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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Tests Should I Get Next,i Feel Lost
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2 posts in this topic

I'm wondering what tests I should ask my doctor for next( or beg him) since he thinks I have anxiety only .Right now my current symptoms are , a nervous feeling before a bowel movement(which I've had on/off) my whole life.It seems my stomack/ digestive tract goes into overdrive when I eat gluten.But only after a few days if being off the stuff.For example this Xmas and the week after I ate cake,donuts,cinammon roles, and my symptoms exploded.Sore stiff neck/ back/shoulders and jaw.Sinus flared up again,nervousness ,cold hands and feet,shivering.I stopped eating all gluten and soy (allergic to soy) on Monday.Slowly my muscle tension subsided,and now my stomach can take small meals ( gluten free of course ) and bigger meals like last night (steak and spinach) and it had that weird consequence.I woke up nervous and had to take a #2 which came out fine.Except I know by the way my stonach feels its going to be one of those overdrive days.This is what I called days where I need to be near a toilet because my digestion is in overdrive 4-6 times ill need to go.Not diearhea but small normal ones?!? It's been like this as long as I can remember, either I'm constipated or on overdrive since my early 20's.Only the muscle tension was new this year and sinus problems .Ive had food allergy testing including Gluten (not celiac), blood tests galore for thyroid,diabetes,red/white cells,urine tests.Mri of spine,X-rays spine,lungs,EKG,endoscopy (no biopsy),hpylor I tests .All neg I'm lost.Do celiacs get muscle tension and sinus inflammation? I also have hemmroids in 36 make

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Welcome LiquidCeliac!

Yes, all the symptoms you mention can be caused by Celiac Disease or Non-Celiac Gluten Intolerance. The best next step is to be tested for Celiac Disease. You NEED to be eating gluten for these antibody tests to have their best chance for accuracy. You mention going a few days without gluten - have you spent significant time gluten-free over the past year?

Here is a list of symptoms that can be associated with Celiac Disease:

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets10_SymptomList.pdf

Many primary doctors will only run a tTG IgA (Tissue Transglutaminase IgA) to screen for Celiac Disease, but you should request a full celiac panel as these tests can not be done after removing gluten.

Full Celiac Blood Panel:

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also, low vitamins/minerals can indicate you are not absorbing nutrients properly - another indicator of Celiac Disease. So you might want to have these drawn at the same time as the Celiac panel.

Misc blood tests:

CMP (Complete Metabolic Panel), All B Vits, D, K, Iron, Ferritin, Copper and Zinc

Good Luck to you -- Keep Looking for answers :)

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