Get email alerts Celiac.com E-Newsletter




Ads by Google:






   Get email alerts  Celiac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Much Happier... Sort Of!
0

3 posts in this topic

I initially posted here, and thanks for the help. It's now just over a week later and the random ingestion of Vegemite (that has gluten) has been replaced with a gluten-free alternative.

I am happy to report, not a single symptom since... well not like it was. It seems to me that my GI system is healing and every day I'm feeling so much better.

Unfortunately, I didn't really want to be Celiac or gluten intolerant, but it is what it is, and so far I'm coping.

It's a bit sad that it came on so strong, so suddenly, after quite a few years of niggly little problems. Maybe I've caught it early, or maybe it raised its ugly head in protest because I was eating more grain-carb than usual.

In some respects, unless I can get some genetic testing, I will probably never know if I am Celiac or just have an intolerance. I'm definitely not prepared to go through what I have since the beginning of November by eating gluten again for an extended period, just so a doctor can do a test or an endoscopy. It was a really awful time.

With all my other autoimmune stuff, I'd be prepared to bet it's Celiac rather than intolerance. Let's hope I can get some genetic testing.

Has anyone here done the same - figured out that not eating gluten makes it all better, but you can't get a diagnosis because you're not prepared to eat it again? If so, what do you say you have?

0

Share this post


Link to post
Share on other sites


Ads by Google:

"Unfortunately, I didn't really want to be Celiac or gluten intolerant, but it is what it is, and so far I'm coping. ", says Sooz.

Yeah, most of us aren't volunteers.

0

Share this post


Link to post
Share on other sites

If I want to get someone's attention (waiter, e.g.) I tell them I'm celiac; after all, there's no indication that I am not. Otherwise I just say I am gluten intolerant, or decline the food and don't mention it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0