• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Biopsy Result At Last. Help Understanding It!
0

28 posts in this topic

Wooah, 43 years undiagnosed? That's rough. Is that perhaps why you are taking longer to heal?? You are so positive, actually an inspiration... How did you get through that first endo being told that you hadn't healed. Its my nightmare ( I've become a real pessimist these last few years, prob celiac related). Respect to you, seriously.

So is this why you have cut out so many other foods? If you are intolerant to say soya for example and it gives you gi symptoms... Does this also cause gut damage? Or is it that it doesn't allow the gut to heal because of the inflammation? (I was doing well until Christmas where I somehow lost the plot and started consuming gluten-free kettle chips like crazy! Ok to start with, but then I had a few slices of gluten-free bread, and a few choc mints... Bang! Oooooh my poor guts. Why did I do it. I've undone all my good work. And now have come in random rashes etc. what an idiot eh?) back on my meagre simple diet... Hopefully get back to a happy gut in a few weeks.

Thanks for your posts, and answers, and advice.

One last question. How do you get on with life? As in... How do you let celiac NOT consume life. I'm too paranoid to even go out for a wine with friends. I've become a paranoid food obsessed hermit, stalking the celiac forums, unable to share normal conversation with my nearest and dearest, scouring my kitchen for crumbs, perusing google unsuccessfully for evidence that I'm unlikely to get lymphoma!! I just want to forget it all for a week and not care that my guts hurt, that I can't have nice fatty evil lump of cheese, or a nice cup of tea! Oops, dunno where that came from, ohh the frustration. Aaaaaggghh! :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Well now GFinDC, must admit you've made me laugh!!! Thank you!

Google university!! I'm there now, it's a tough course! Anyway, you saw Dr Fasano? Thanks for the link btw, I've got major brain ache as I have just spent the last 2 hours reading up on him via my cell, and my eyes are crossed now. ;)

Very verrrry interesting indeed! The pregnancy fits for me, had my son 6 years ago (and 2 miscarriages within 14 months after that), followed by noro virus and a severe bout of rotavirus! This was also a time of quite severe personal stress (not inc the pregnancy thing)... So I guess it could've been that. Just wish I could remember when bread started bothering me.

I'm interested... The cat meowing??!! Totally awesome! Obviously not that you were sick etc but, hey... animals and their senses.

So how long have you been gluten free? This food intolerance thing keeps cropping up, what kind of stuff did you cut out? 4.5 years eh? Did you actually have repeat endo's to know you we're still damaged or not? Or was just that you still felt rough with symptoms?

As for grapes?? How did you get to that one??! Is fruit a common one? Do you drink wine?

I'm so nosey, sorry :)

So what I'm really very interested in is this leaky gut. Dr F (so far in my 2 hour research) hasn't explained how to heal it! I fell off the wagon for a few days over Christmas (nothing major, chips and a few chocs and a bit gluten-free bread)... I'm now paying the price for it as I've come up in hives and itches etc... I reckon I have leaky gut.

I must unleak this gut of mine. You are right there are many bogus nasty people trying to make a buck from quick fixes.

But what's the truth? Can you heal a leaky gut? Obviously removing gluten is not enough for some of us. What have you done to feel normal? I want to be normal (never thought I'd say that!)

Where are you from GFinDC?

England has some great history, parts of it are beautiful... But the weather is too cold for me (I'm actually British born but half Spanish, half Hungarian and believe that I don't belong in this country having previously lived in the Spanish mountains for 6 years!)

And thank you for your time once again, I can't tell you what it means to have such support. Sincerely. :)

0

Share this post


Link to post
Share on other sites

Well now GFinDC, must admit you've made me laugh!!! Thank you!

Google university!! I'm there now, it's a tough course! Anyway, you saw Dr Fasano? Thanks for the link btw, I've got major brain ache as I have just spent the last 2 hours reading up on him via my cell, and my eyes are crossed now. ;)

Very verrrry interesting indeed! The pregnancy fits for me, had my son 6 years ago (and 2 miscarriages within 14 months after that), followed by noro virus and a severe bout of rotavirus! This was also a time of quite severe personal stress (not inc the pregnancy thing)... So I guess it could've been that. Just wish I could remember when bread started bothering me.

I'm interested... The cat meowing??!! Totally awesome! Obviously not that you were sick etc but, hey... animals and their senses.

So how long have you been gluten free? This food intolerance thing keeps cropping up, what kind of stuff did you cut out? 4.5 years eh? Did you actually have repeat endo's to know you we're still damaged or not? Or was just that you still felt rough with symptoms?

As for grapes?? How did you get to that one??! Is fruit a common one? Do you drink wine?

