• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed - Dizzy - 7
0

7 posts in this topic

Hi celiac community - I am newly diagnosed with Celiac and I've been gluten free for 7 weeks. The diarrhea has stopped - thank God. But since the sudden onset of my symptoms - before and after going gluten free I have been dealing with dizziness that seems brought on by eating. I am following leaky gut protocol for diet so am eating entirely different than ever before. No corn, soy, or any of my found allergens. Sometimes the dizziness starts when I'm eating. Sometimes it doesn't go away for 2-3 hours. Sometimes my eyes go blurry as well. My holistic dr just says this is the celiac/leaky gut affecting me neurologically and that this will go away as my intestines heal.

Just want to hear if other celiacs have this symptom and how it resolved for you. Tired of being dizzy...

Edited by Rose74
0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Also, went through fasted glucose testing and multiple examinations of my low blood pressure (the sitting to standing tests) to see if that was causing the dizziness...none of it showed as the cause.

Edited by Rose74
0

Share this post


Link to post
Share on other sites

For me, this is a sign of malabsorbtion, which I think it just a temporary thing (as in a few months to a few years) related to leaky gut. I was having reactions to all kinds of foods I had thought were safe, that I had eaten for years -- simple things like eggs, which I'm not at all allergic to. Turns out that leaky gut leads to some malabsorbtion that won't show up as an allergy, and not everyone has the same problems with the same foods.

Are you keeping a food diary? Try seeing if you can ID the foods that cause this. At first it may seem like everything does, but I isolated out five food initially that didn't, and then slowly kept trying to add in new ones and now I have just over a dozen I can eat without dizziness (I'm starting my second month gluten-free). I found some studies on PubMed that suggest your leaky gut will improve a little within two months, then will be even better in a year. It may take a lot longer to heal completely.

If you go to an MD, they can also test you further issues you may be having. It's normal for your system to be a little off right now, so you may want some bloodwork/stool testing done for things like H Pylori (which causes ulcers), vitamin/mineral deficiencies (anemia esp., given your dizziness), and a whole host of other things.

0

Share this post


Link to post
Share on other sites

Welcome Rose74,

I am sorry you have suffured, but I am glad your on the trek to recover. I suffer very little dizziness, but I did have alot of brain fog and fatigue that was sort of like dizzy. I have done many things and have not had the problem since my last virus.

Diana

0

Share this post


Link to post
Share on other sites

For me, this is a sign of malabsorbtion, which I think it just a temporary thing (as in a few months to a few years) related to leaky gut. I was having reactions to all kinds of foods I had thought were safe, that I had eaten for years -- simple things like eggs, which I'm not at all allergic to. Turns out that leaky gut leads to some malabsorbtion that won't show up as an allergy, and not everyone has the same problems with the same foods.

Are you keeping a food diary? Try seeing if you can ID the foods that cause this. At first it may seem like everything does, but I isolated out five food initially that didn't, and then slowly kept trying to add in new ones and now I have just over a dozen I can eat without dizziness (I'm starting my second month gluten-free). I found some studies on PubMed that suggest your leaky gut will improve a little within two months, then will be even better in a year. It may take a lot longer to heal completely.

If you go to an MD, they can also test you further issues you may be having. It's normal for your system to be a little off right now, so you may want some bloodwork/stool testing done for things like H Pylori (which causes ulcers), vitamin/mineral deficiencies (anemia esp., given your dizziness), and a whole host of other things.

Hi Chaff - Thank you! I didn't know that the malabsorption could not show up as an allergy. That helps me look at it differently. I am on a rotation diet (trying at least) because the last food allergy testing I had showed that my mass consumption of rice over the last months ended up in my body creating higher levels of antibodies to rice than wheat! I am writing a food journal and I will try to take more note of which foods seem to cause the greatest dizziness. I did have bloodwork/stool testing done through these last months and I am grateful to say that my most recent bloodwork showed that my low magnesium and vitamin D levels actually went up into normal range. So it means I am absorbing something now which is beautiful to me! And H Pylori came back negative. I will check out the PubMed stuff on leaky gut you referenced - thank you!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Welcome Rose74,

I am sorry you have suffured, but I am glad your on the trek to recover. I suffer very little dizziness, but I did have alot of brain fog and fatigue that was sort of like dizzy. I have done many things and have not had the problem since my last virus.

Diana

I have had plenty of brain fog and fatigue as well these last months. As soon as I have my first meal of the day I can't think as clearly - the dizziness and brain fog go hand in hand. I am sorry you have suffered as well!

0

Share this post


Link to post
Share on other sites

Hi!

If you like, check my old posts. I have same thing as you. Soon I will eat something in the morning, I will have brain fog, I can't think clearly, I'm dizzy, etc. I saw many doctors, had many tests and extensive blood works with negative results. Doctors excluded everything and were puzzled by my symptoms. Then I saw one doctor at Columbia University Hospital in New York and he told me that I have autonomic dysfunction after virus infection, or pneumonia that I had 2,5 years ago. Only test that showed something wrong was Tilt table test for 50 minutes, not short version and valsava test for parasympathetic nervous system. I'm not telling that you have it, but if you do, my advice might save you time and money.

http://www.celiac.com/gluten-free/topic/89447-hm-any-advise/

http://www.celiac.com/gluten-free/topic/87219-pots/

You might have Postprandial hypotension (I have that too with POTS). Make one test: Measure your blood pressure before meal, then 5 minutes after, then 10 minutes, 15, 30. If you see your blood pressure go down 15-20 points, you have it. Later your blood pressure will go back up to normal. My neurologist explained to me that my stomach would take too much blood for digestion of food, I wouldn't have enough for circulation to my brain (dizziness), my hearth would start pumping hard (I can feel it beating fast) to resolve blood shortage, but my brain things that I'm in distress, so instead elevating blood pressure, it will lower it (which makes me more dizzy, weak). This is autonomic dysfunction in my case. You can have different types of autonomic dysfunction.

