Kiddo - Tips?
0

16 posts in this topic

Recommended Posts

kb27    0

I am flying overseas in 2 weeks with my 5-yr-old and 9-yr-old (who has celiac). The flights combined are 16 hours, so I need to bring a lot of food. Any tips or advice? Is it possible to take an ice pack on a flight? Or does that violate TSA regulations? I was planning to bring peanut butter (I found little "to go" packets that are small enough), gluten-free pretzels, gluten-free granola bars, salami, cheese sticks, crackers, dried fruit, carrots, Chex cereal, and whatever else I can cram into my carry-on....

We have a few layovers, but I'm not sure we will have much time to seek out restaurants that have gluten-free options available. I have 90 minutes in O'Hare and ~120 in Newark. Any recommendations in either place?

Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


tarnalberry    314

I'd bring things as close to regular food as you can. What about sandwiches on Udi's bread? Or muffins? Hard boiled eggs? Nuts and dried fruit are good options, as are the salami and cheese you mention. I'd think about what sorts of things you'd pack in a kid's lunchbox, leaving out the liquidy stuff.

Share this post


Link to post
Share on other sites
kb27    0

Hard-boiled eggs is a great idea. Muffins, too.

Considering we are moving for 5 months, I was thinking of actually packing up their lunch boxes and bringing them with me, fully stocked.

Share this post


Link to post
Share on other sites
mushroom    1,205

I have carried ice packs to keep medications (injectibles) refrigerated. They run their explosives strips over them. Just tell them you have them so they don't think you're trying to sneak them on. And make sure they're very official looking packs. I've never been through O'Hare, but if it's anything like LAX 90 minutes probably won't give you a lot of spare time :) and even when you get to Newark, the odds of gluten free in an airport are slim. As one waitress said to me, people who eat here don't care what they eat :lol:

Good luck on your adventure!

Share this post


Link to post
Share on other sites
Pauliewog    14

I just returned from an overseas flight. I took basically what you wrote. Just be careful that your final destination allows in the food you have leftover. I had some sliced deli meat and had to toss it on the plane because meat isn't allowed into Japan. I didn't cool my meat or cheese. It was fine. I had a midnight flight and realized I had way more food than I needed. I slept most of the way and only ate my cheese/meat/crackers and bananas as a breakfast before landing. I pre-ordered a gluten-free meal from the airline but didn't eat it either flight. I knew my carry on food was safer no matter what!

Share this post


Link to post
Share on other sites
Ads by Google:


tarnalberry    314

Freeze some of the things beforehand, it'll help keep it cool.

This - I regularly keep extra muffins in the freezer - they make great short-term ice packs. :)

Share this post


Link to post
Share on other sites


Ads by Google:


The airlines told me you can take ice packs when they are frozen. They will toss it if they have melted into liquid. I brought canned meats on my trip. You may need to select ones with a top that does not need a can opener.

I learned to let them see my cans right away. If you tell them "special diet" they pretty much have to make allowance for you. When they found the cans they had to go through every corner of my carryon. Once they tested my salt and told me that it was salt. (Yeah, I knew that.)

I had trouble getting to my carryon for every meal. There just isn't much room to stand in the aisle and out of the way. At the last meal the attendant told me that they would have to confiscate my carry-on bag. I put it in the overhead bin as usual. I sat down thinking not to worry and did not see them move it. When I grabbed for the bag at the end of the flight, indeed it was gone! I had reached my destination and all of my life sustaining supplements were in the bag! We ran off after someone with a simalar bag. We had difficulty getting back to the plane when it was not our bag. Eventually we convinced security to allow us to go past. They would not let us back on the plane. However, a person held up the bag asking if it was ours. (Whew!) When I opened the bag it contained a whole bag of crayons which belonged to the airline. Hmmm? I am just saying I don't know how to solve this situation, but be aware it can happen. Try to make grabbing things as easy as possible. Plan meals carefully and don't bring more than you need.

All in all I was very glad to have my own safe food!

Diana

Share this post


Link to post
Share on other sites
Kate79    16

I fly through O'Hare pretty frequently, and I'm not aware of any gluten free options at the airport that are really safe, besides pre-packeged snacks like Kind Bars. Depending on what part of the airport you're in, there may be places like Chili's that make some gluten-free accomodations, but nothing that I'd really trust. And some of the terminals are sadly lacking in anything much beyond a Starbucks or McDonald's.