I'm so nosey, sorry :)

So what I'm really very interested in is this leaky gut. Dr F (so far in my 2 hour research) hasn't explained how to heal it! I fell off the wagon for a few days over Christmas (nothing major, chips and a few chocs and a bit gluten-free bread)... I'm now paying the price for it as I've come up in hives and itches etc... I reckon I have leaky gut.

I must unleak this gut of mine. You are right there are many bogus nasty people trying to make a buck from quick fixes.

But what's the truth? Can you heal a leaky gut? Obviously removing gluten is not enough for some of us. What have you done to feel normal? I want to be normal (never thought I'd say that!)

Where are you from GFinDC?

England has some great history, parts of it are beautiful... But the weather is too cold for me (I'm actually British born but half Spanish, half Hungarian and believe that I don't belong in this country having previously lived in the Spanish mountains for 6 years!)

And thank you for your time once again, I can't tell you what it means to have such support. Sincerely. :)

Hi DS,

I guess we might as well support each other. At least we know what it's like to live with this condition, whereas other people don't. Dr. Fasano has a relation to a company working on a drug to treat leaky gut. It's still in testing I believe. Alba Theraputics.

http://www.albathera...70/Default.aspx

My food intolerances are listed in my signature. But basically nightshades, dairy and soy plus grapes are the biggies for me. They didn't seem to all hit at once though, but developed over time. Some of them seemed to get much worse over time, like soy. I did a series of elimination diets to find my intolerances. I cut out wine for 4 months a few years ago, but didn't notice any real difference. But I was still eating grapes and raisins. So no wonder, Duh! So last April I cut out all grapes, including wine, raisins, grape jam, grape juice everything. That made a huge improvement for me. Not instantly but over a month or 2. So, no I don't drink wine anymore. It was good while it lasted though! :)

Muffin, my cat, likes to kneed my stomach when my gut is hurting. I don't know how she knows it, but she does.

My opinion is the best thing is to stick to a whole foods diet for awhile, and see how things go. If things don't improve after 3 to 6 months, then it makes sense to look at other food intolerances. It can take 3 to 6 months for people to learn to eat gluten-free in the first place.

I am in Washington, DC, USA. I came here from Ohio though, another state in the US. Spain would be nice to visit. I made it as close as Portugal once, but didn't get to Spain. My ancesters are Irish, English and German though. With a little American Indian thrown in.

We are having a warm winter here in DC so far. Hardly any snow and not too cold. I think it is close to a record warm winter in fact.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,349
    • Total Posts
      935,642
  • Member Statistics

    • Total Members
      65,030
    • Most Online
      3,093

    Newest Member
    LailaR
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am sorry that you are sick!  Ennis has offered some great advice.  With small children, they can be glutening you.  I recall member Jebby getting glutened by her kids.  She worked full time as a neonatologist (premie doctor) and her kids would give her slobbery, adorable kisses, etc.  Jebby had the household go gluten free.  That might be something to consider.  
    • Hmm... my massage therapists use aromatherapy and specifically ask you to inhale several times while they hold it very close to your face and I do have them rub my face (although some people don't like that and don't have it done.) Lotion also ends up on your hands which you could transfer to food you eat afterwards if you haven't washed your hands well (obviously hand washing is key!) But I don't think that is too far of a stretch to think it *could* be injested and to double check to be sure the products used are gluten-free.  And at a salon I realize that they'd wash my hair tilted back but what about product(s) being spritzed on your hair when styled? Rare yes, but I do know I've "tasted" those products before! Ick.  
    • I was noticeably gray at 18. Both of my parents went gray young as well. I have no thyroid problems and I'm pretty sure my celiac issues didn't start until 20 years later....   I started dying it when I was 28. I wanted to look more professional!
    • Celiac disease is not diagnosed by symptoms alone. Why?  There are over 300 of them and many, if not all, overlap with other autoimmune issues or other illnesses.  Learn more about proper testing: http://www.cureceliacdisease.org/screening/ I am formally diagnosed.  My hubby is not.  His mis-informed doctors told him 16 years  ago to give up gluten.  It worked, but now we do not really know if he has celiac disease or not.  He will be the first to say that I get WAY more support from family, friends and medical.   I am sorry at your doctor gave you the wrong advice.  Now, you must decide if testing is worth pursuing.  I wish you well.  
    • I am considering having my brother - who inherited Daddy's power woodworking tools - plane down my cutting boards and sand the edges enough so I can keep them. The spoons and soup stirring things though will have to be decorative. Breaks my heart. I've had good luck with Merle Norman cosmetics. They have a listing of things that are gluten-free that has helped me. My local store owner was able to get the list and knows what I can use and what I can't.
  • Upcoming Events