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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Accidentally Glutened
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15 posts in this topic

Hi everyone,

I've been on a gluten free for over a year now and for the most part am doing fine...except on the rare occasion when I accidentally gluten myself.

Does anyone else get a severly itchy scalp after ingesting gluten? It is so hard for me to sleep during one of these episodes because all I want to do is brush/scratch my hair. I also feel like my sleep when I'm glutened is similar to how one sleeps when really, really drunk (passed out, weird dreams, don't feel rested, really thirsty when woken up).

Does anyone have advice for how to deal with this better? I just try to drink tons of water and pop a Zyrtec.

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I am one that has the scalp covered with lesions from DH. I have found that using Scalpicin will relieve the itch, pronto.

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Oh yes, I get the itchies if I get glutened, too.

I just wait for it to subside. I have never found that anything like Benadryl helps me.

Most people take Benadryl and pass out sleeping, but I am wide awake and feel like I am jumping

out of my skin.

Gluten agitates me, so I am more likely to have insomnia and a banging, erratic heart from it, rather than the sleepies.

If I do finally fall asleep, I am restless and have wicked nightmares. (poor hubs has been awakened by my yelling)

If I get hit with CC, I get small red blisters on my scalp, and they clear up in a few days.

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Well thanks for confirming that this happens to other people! I don't know anyone else on a gluten-free diet so I really appreciate the community this forum provides!

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Most people take Benadryl and pass out sleeping, but I am wide awake and feel like I am jumping

out of my skin.

You and me both. If I really need to stay awake, Nyquil does the trick :P

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You and me both. If I really need to stay awake, Nyquil does the trick :P

so, what IS IT with all that stuff? do we live in opposite world?

Things that make people all dopey and calm turn me into a nervous nelly 2 year old on candy and steroids! :lol:

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so, what IS IT with all that stuff? do we live in opposite world?

Things that make people all dopey and calm turn me into a nervous nelly 2 year old on candy and steroids! :lol:

What it is with that stuff is that it really does jazz up the system, so they put all these dopey-making things in it to counteract the jazz. But you and I already got so much jazz that if they jazz us up further nothing will dope us down.

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What it is with that stuff is that it really does jazz up the system, so they put all these dopey-making things in it to counteract the jazz. But you and I already got so much jazz that if they jazz us up further nothing will dope us down.

I actually followed that. (my doc explained it when I asked him--central nervous system yada yada yada--but your way is better).

We're JAZZY!!!!!! :lol:

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known phenomenon, that some women lose the ability to take benadryl as they approach 60. Gives them restless leg/agitation instead of the sedation.

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known phenomenon, that some women lose the ability to take benadryl as they approach 60. Gives them restless leg/agitation instead of the sedation.

Oh, this is not new for me. I started doing this in my 20's and have ALWAYS had a problem with meds that are supposed to sedate me.

I cannot take codeine or narcotic pain meds either. (which is infuriating because it would help with the pain I am in)

Especially makes recovery from surgeries "tricky" <_<

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I cannot take codeine or narcotic pain meds either. (which is infuriating because it would help with the pain I am in)

Dang! I can't either :blink: Were we separated at birth?

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Dang! I can't either :blink: Were we separated at birth?

.....starting to think so after 2 years of comparing notes.... :)

My mother and sister--are the same way.

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.....starting to think so after 2 years of comparing notes.... :)

My mother and sister--are the same way.

Not mine - my sister was hooked on codeine (you can get it OTC here, as in Panadeine, but I think they are making you sign for it now)

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Gluten agitates me, so I am more likely to have insomnia and a banging, erratic heart from it, rather than the sleepies.

I was having a banging erratic heart beat for a little while and had no idea what that was!!! It didnt hurt or anything but it scared me as I was laying down to go to sleep and would feel this bounding heart beat about every minute or so!! I spoke to my doc and he didnt seem too concerned but it ironically stopped after I cut out all processed foods again last week and became real strict. (Hurricane Sandy here in NJ royally messed up my Primal diet when the lack of electricity for over a week wiped out all of my whole foods) Hmmm never put two and two together before on this one!! Thanks for mentioning it!!

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