I've brought ice packs on flights before; they don't show up as a liquid as long as they're frozen. Don't know if you might have trouble with later legs of your flight due to them thawing out. In addition to the stuff you've listed, I've brought noodle bowls and oatmeal packets that just need to have hot water added. Flight attendants have been happy to accomodate, and it can be nice to have hot food on the flight. I've had good luck with requesting gluten-free meals from the airlines, but it really depends on which one you're flying. United and Lufthansa have been good, but I can't speak to any of the others. I always bring extra food, anyway, in case they mess up the meal or I have a flight delay/cancellation. Go Picnic meals are an easy option, too; you can buy them online and I've seen them at airport stores before.

Share this post


Link to post
Share on other sites
tarnalberry    314

Oh yes, make sure you pack foof in a bag that can go under the seat in front of you. Overhead bins can be a pain to get into.

Share this post


Link to post
Share on other sites


Ads by Google:


tgrahek    1

We travel a lot with our kids and Go Picnics are our best resource. We use them on planes and in our day packs. I used to get them online and pay shipping but now Target sells them and that is awesome! We are also dairy free and additive free so there are only three varieties for us but that is plenty.

In airports, we often get oatmeal at Starbuck's.

Share this post


Link to post
Share on other sites
kb27    0

Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then.

Now if I can just survive a 16 hour journey with 2 kids. At least my husband is meeting us there, and he's under orders to have a kitchen fully stocked with gluten-free delights.

Thanks!

Share this post


Link to post
Share on other sites
Kate79    16

"In airports, we often get oatmeal at Starbuck's."

Starbucks oatmeal isn't gluten free (it's not made of certified gluten-free oats, so it's like eating Quaker or any regular brand, which is usually contaminated with wheat). Better to bring certified gluten free oats, and just ask for some hot water for them when you get your coffee.

Share this post


Link to post
Share on other sites
Kate79    16

Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then.

Now if I can just survive a 16 hour journey with 2 kids. At least my husband is meeting us there, and he's under orders to have a kitchen fully stocked with gluten-free delights.

Thanks!

Just a caution with the Go Picnic's: some of the things they include in the boxes are made on shared equipment, so depending on your kid's level of sensitivity, you may need to scrap some of the items. When I used them last year, the Popped potato chips were made on shared equipment, as well as a couple of other items. Everything is clearly labelled, though.

Share this post


Link to post
Share on other sites


Ads by Google:


melrobsings    2

I always travel with fruit, eggs and nuts and seeds. Fruit is great because they are pretty destroy safe and have their own container-their skin! And they are complex carbs so it lasts longer in your system.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,919
    • Total Posts
      938,681
  • Member Statistics

    • Total Members
      65,842
    • Most Online
      3,093

    Newest Member
    chibody
    Joined
  • Popular Now

  • Topics

  • Posts

    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
    • Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. Once I get glutened I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard adjustment) I got to a stage of knowing what I needed to do. Your medical background will help you methodically work out what you need to cut out and what is safe and you will get there. Stick with college. Don't let this crappy stage take that away.   The thing that saved me though over everything was finding this article: https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40
    • Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent for endoscopy and colonoscopy. I consumed gluten for just over two weeks, then went back to my grain free, dairy free diet. I saw my Dr this am and she said my bowels were healthy, that the Dr had taken 'several' samples and that all is well on both ends.  (No celiac, but also not H Pylori, crohn's, etc). She is running all kinds of other bloodwork, because I am still feeling terrible, and obviously the assumption I had made was that it was celiac. I'm going to stay off gluten for now, in hopes that I'll start to feel better. My GI symptoms are worse this week than they have been in ages...so something is up, but apparently I'm healthy??! I am pretty sure my Dr. would not refer me to another GI. She's not the best, but it's very hard to find another Dr. here, especially if you already have a Dr. (Canada) I am going to ask her for a copy of the report though, as well as the rest of the bloodwork she's sending me for. 
    • This is exactly what I'm wondering also.
    • I'm confused. You don't have celiac? Have you had a blood test or biopsy? Have you been diagnosed with DH?  What were you diagnosed with 9 years ago? If it was celiac or DH why have you only been gluten-free for 6 months? We need a better picture of what's going on here to help you more successfully.
  • Upcoming Events