My symptoms were very mild at the beginning, but with more time I developed very strong reactions to food. I had symptoms first. I thought that I had something wrong with my stomach, so I saw gastroenterologists to find out what was wrong. Everything was "perfect", accept I found out I might have beginning of celiac disease and I'm gluten free all this time.

Maybe this is too much information for you, and you can have just problem with malabsorption, or hypoglycemia, or maybe dumping syndrome - your food will travel very quickly from stomach to intestines, or you can be just dehydrated which can have similar symptoms.

I hope that you will get better soon and you will find out what is wrong quickly.

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,401
    • Total Posts
      935,865
  • Member Statistics

    • Total Members
      65,083
    • Most Online
      3,093

    Newest Member
    Peaceful35
    Joined
  • Popular Now

  • Topics

  • Posts

    • There aren't any gluten free nut brand in my country. Are nuts with shells like peanuts,walnuts sold in stores without package gluten free? Do they add anything else to them? 
    • Supplementation with Natural Vitality Stress & Energy, will help a lot it is a sublingual B-vitamin pretty much. I use it with the Neurological support from the same company and Natural Vitality Calm Magnesium. These along with a diet in foods that help with mood like snacking on cocoa nibs, hemp seeds, etc. Takes the edge off of everything and I do not worry but just roll with life. Here are some helpful links https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/ A set of microwave cookware from nordicware will make the transition and cooking some foods super simple and cheap, steam trays, rice cooker, grill plates, omelette makes etc, also great for trips. Butcher paper/Freezer paper can make a nice safe cook and eating surface and makes clean up a breeze. Crockpot meals with a crockpot liner makes really easy soups, risotto, stews, pot roast, etc and the liner can make cleanup super simple just pull it out and toss it.    Eggs dishes like omelettes using the microwave cooker, scrambled egg dishes, are super simple and one of my go to meals I also so simple stir fry meals a lot. Saute in order of harder and seasoning veggies and meats first and finish off with a sauce/deglazing mix 10-20min meal. I have posted recipes for meals in the recipes sections. MY flat bread recipe seems to bit hit recently being cheap easy and very versatile in how you can make it.
    • Hey everyone... newbie here. I have a few questions but first my history: Dx with Hashimoto's in 2003. Had SEVERE adverse reaction to T4 no idea why but then switched to T3. But T4 opened a can of worms. Immediately after starting T4 had digestive issues. Aften a few years tried gluten free. No help but stayed on gluten-free diet. 2013 gave in to blt cravings and had wheat sandwiches everyday for a week. Woke up one morning with muscles so swollen or inflammed couldn't  get out of bed. No more gluten. Also had blood in stool. 2014 finally dx with pancreas insuffiency. Digestion improved and blood stopped but at same time also dx with colitis (i strongly doubt this dx and don't  take colitis drugs). A year later added cheese back into my diet. Bleeding came back. No more dairy now, blood gone. Now i might have gastritis and sibo. Endoscopy planned for October. 23andMe testing also shows a single mutation for celiac. If i just stay Gluten-free Casein-free does it really matter is i get a dx for celiac? Celiac disease and gluten intolerance... same thing? Is blood in stool common with celiac disease? Is colitis often a wrong dx for celiac disease. Can a biopsy dx celiac when already Gluten-free Casein-free?  Which end of the small intestines used for biopsy? Meaning, when doc looks at my stomach can he do small intestine biopsy or do i need a colonoscopy instead?
    • My 7-year-old has been complaining of constant itchiness and a skin crawling sensation for the past five months, but has no external rash or symptoms.   It seems to get worse at night, although that may be because it's more difficult to distract herself at bedtime.   We've tried switching shampoos and detergents, tepid baking soda baths followed by gluten-free lotion, re-reading the labels on anything that comes in contact with her skin, having her re-tested for more food sensitivities, and even checking the house for mold and cleaning all the air ducts.   Nothing has helped. Her pediatrician referred us to an allergist who had us try several different histamine blockers, but not even Benadryl brings relief, so it doesn't appear to be a histamine issue.  Blood tests show that her kidneys, liver and thyroid are all functioning normally.   Right now I'm trying having her go nitrate-free since that isn't included in food sensitivity tests, but so far no improvement.   Now they want to refer her to a dermatologist, but the appointment is a month away and she is MISERABLE.  I have no idea how to help her.  
    • Wow! It sounds like you are going through a lot right now.  Most of our dinners at home are gluten free and my kids eat the food just fine. It does take a bit more planning and you have to make more things from scratch.  Our favorite dinners are tacos (serve on corn tortillas), red beans and rice, fajitas, grilled meat (BBQ chicken, fish, steaks, shrimp).  My crock pot is a life saver because I can leave it cooking al day and come home to a hot meal. Also, check out an instapot. I might make cooking a lot easier.
  • Upcoming Events