• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Type Of Doctor
0

8 posts in this topic

I have been seeing my family doctor about my rashes for the last few months. All he has told me so far is it's a food allergy and he gave me the DexPak -13 day dose which helped. But of course the intense rash came back right after I stopped taking it. From the pictures I've seen all over the internet and on here, and the descriptions, I am convinced I am having a reaction to gluten.

Is the DH test something any doctor can do, or do I need to see a specialist? I don't want to waste my time tomorrow if he's just going to send me to another doctor. My insurance also does not pay for allergy testing - but I take that as the usual skin prick tests, and not a blood test. Is this correct?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you want to have a shave biopsy of a suspected DH area, you really need a dermatologist, and one who knows something about celiac and DH, because the biopsy is not taken of the lesion but of the clear skin immediately adjacent to a lesion. So many doctors do not take the biopsy sample correctly beause they don't know any better.

0

Share this post


Link to post
Share on other sites

Yup. A dh punch biopsy is what you need. And a derm who knows what the heck they're doing. AND DO NOT GO GLUTEN FREE OR GLUTEN LIGHT UNTIL THE BIOPSY IS DONE & YOU HAVE THE RESULTS BACK & KNOW THE DERM DID IT RIGHT!

0

Share this post


Link to post
Share on other sites

a derm who knows what the heck they're doing.

yep, unfortunately rarer than one would imagine

I would expand on that by saying : the most important doctor a celiac ( especially if undiagnosed ) can have is a doctor that will leave his ego at the door and will actually pay attention to what you say .

1

Share this post


Link to post
Share on other sites

My PCP referred me to a Dermatologist for a biopsy. I actually had 3 biopsies but they were from the lesion itself. After research she ordered Dapsone for me and due to the good response, along with Gluten free diet, agrees I do have DH Celiac.

I have a great PCP/Internal Med as a doctor! She has other patients with DH but told me I am the worst case she has ever seen.

Ask questions before you go see a doctor. Co-pays and such are way too expensive to waste on Derms that will not test you properly! Good Luck

0

Share this post


Link to post
Share on other sites
Ads by Google:


I guess I have a good primary care pyscian. I told him I thought it was gluten and he agreed. So we did the celiac panel. I'll know the results in a day or two. He also referred to me an allergist if we need to go that route. He gave me a cortisone shot as well. Not really sure what that is gonna do, but we'll see!!

0

Share this post


Link to post
Share on other sites

Ppl with dh generally test neg. on the celiac panel.

Read & learn:

Interesting Reading on DH:

http://www.celiac.co...-reading-on-dh/

Descriptions of DH Types:

http://www.celiac.co...ns-of-dh-types/

Help for the Itching, Stinging, Burning, Pain of DH:

http://www.celiac.co...__1#entry823195

DH Photobank:

http://www.celiac.co...-dh-photo-bank/

Newbie 101 for celiacs

http://www.celiac.co...ewbie-info-101/

Furthermore, if the doc didn't do the current FULL panel then you didn't get proper celiac blood testing. Here's the info.:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

0

Share this post


Link to post
Share on other sites




I have been reading on a lot on here and learning. Thank you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,315
    • Total Posts
      935,447
  • Member Statistics

    • Total Members
      64,974
    • Most Online
      3,093

    Newest Member
    jocuen
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes, i was 230 lbs upon diagnosis. My crp had been high for over 10 yrs. The first year i lost 70 lbs of water. Then i started to realize my continued irratic gi problems were more intollernces from processed foods as well as things like dairy and legumes. I went on an elimination diet and lost 20 more lbs. I finally stopped at 135 lbs which was still healthy weight, not that i had seen it until high school. Check your folic acid. Just found i am positive for one of the MTHFR genes meaning i cannot convert folic acid, which i lost stopping processed food, so i take 3000 mcg l-methylfolate daily. This is improtant because the body needs to detox all the gluten and chemicals i stored undiagnosed so when that was blocked i developed terible nerve pain. I am 10 years clear and things are amazingly better. I am finally adding in foods i could not tolerate like avacados and turkey. I had a pill cam and colonoscapy this year and there is no visible damage like there was 10 years ago. I think it was my clean diet and time to heal. I should have had a full vitamin panel when diagnosed but had no follow up advice except stop gluten. Am on d3, k2 as well. L glutamine helped heal my gi and d ribose gave me some blood sugar stability. I get these at amazon, NOW brand. My d3 is blue bonnet since its fish not lanolin. My k2 and l methyfolate is life extension. It is a long journey but it has become normal to live gluten free and my diet is so much healthier i think my longevity is increased because i have to eat this way. Plus the arterial sclerosis i had 10 yrs ago is gone, cleaned by my body and food. Well wishes.
    • Thanks for the well wishes Jmg. It appears that you & cycling lady think the sugar maybe our issue, let me clarify that's not our issue for it is manifesting as one of our additive intolerance exposure symptoms. One both my son and I have discovered over 2016. It's not a sugar crash type or a gi symptom in our case . But excellent info for consideration for others. My concern was about additives not listed on a label which is currently not required by regulations and the havoc it can cause the consumer .It's a clear cut symptom we get when exposed to a corn derived additive. At this juncture we are possibly sensitive to a highly processed flavor or coloring from a source other than corn that would be helpful to know what that source is per label  . That's where transparency in labeling would be helpful to me and others like me. The links I included on my post reflect concerns by others out on the web  to this concept. The food diary is helpful and has been to us in discovering these sensitivity issues, but not ideal when not all additives are labeled. the label says 100 percent juice but my body says otherwise . I am well aware from personal job exposure that the food industry is not required to list every ingredient particularly if it is not a top 8 allergean which is why I went look for the info to share. As you both pointed out and maybe even helped to bring to light the importance of sugar labeling my dream is to see it a step further with additives.      
    • Makes me wonder when the FDA is going to call gluten an allergen...
    • http://www.newburnbakehouse.com/gluten-free-artisan-bread I had no idea they now have artisan breads and now I am upset because these look amazing.  Is it possible that people emigrate to other countries because of the bread?    The wraps they have are really, really good. They roll without splitting and cracking.  OMG...they even have crumpets.  I really may have to move there.......... http://www.justglutenfree.co.uk/#Section2 We bought this at Whole Foods in London and the bread is quite good.  It makes delicious toast!  The rolls are very good also.
    • I agree JMG, in fact I've never bothered with the prescription because I hoped by not having it I'd be saving the NHS some money.  I imagine this will put a burden on some people though. I can't say I've found a gluten free bread I really like yet in the UK, though, although there was a loaf at a wedding the other day that was as near to the real thing as I have tasted in years - but it wasn't clear where it came from (which is a bit of a worry, perhaps it was real bread after all!).   Do you have a favourite? I think Genius is probably my favourite, best toasted, but M&S produce a seeded loaf that actually  is so convincing that when my sister made a batch of cheese and pickle sarnies with it no-one noticed! I think the seeds were a distraction. I had some amazing artisan gluten-free focaccia once but no idea where that came from either - probably the real thing too! No wonder I've got 'gastritis'! I have considered buying a bread making machine but not because I'd make bread with it - what I really miss is those iced currant buns with cherries on the top.  
  • Upcoming Events